u/Ordinary_History_79

Clobetasol use after comment by my Dr

I’ve had this on my mind since my last Dr’s appointment. I mentioned wanting a script for more Clobetasol (for when what I have runs out) and the Dr was like “How much are you using it?” I said that I try to get clips where I just use aquafor and every couple of days use a small amount of the Clobetasol with it. She seemed concerned that I was using it so much. When she examined me, though she said that all the tissue looked fine down there and her concern was that using the clobetasol so much would thin the tissue? That had not happened for me she said.

I felt so discouraged after that appointment like I was doing something wrong. I forced myself to go a lot longer without using any of it and then I ended up in a pretty bad place where I had to use it to get myself comfortable again. Am I abnormal in that I need to use this pretty “often” and can not get weeks or months of time where I don’t start to feel like I need a treatment of it?

Is this just a case of my doctor not experiencing or understanding LS herself and she is unrealistic with her comments? Is there really a concern about skin getting “thin” there? Because how raw and awful a flare feels I’m not sure that “thin skin” is a worse trade off…?

After that appointment I vowed to make a post here to see what the thoughts were from people who are actually in the trenches with me?

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u/Ordinary_History_79 — 1 day ago