u/Organic-Gap7209

I need advice

So for context I’m right now on an NG tube and I’m on continuous feeds (10 hours a day) but it messes with my routine so like if I’m going out lol for example swimming I have to stop it but it then adds on another hour or minutes or whatever, does anyone here do bolus feeds I want to ask my dietitian about moving onto boluses solely because when I go to theme parks I have to pause it for hours so there’s no chance of me being sick so my stomach is empty when I’m on rides and I think boluses would be better so if I got hungry j can give myself a feed if that makes sense I don’t know how to go about it I also sleep in sometimes as well which makes me on my feed until really late like today I woke up at 12pm and put my feed on at 1pm which means it won’t be off until 11pm or 12am tonight and I’m a person who needs to shower every night, the pump is okay but I just think boluses would be better (I did get offered this at the hospital when I was choosing a pump or boluses but i didn’t know much about boluses so I chose a pump) but yeah advice would be great, thanks!

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u/Organic-Gap7209 — 1 day ago
▲ 4 r/ARFID

I need advice

So I have ARFID and I am currently NG fed, I was referred to the ED services and in my second appointment they spoke about exposure therapy, now in that appointment my mum was speaking for me making it seem as I was ready but I wasn’t feeling ready, I had my review and I said I wasn’t motivated to do it and I was anxious now a few days later I feel a bit more ready but I’m scared they’re just gonna discharge me for not doing it I want to but when it comes to talking about food or eating I become extremely anxious and on top of that I’m not good at expressing my emotions at all they said they would call me with next steps would it be worth telling them that I changed my mind and want to give it a go because I don’t know if ed services offer other therapies they did tell me if I didn’t want to do something they would change the plan but I’m terrified of being discharged arfid is hard people don’t understand it’s not as easy as just eating new foods I don’t know why it makes me so anxious any advice or tips would be most appreciated I live in UK for reference

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u/Organic-Gap7209 — 6 days ago