u/Paperbug7

Doctors recently found I (26y F) have a 2 cm solid pseudopapillary neoplasm (Frantz tumor) in the tail of the pancreas. They have recommended a distal pancreatectomy with a potential splenectomy.

1. Has anyone here had experience with Dr. Lily Victoria Sadaat at MSKCC? I think MSKCC has been very efficient and all the team acts very professionally, but it's all very straightforward and not as compassionate as I would've liked.

2. Has anyone here developed diabetes after both procedures? If so, how long after? And how much of the pancreas was removed in your case? I'm told only a small part of the tail would be removed, but I also know that's where the cells that produce insulin are.

3. Was anyone here able to keep the spleen without complications? I understand that the tail of the pancreas and the spleen are somehow connected, but I worry about taking out a completely healthy organ, and I know in some cases, doctors can keep it.

I'm also looking for a second opinion in Orlando, Florida, where my family is, because I've been reading about recovery and I don't know if a NYC apartment with no elevator is the best place to recover.

4. How soon after surgery were you able to take stairs? I live on the second floor.

5. Any recommendations for a doctor in Florida?

Thank you! Sending strength to everyone in this group.

Doctors recently found I (26y F) have a 2 cm solid pseudopapillary neoplasm (Frantz tumor) in the tail of the pancreas. They have recommended a distal pancreatectomy with a potential splenectomy.

1. Has anyone here had experience with Dr. Lily Victoria Sadaat at MSKCC? I think MSKCC has been very efficient and all the team acts very professionally, but it's all very straightforward and not as compassionate as I would've liked.
2. Has anyone here developed diabetes after both procedures? If so, how long after? And how much of the pancreas was removed in your case? I'm told only a small part of the tail would be removed, but I also know that's where the cells that produce insulin are.
3. Was anyone here able to keep the spleen without complications? I understand that the tail of the pancreas and the spleen are somehow connected, but I worry about taking out a completely healthy organ, and I know in some cases, doctors can keep it.

I'm also looking for a second opinion in Orlando, Florida, where my family is, because I've been reading about recovery and I don't know if a NYC apartment with no elevator is the best place to recover.

4. How soon after surgery were you able to take stairs? I live on the second floor.

5. Any recommendations for a doctor in Florida?

Thank you! Sending strength to everyone in this group.

Doctors recently found I (26y F) have a 2 cm solid pseudopapillary neoplasm (Frantz tumor) in the tail of the pancreas. They have recommended a distal pancreatectomy with a potential splenectomy.

1. Has anyone here had experience with Dr. Lily Victoria Sadaat at MSKCC? I think MSKCC has been very efficient and all the team acts very professionally, but it's all very straightforward and not as compassionate as I would've liked.

2. Has anyone here developed diabetes after both procedures? If so, how long after? And how much of the pancreas was removed in your case? I'm told only a small part of the tail would be removed, but I also know that's where the cells that produce insulin are.

3. Was anyone here able to keep the spleen without complications? I understand that the tail of the pancreas and the spleen are somehow connected, but I worry about taking out a completely healthy organ, and I know in some cases, doctors can keep it.

I'm also looking for a second opinion in Orlando, Florida, where my family is, because I've been reading about recovery and I don't know if a NYC apartment with no elevator is the best place to recover.

4. How soon after surgery were you able to take stairs? I live on the second floor.

5. Any recommendations for a doctor in Florida?

Thank you! Sending strength to everyone in this group.