Im having a hard time understanding how. How did this happen to me, why did it happen, what am i supposed to do with this experience, why me, how are bags possible. What can i do, why did this happen to me.
Ive had the diseased part of my terminal ileum removed with an ileostomy created. Anyone have experience with this? I feel like my life crashed on itself. Theres no crohns but dealing with having a stoma is very hard. Cant wrap my head around what happened to me to recover from this disease
Two weeks post reversal and the wound still stings and is very deep and wide. I feel like my surgeon messed up and didnt close it enough. I see people saying it healed in two weeks but mine feels like it will take alteast another month and half to heal.
Im not feeling great, im not leaving the house much because im worried im gonna need the bathroom. It sucks, what helps you?
I get the idea of how to pack it and cover it with gauze. I just cant handle it. Im scared i wont put enough gauze inside, i scared to put the gauze inside cause it hurts a bit. I just wish i dont have to do this. Im 10 days post reversal. When does this heal its huge
I cant seem to calm down, i cant breathe. I feel trapped by my body.
How did it go regarding pain, body recovery, and wound healing timeline
I survived this war. Felt like i had to escape the hospital, i was let out of the prison in the end. I hated him, hated my surgeon. He was gonna trap me with a new stoma again. After i survived it he was going to let me go through it again. As if its nothing, nothing major, just another period with a stoma. Then another surgery, another recovery. What an asshole. But i survived him. This got me to such a low point, i really was thinking of ways to kill myself that night. Also its crazy to have someone controlling my fate.
Im out of the hospital now, i dont know how its going to be, but theres no outside thing attached to me 24/7 i cant get rid of. Im still uncomfortable but i was uncomfortable everyday with the stoma bag with no end, at least now i know recovery from surgery will come. Slowly but it will.
I realise my surgeon has the best interest in my health he was worried about a leak, but talked so casually about fixing that with a new stoma and a new healing period then another reversal surgery. Wtf! I couldn’t fathom it.
Im being a bit dramatic i know.
How do you take care of an open wound? Do you shower and let clean water run over it. Its still very painful I’m 4 days post reversal. It looks crazy awful. But it will heal fast i hope.
It’s finally coming to its end. I hated this experience, ive been uncomfortable since day 1. Im grateful for it, im grateful that it made me eat, but i cant live like this more. However, it’s been an honor to be part of this community, you’re all resilient i dont know how you all do it. Thank you.
Having an ileostomy reversal this month, very excited. Any advice ? Thank you
10 weeks post operation. Its been rough, my body doesnt feel good. This was so hard, im still getting tired so fast, my body aches. I know i need exercise at some point.
How painful is the site where stoma was? How long it may last? Am i going to have to sleep on my back only for a few weeks? Walking, moving, sitting, how was it for you? Thanks
Ostomy surgery was very rough, im scared all that pain gonna come back and im back to zero in my body’s recovery
I have had the stoma since may and im having reversal on the 15th of august. Cant wait. This experience wasnt great. Hated it. I wont be relieved until i wake up after surgery without the stomach. Still scared that wont happen. I cant handle that. Hopefully it happens successfully. Whats it like having no stoma? Its all surreal. I sometimes still dont believe i have a bag. I dont know what to make from this experience. I really need therapy.
Idk when the surgeon is gonna decide. Im sick of this shit. I want it over, i want the stoma gone. I want to go back to my normal life. Im depressed on edge and not happy. Im very impatient and hate my life.
It’s hopefully in a month and a half. Time isnt passing fast enough. Anyone else is waiting for reversal soon? How can i prepare what do i need in the hospital
The bag is bothering me i dont know why. Ive started to tolerate it but it’s bothering me right now. I just changed the whole thing maybe that will make it better. I cried when output came out while im changing it. Sad and want to cry.
Ive quit so many times, nicotine out of my body, and i keep smoking again after a while. Even though it messed up my health so much , its literally a cause to why im living through hell right now , health-wise. It will also ruin my marriage if im found out, cause its bad for my health and that cant be forgiven what my health has made us go through.
Im scared 😭 it was so yummy though
Ive quit so many times, nicotine out of my body, and i keep smoking again after a while. Even though it messed up my health so much , its literally a cause to why im living through hell right now , health-wise. It will also ruin my marriage if im found out, cause its bad for my health and that cant be forgiven what my health has made us go through.