u/Particular-Toe-6716

How do you take care of an open wound? Do you shower and let clean water run over it. Its still very painful I’m 4 days post reversal. It looks crazy awful. But it will heal fast i hope.

It’s finally coming to its end. I hated this experience, ive been uncomfortable since day 1. Im grateful for it, im grateful that it made me eat, but i cant live like this more. However, it’s been an honor to be part of this community, you’re all resilient i dont know how you all do it. Thank you.

Having an ileostomy reversal this month, very excited. Any advice ? Thank you

10 weeks post operation. Its been rough, my body doesnt feel good. This was so hard, im still getting tired so fast, my body aches. I know i need exercise at some point.

How painful is the site where stoma was? How long it may last? Am i going to have to sleep on my back only for a few weeks? Walking, moving, sitting, how was it for you? Thanks
Ostomy surgery was very rough, im scared all that pain gonna come back and im back to zero in my body’s recovery

I have had the stoma since may and im having reversal on the 15th of august. Cant wait. This experience wasnt great. Hated it. I wont be relieved until i wake up after surgery without the stomach. Still scared that wont happen. I cant handle that. Hopefully it happens successfully. Whats it like having no stoma? Its all surreal. I sometimes still dont believe i have a bag. I dont know what to make from this experience. I really need therapy.

Idk when the surgeon is gonna decide. Im sick of this shit. I want it over, i want the stoma gone. I want to go back to my normal life. Im depressed on edge and not happy. Im very impatient and hate my life.

It’s hopefully in a month and a half. Time isnt passing fast enough. Anyone else is waiting for reversal soon? How can i prepare what do i need in the hospital

The bag is bothering me i dont know why. Ive started to tolerate it but it’s bothering me right now. I just changed the whole thing maybe that will make it better. I cried when output came out while im changing it. Sad and want to cry.

Ive quit so many times, nicotine out of my body, and i keep smoking again after a while. Even though it messed up my health so much , its literally a cause to why im living through hell right now , health-wise. It will also ruin my marriage if im found out, cause its bad for my health and that cant be forgiven what my health has made us go through.

Im scared 😭 it was so yummy though

Ive quit so many times, nicotine out of my body, and i keep smoking again after a while. Even though it messed up my health so much , its literally a cause to why im living through hell right now , health-wise. It will also ruin my marriage if im found out, cause its bad for my health and that cant be forgiven what my health has made us go through.

I want to say im the same person but i changed. Going through the worst shit that could happen, i stopped compromising, nice talk, cant tolerate any bullshit, and i have developed a temper . Ive changed and i dont think its for better

Ive been having watery output since yesterday with bursts of non watery that are painful when they come out. Along of pressure above and in stoma during the thick output. Im not sure what going on, if i messed up with something i ate. Im trying to stay hydrated but im getting worried and scared. Im 6 weeks in. Ive had pressure and some pains with output before but this is worse than usual. I checked stoma, shes pink but not as shiny moist as it used to be, is that bad? Thanks

Almost 6 weeks in and back to work. Work is good makes me forget, but when i remember i feel like im gonna be so overwhelmed i try to stop thinking. Its crazy everything is crazy idk how I’m surviving

Did i mess up by eating this? Its only been 6 weeks. I haven’t eaten fried chicken in so long due to crohns and i couldn’t stop now. I didnt even chew very well. What should i do now should i be scared

So i had the part of my terminal ileum that was inflamed removed. Five weeks ago and have a temporary stoma now, and will be reversed in two months hopefully. Saying things being hard is an understatement. Went from problems w crohns to figuring out stomas. Life is crazy, fuck crohns. But im grateful that i can eat more now, i was starving. Hopefully will have a reversal soon, anyone has experience with that after removing part of their terminal ileum ? How was your recovery and your diet like?

Im 5 weeks in and cant stop thinking how crazy my life is. Im 31. Crohns fuxked me up so badly i had to have a stoma. I know no one with a stoma. I dont think anyone where i work (a bank but i live in a small country also) has a stoma. Wtf happened to me
I know i should be grateful. Its just hard to wrap my head around it.

I wanna meet someone with an ostomy. Hello?

I keep seeing i will have ( “will” hopefully, the plan is in two months ) get alot of urgency. How long does that last? Hows site recovery going to be like