u/PersonalityPlus9497

Horrible Practice - Need Advice

TLDR: I have a very complex medical and mental health history, and I feel like my neurofeedback provider is playing a trial and error game with my sites and protocols. She is also very dismissive, demeaning and rude. It’s the only neurofeedback provider in the area, and it has been helping. I’m at a loss for what to do though.

Hi everyone! I have been doing neurofeedback 2 times a week for 10 months, and just started alpha theta 3 months ago, so I’ve had 3 sessions. I have a multitude of symptoms I’ve been doing neurofeedback for, including dysautonomia, POTS, epilepsy, cPTSD (with repressed memories that are continuing to resurface), Panic Disorder, MDD, and GAD.

I’m getting more and more of a feeling that my neurofeedback provider has very limited experience and training. She has had to try many different sites to make any difference in any of my symptoms. It has worked, but it does feel like she’s playing a trial and error frame with me.

She is barely in the office as well. She has a partner (who is very nice and sociable) who does all the work around the office. When she is in the office, she acts like I’m not even there and she hasn’t said a word to me in person since the intake session. I do communicate through email with her but she is very dismissive and what she tells me does not match up with the research I do.

For example, a month ago I had alpha theta and it caused memories to resurface from my trauma and caused me great anxiety, panic, and increase in suicidal ideation and flashbacks. I recently messaged her and told her this as well as that I was hesitant to do another alpha theta session because of this. She responded with, “Alpha theta is not known for increasing symptoms, but I guess we’ll continue to try ILF until symtpoms are more stable.”

She is very dismissive and passive aggressive and I just dislike her. She mentioned that she used to be a therapist before doing nuerofeedback and I thought to myself “no wonder you transferred to neuro, because if I were your client, I’d immediately leave.”

Anyways… sorry this was so long, but I’m really at a loss of what to do, suggest or ask her. Because I hate interacting with her. neurofeedback has helped a lot of my symptoms, but this is the only Neurofeedback provider within 100+ miles. I feel like she doesn’t have experience to work with cases as complex as mine and what she tells me is constantly different that what the research I’ve done says.

What do I do?? Please help!

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u/PersonalityPlus9497 — 8 days ago