How I got diagnosed with hyper mobile eds
Ever since I was in about fifth grade I was able to slip my shoulder out of place,l do not encourage this I was just aware I could do it . I started noticing I was a lot more flexible than other people in gym class in middle school and I didn’t really think much of it. It all kinda went down hill when I started lifting and playing football. Obviously being able to slip my right shoulder it felt naturally looser you could say then my left one and one of the first times I tried to bench a decent bit of weight my shoulder fully dislocated. I popped it back in and called it good but that was the start of my injuries that season. Every time we’d lift something would slip and it’d hurt like my wrists slip when I curl weight so I had to wear wrist wraps. During actual practice I’d roll my ankles constantly and they were so black and swollen but I’d just tough it out and keep practicing cause I thought I was being weak or something. I should add ontop of the joint stuff that my grandpa has ankylosing spondylitis and I think another thing called like fibromyalgia and I started having really bad eye flare ups where it’d just get inflamed. About a month after the shoulder incident my back would start to feel like someone stuck rebar in it and I got started on a immunosuppressant which helped a tiny bit for my back but was prescribed for my eye. I complained to the rheumatologist every time I went about my back because I’d just be sitting down doing nothing and it felt like someone was stabbing at it. Fast forward to the end of the football season and were lifting and I’d started noticing my shoulder getting looser and it was holding my bench back and I’d go to squat and my hips felt like they were gonna pop but I didn’t really pay much attention to it. Well my shoulder popped out and ripped my labrum so I ended up seeing a doctor and that’s when he tested me and diagnosed me with heds. I told my rheumatologist about the diagnosis and then I complained about my back more and I usually have a pretty good pain tolerance but he finally put me on medicine to help with the pain so at least it doesn’t hurt when I’m just sitting down. I ended up getting surgery on my shoulder and it feels amazing now but my hip has started slipping. I mean before I tore my shoulder I’d noticed my hip would get “stuck” at certain angles but now it’s loosening up like my shoulder did and is starting to hurt and I can feel it try and pop out. I know there’s people that have it worse but this sucks I went from being strong and big, to weak and falling apart. It doesn’t help that my back is hurting all the time and I still don’t know why. I miss playing football and they told me I’ll never be able to play again and that’s pretty hard to comprehend.
PS- I put the NSFW tag on here cause I looked at the rules and it said something about you should put it on if there’s triggers and I’m new to Reddit and all of that so I wanted to make sure I covered all ground