u/Potential-Blood-1945

I'm trying to better understand the different ways dysautonomia can begin and evolve over time, as I'm currently trying to get a better grasp of where I am in my own journey. My symptoms appeared suddenly following a beta-blocker taper step that I think was too fast and it has been a lot to navigate. It’s already been a long road, but I’m finding out that, that might be my only way out of this.

I’d love to hear the stories of how your symptoms first showed up—specifically, if you had a distinct trigger event that started it all, or if things just seemed to appear out of nowhere.

For those who experienced a sudden onset did your symptoms gradually get better over time? Did you ever reach your "before" baseline again, or did you settle into a new normal?

36 year old looking to go back to school

I have always felt like I wanted to advance my education and do more. It is crazy to me all the different opportunities nursing has compared to our degree. I really want to be more involved in the patients overall clinical picture.

So that is why I am considering possibly going back to school to become an NP.

Choosing NP over PA strictly because I need to continue to work full time, my age, young kids.

I am pretty sure I want to specialize in neurology specifically autonomic dysfuntion and if possible cases like autoimmune, POTS, viral disorders. Assessing tilt table tests, helping titrate and taper medications and clinical rehab for these specific patients. I do not really want to go into the inpatient, stroke, or brain tumor side of things. I mean this is a pretty specific detail but is it possible to go right into something this specific?? I understand I will have to do the route of family medicine and then go into this sub specialty.

Just curious if anyone has went on to nursing school from this degree?

Thank you for you help!

36 year old looking to go back to school

I have always felt like I wanted to advance my education and do more. It is crazy to me all the different opportunities nursing has compared to our degree. I really want to be more involved in the patients overall clinical picture.

So that is why I am considering possibly going back to school to become an NP.

Choosing NP over PA strictly because I need to continue to work full time, my age, young kids.

I am pretty sure I want to specialize in neurology specifically autonomic dysfuntion and if possible cases like autoimmune, POTS, viral disorders. Assessing tilt table tests, helping titrate and taper medications and clinical rehab for these specific patients. I do not really want to go into the inpatient, stroke, or brain tumor side of things. I mean this is a pretty specific detail but is it possible to go right into something this specific?? I understand I will have to do the route of family medicine and then go into this sub specialty.

Just curious if anyone has went on to nursing school from this degree?

Thank you for you help!

Hey just wondering if anyone has tried going on metropolol tartrate and how did it affect your nervous system being on the dose?

Anyone try tapering and how long did it take? Did you slowly have flares for weeks, did they fade over time?

I got put on this medication in December and am now tapering it has been a long process. I have been on my current dose for 52 days and am still experiencing sensitivity to heat, morning standing up and eating carb heavy meals. They are getting less intense but literature states peak sensitivity is days to 3 weeks. I just didn’t know if anyone experienced lingering symptoms that eventually faded and went away??

Thank you :)

I was put on 25mg twice a day of metropolol tartrate in the ED on 12/27/25 after one tachycardia episode on 12/25/25 HR got to 150 and I felt thumping for about 3 hours and then it resolved. The next couple of days I felt lightheaded, anxious, tired and like I was scared I was going to pass out but never did, my heart basically hit baseline but just felt sensitive or jumpy. Hence why I went to ED and they put me on this drug…

I have been sensitive to it the whole time I have been taking it it started with tremors and feeling freezing cold. Per my pcp I went down to 12.5 mg twice a day in February. My echo and holter monitor came back negative so I got permission to taper off of it.

So in March I went down to 6.25 mg twice a day and started feeling more like myself finally! I stayed for 2 weeks and then went down to 6.25 mg once a day on day 10 I woke up and my heart was racing and kept me up for a couple hours I took a 6.25 mg dose and ended up going back up to my previous 6.25 mg twice a day dose. I feel like I struggled to get stable this time at that dose as I had to quarter 25 mg pills. Even at day 32 I felt anxiety and a tug of war in my chest.
I found a pharmacy that compounds into a liquid got that and went down to 5mg twice a day. At day 8 I felt a little rebound surge in the middle of the night and at day 14 I had a bigger one but it resolved within an hour. On day 16 all I can describe it as is a total nervous system flare/crash that lasted until day 22. I have been slowly stabilizing and going through all the phases perfectly layed out on ChatGPT. My pcp has said as long as I continue to stabilize I can continue to taper. I am planning on tapering my 5-6% at a time and holding for 14 days at least because eff going through that again….

I guess I am just looking for people who have experienced severe rebounds moving to a lower dose but got through the rest of the taper easier and have stayed completely off it. I do not want to continue taking it after all this. I have 2 kids and a full time job and this last couple of months have been ROUGH!!
I have not found very many stories like mine, most make it seem like it’s easy to get off of it. :’(