u/Prize-Mushroom-8715

Hi I’m a 16 and black female and I’m scared I have ALS. i’ve been having widespread twitching since February later, followed by lisping in speech, straining that has kind of went away and scrambling the words like my words, sound mushy or that my mouth is moving faster than my brain. At the base of my tongue it feels like it is swollen or it feels sore. And sometimes when I eat, my face feels tight. I have not seen anybody experience this except for me. I’m really afraid that is ALS even though it is rare at my age I have seen it happen. In every time I tell my doctor he says that there’s nothing wrong. It’s just my anxiety. But I have never had any type of speech problems until a couple months ago, but I experienced twitching way before like years prior. It went away and came back as widespread twitching in the speech problems is what is frightening me not the twitching. Please tell me if anybody has experienced what I’ve been going through and please be honest.

Hello, I’m back again I had to redo my post because I didn’t realize my bad spelling lol. Anyways can somebody please tell me if these are ALS symptoms or not or how it presents. So I wanna say in the beginning of February I started having widespread twitching that I was having tightness in my muscles like my feet, but the tight in my feet went away. But then I wanna say about a week or a month later I can’t remember I woke up in my speech has not felt the same. Like my speech just feels like my mouth is just tense off and on and that I either have a lisp in my speech that I can hear, mixing up my words like my mouth is moving faster than my brain or my voice has a straining feeling and sound in it but sometimes my voice goes back to normal. I really don’t know what is going on every time I go to the doctor I get brushed off because he says he doesn’t hear anything in my voice or because I am 16 and “black people don’t really get Als” I’m really scared that I have this terminal illness and that I’m going to die of it at a young age. even though nobody in my family has never had this. I read on teens with Als who have no family history have a genetic component like Fus or just get its. So can you please anybody tell me if you’re going through what I’m going through or do you think this is how ALS presents?

Hello, I’m back to game for the first time lol . But I want to give a little update my symptom because I have not posted for a while. As I said before, I’ve been having widespread twitching since February of this year. A month after that, my speech started to feel weird one day I was talking fine and then the next day I started having this weird feeling in my speech. Like I don’t know how to explain it. My speech sounds like I have a lisp then sometimes it feels like it is stained then the next and my words get all mixed together or when I’m trying to say one word it comes out completely the opposite like safer instance I’m trying to say health It might come out as help like words feel like I can’t process them correctly. And most of the time when I’m talking, I have it increases saliva or I have dry mouth and this has been going on for so long and nobody has said anything about my speech, but I could literally feel and hear it when it’s coming out that it sounds different. And I also been having tight fingers, but that was easily tested and it was overuse in my hands because I game a lot. But my main focus is my speech. The twitching was never a problem until it went to my tongue. In along with the speech weirdness, it makes it feel worse. I have pout pain in my mouth because my anxiety constantly causes to clench my teeth together. and I told my doctor about it, but he brushes it off as I’m too young. I’m just praying that my speech goes back to normal cause it does has it’s moments where it’s OK. I’m 16 years old by the way.