Nervous about seizure medication for my son
Hey! So my 9 year old son who is also level 2 autistic have been dealing with seizures since he was 5 years old (maybe younger but I saw it when he was 5 for the first time). After he probably had one every year if that. We had the choice of medication or waiting to see if it would go away. Since at the time he was still not talking we wanted him to be able to let us know if the medication affected him and in what way.
Fast forward to now he is 9 and his seizures have come back starting Aug of 2025 having one literally every month. His Neurologist have done every test MRI came back normal, CT scan normal, and his EEG was normal awake but showed spikes in the second relm of sleep. Tomorrow of Aug 2026 we talk medication and I’m terrified.
I think it’s because I’m in so many support groups and people on medication still seem to get no relief or have MORE seizures than before. Or the seizures get worse 🫤 it’s like a lose lose situation. Anyone have positive feedback or did anyone actually benefit from medication? I just don’t want him to be worse than he is now & regret it. But it’s like ultimately, I may not have a choice. 😔
I just wish medication was more of a clear solution.