Image 1 — 150 -> 114
Image 2 — 150 -> 114

150 -> 114

as of today I’ve been ~9 months cali sober! i was easily downing a 6-12 pack of beer most nights for 2 years. this easily would average 3000 calories on top of what i was already eating for 2 years straight. i’ve been prioritizing therapy as well for CPTSD- i see my therapist weekly, have started ketamine therapy, and try to enlighten myself everyday with understanding my brain better as well as my physical health.

a massive hurdle I’ve had to face is getting hit with the health impacts of hypermobile elhers danlos, as a teenager i used to LOVE high endurance and impact sports and running. it took me ~5-6 years to get an answer, and i started understanding it better (i was doing everything I shouldn’t have done the first few years on my health journey) so at first i prioritized physical therapy and very low impact exercises, then gradually moving up to body weight exercises and integrating running again. this took awhile but now im trying weight lifting and (possibly?) training for a marathon. inevitably i still deal with flare ups, and i lost a lot of weight due to a bad one earlier in the year. I make sure i listen to my body and understand that some days i should not push through.

for food, i just prioritize ingredients! i try to eat whole foods and don’t pay much mind to the calories. i am trying to gain some weight currently as i integrate weight training.

u/QuantumCaffeine97 — 1 day ago
▲ 2 r/SSRIs

final taper withdrawals

oh my god holy anger, I went from 2.5mg to 0 on Saturday and i should be locked in a padded room.

I’ve been tapering for about two months (extremely sensitive to medication changes) and finally stopped completely on Saturday. i only took 10mg for 6 months and the prior withdrawals weren’t even comparable to this. I’ve also been through this process 3 times over the past decade.

i don’t feel like myself whatsoever, and i rarely lash out at anyone or act out in an obnoxious/disruptive manner. not since i was a teenager. i was looking for a building while running late for an appointment and they had no numbers on them, i screamed fuck on the sidewalk and then yelled at my boyfriend- we have a healthy relationship and never yell at each other, and i feel horrible. luckily i live in a city where people don’t even pay attention cause there are plenty of crazies. But im so embarrassed and feel horrible about it, especially for yelling at him.

im ready for this to be over, im not doing a slower taper cause im already so close. but for shits and giggles (not funny in all actuality cause it’s miserable) what is your experience finally coming off your meds? my friend was telling me how she had to be put on antipsychotics coming off of Lexapro.

reddit.com
u/QuantumCaffeine97 — 3 days ago

quick & easy salt hack

not sure what flair to put this under but i discovered chicken flavored bouillon cubes! i got them for $2-3 and it’s over 1000mg of sodium for one. the salt tablets got expensive way too quick for how much i needed to consume. i have bad stomach issues especially with the heatwave and they don’t taste bad- you don’t necessarily need to dilute them like crazy either. im physically active and my job currently doesn’t have AC lol. it doesn’t necessarily help with the dizziness & stuff but it does help my extreme fatigue that i get. it beats drinking ocean water cause im poor.

reddit.com
u/QuantumCaffeine97 — 13 days ago
▲ 24 r/eds

neurology apt today

i made a post a couple of days ago listing all my symptoms & this was finally added into my clinical notes and I’ve been referred to a EDS specialist by my neurologist. :) i also have dysautonmia which is what i complained about the most because this goddamn heat has me down for the count. it won’t change much but hopefully the universe will be a little more patient with me in the coming years as we bring more awareness to it.

u/QuantumCaffeine97 — 24 days ago
▲ 25 r/eds

in the game too long

compiled over 3 years, in and out of doctors & still no diagnosis lol. also let them know that my mom complains to me about popping things out place doing absolutely nothing and has joint and mobility issues. 😔 the emg lady told me to start exploring stuff on my own cause of her experience with her mom, I feel crazy even writing all of this.

it’s so funny too cause their biggest concern at every appointment is my damn tremors but that’s what’s most visible to them. they even use it on my accommodation forms lol. “may drop things”

** id also like to note that I have photos/videos for most of this stuff

u/QuantumCaffeine97 — 26 days ago
▲ 3 r/SSRIs

tapering off my ssris

ive made the decision to taper myself off of 10mg of Lexapro- I’ve only been on it for 5 months so hopefully the withdrawals won’t be horrible.

it helps tremendously with my anxiety, but I have headaches everyday, it makes me constipated & nauseous (leading to no appetite) and I feel dead inside & I could sleep 20 hours a day, I have not been intimate with my boyfriend in over a month. I have no motivation to work on myself 😭

I’ve definitely experienced the worst of the withdrawals so that’s not my concern (my lovely father made me stop 60mg of Prozac after 3 years, cold turkey, so I could enlist in the military 🫩)

im so scared, mostly because of my short fuse associated with my OCD. idgaf about my crippling anxiety im so used to it, but i absolutely cannot take out my frustration on people or my cat or freak out over minor inconveniences. it’s embarrassing and absolutely not okay. it’s never physical or yelling, but I don’t want to react inappropriately to someone doing the most minor annoyance, it’s not fair to them.

I have at least 20 years of pretty traumatic shit behind me, im doing trauma work and starting KAP (I plan on doing maintenance afterwards) in a month so that gives me plenty of time to taper and observe whether the KAP is actually helping. I smoke weed at night which has helped me sleep and discontinue my mitrazapine, I also haven’t drank since January.

please reassure me I’ll be okay and this is the right choice, im gonna be back to working full time and full time school at the end of august. the way i feel right now wont be maintainable and it feels like torture. im also doing this on my own so i feel like im breaking the trust aspect of my client-provider relationship, but she’s on vacation until the end of July.

\*\* id like to note that ive tried at least 5 ssris now

reddit.com
u/QuantumCaffeine97 — 1 month ago
▲ 2 r/eds

appearance

TW: talk about body appearance

this is mostly a cosmetic complaint but im so insecure about my skin appearance. this isn’t even the tip of the iceberg.

my eyebags bother me the most, and EVERY goddamn time I get a pimple it’s scars- even small ones. I’ve tried retinol, acne cream, ice, blemish product, everything under the sun and no results. my teeth are clustered and chip super easily. I have super sensitive skin, and thin hair.

I break out in random rashes everywhere, I look like a fought a bear in my sleep (bruising everywhere, even just from scratching myself), I brushed up a piece of plastic and now im stuck with this red scar forever 😭

I also have deep stretch marks EVERYWHERE, i’m 110lbs and 5’4”, on my triceps, hips, even my boobs and I’m literally an A cup. this was definitely a result of puberty but still it’s excessive asf. not to mention the constant blood pooling where my skin is every color but white. also being extremely vascular- my veins protrude on my arms and my hip area, you can also see them everywhere just in general.

I complain about my pain enough, but i feel like no one recognizes the massive insecurities that comes with hEDS and there being absolutely nothing you can do about it.

u/QuantumCaffeine97 — 1 month ago
▲ 1 r/eds

emg results

at least i got something out of it, but nothing showed up. she said that it might be autonomic nervous system issues, but obviously my PCP decides that. does this explain my nerve pain? I’m not sure if this explains all my other symptoms like sciatica, weakness/numbness, dizziness, throbbing pains and sensitivity with wearing clothes, fatigue etc. just curious if anyone else has experienced this.

reddit.com
u/QuantumCaffeine97 — 2 months ago
▲ 4 r/eds

random observation

so i never knew that my clustered teeth and receding/bleeding gums may be a EDS thing, i hate them so much lol. I also get these really weird fluid filled bumps on the roof of my mouth that aren’t comfortable, along with canker sores. they also feel wobbly and I chip them easily. bad teeth do not run in my family whatsoever, but i guess i just took all the bad genetics for the team. im in my early 20s, I take such good care of my teeth & im not sure if the oral issues are a thing that progress regardless of what you do. it’s probably my biggest insecurity, and they’re severe enough where I don’t think Invisalign is an option. like are my teeth gonna fall out of my head

** sorry this is such a ramble but I swear I discover new things weekly

reddit.com
u/QuantumCaffeine97 — 3 months ago

help

so, i was gonna cover someone’s shift today but was informed yesterday by the STL that due to my accommodation for 4 days i couldn’t. im used to a doctors note just being thrown into a file somewhere and not locked into a system.

he didn’t seem upset over it, but he informed my TL that I couldn’t work today and my coworker told me he was scheduled again so i assumed that i was taken off the schedule. well i wasn’t, and I just realized it when i went to go check the new further out schedule. i did notify my ATL though yesterday, and i asked him that if i don’t come in today I won’t get in trouble due to the circumstances, and he said yes. I don’t know if it was a mistake not taking me off since my TL has been out, but I’m scared to call and find out whether im in trouble or not for not doing a proper callout.

our department is pretty chaotic and things get lost in translation all the time, im just stressed now, lol.

reddit.com
u/QuantumCaffeine97 — 3 months ago

wow

in my entire life of working, this place is so abusive. i have never seen employees get treated so badly (including myself) and im sorry y’all go through that. i’ve only been here a few months, and im extremely disappointed that they’d fluff it to me at the interview because i had other job opportunities at the time. i just wanted to recognize that ive never seen people work harder than the employees at Whole Foods, and y’all are worth so much more than what they tell you- Whole Foods in no way shape or form dictates your worth. 🫶

feel free to use this post as a vent!

reddit.com
u/QuantumCaffeine97 — 3 months ago
▲ 2 r/eds

at a loss

so i was in PT for two months, i was actually motivated too. :,) a lot of instability remains in my hips up to the middle of my spine, so we focused on glutes & hips. and let me tell you, i had the WORST flare up ever- i thought a nerve was compressing so i had the ER do an mri cause i couldn’t walk, dealt with muscle guarding everywhere, numbness, etc. nothing came back and i was so embarrassed but the pain was a 8/10, and it was beyond my normal symptoms.

anyways, i wasn’t able to push through PT so i was out for two weeks, and the flare up started to dial down and it was just my baseline symptoms after a bit. but, i started up PT again and i quickly ruled out that, that was the cause of what I went through. i am a bit frustrated because i mentioned to them on multiple occasions that my hips get irritated easily and my exercise list was never accommodated for.

I’d love to work towards managing symptoms, and strengthening the instability in my body- but I have no idea what to try next. I will love you guys forever if you can recommend some exercises, physical activities or even YouTube channels.

reddit.com
u/QuantumCaffeine97 — 3 months ago