Every other heartbeat - hurts so bad
My wife has had PVCs since March, 9% burden. Had an ablation at the end of may. Unfortunately they couldn't get the spot they needed to because it was too close to the main artery and the doctor said we could try again at a different time but they would need another cardiac doctor in the room in case the artery slams shut because of the heat.... so he got as close as he could. Says he has performed over 3,300 procedures.
People talk about their pvcs on here and they talk about how bad they are, and they get a dozen an hour and it's so terrible. 12 in an hour?, that would be AMAZING!! She'll go for days and won't have any (confirmed with an ECG apple watch) and some days, like today, they are every other beat, for hours (sometimes 6 hours), and she feels like she is going to die because her heart literally hurts so bad. She will cry in pain for hours. She's cut out all caffeine, never a nicotine user, exercises moderately (which doesn't seem to trigger anything), and eats good (in shape). We have no idea what the triggers are, but that seems pretty normal with PVC.
She's tried all sorts of meds. The doctor says they are just for symptom control and won't actually fix the PVC. They all make her groggy, and moody, and the quality of life on all of the meds suck. The only one she hasn't tried is Flecainide, but the side effects seem so bad (which include accidentally overdose/death) and still carries risk of mood issues which makes every day unbearable. Her body is very temperamental to meds regarding mood due to hashimotos, so we try our best avoid meds with those side effects because the outcome is usually not better than the problem we're trying to solve.
I don't know what I'm looking for here but if anyone has any tips/tricks, that would be great. Not sure if we'll every try the "risky" ablation since the risk is artery closure (essentially a heart attack) and I'm not sure either of us are ready to risk death over this. She does use ice packs on her chest when she's having a real bad episode that seems to help a tad.