u/Remarkable-Dog1607

My sister was with my dad yesterday at the hospital and said He said he feels horrible. The worst he's ever felt. He does say he wants to die but trying to tell the hospital how low he is and not to let him die as he lays in his hospital bed unable to get out of it.

He’s 75 and before April of this year had never been hospitalized a day in his whole life.

I don’t even know how to face this. How to help. What to do. He has such severe colitis that he hasn’t eaten barely anything more than a bite or 2 a day for the last 3 weeks. He was going to the bathroom with lots of blood almost immediately after ingesting anything. The gastrointestinal dr finally stopped being an asshole and allowed the oncologist to get him started on the Infliximab on 8/11. He has to feel getting blood transfusions because his hemoglobin drops below 8. He’s still in the hospital because it’s the safest for him with his needs and situation.

His scans said that almost all of the cancer is gone but a few spots and all of those are smaller by at least 50%.

He’s beating cancer but diarrhea is going to kill him?

Any insight. Encouragement. Anything. Because him saying that and being this sick has made me nearly incapable of daily functioning. And I feel helpless and selfish for feeling like this.

They finally started my dad on infliximab on 8/11. He’s so weak and hasn’t eaten for like 2 weeks. He is hospitalized for SEVERE colitis that’s made his hemoglobin drop to 8.4. Hoping to get some relief soon even though I know it takes time for it to work. He’s so weak. I’m so scared. He wants the medicine and wants to fight but he’s so weak.

They finally started my dad on infliximab on 8/11. He’s so weak and hasn’t eaten for like 2 weeks. His hospitalized for SEVERE colitis that’s made his hemoglobin drop to 8.4. Hoping to de some relief soon even though I know it takes time for it to work. He’s so weak. I’m so scared. He wants the medicine and wants to fight but he’s so weak.

My dad got the colitis from the yervoy/opdivo regimen. He was hospitalized. The last week and half then moved to a rehab to help build strength. They said he had cdiff. He can’t eat. He spends all day pooping water. He’s getting weak and dehydrated the rehab isn’t getting to help if he’s on the toilet the whole time all night all day. Why won’t they do the infliximab. Why won’t anybody do anything. His scans came back he’s beating the cancer but now he’s going to die of diahrea????????????

My dad got the colitis from the yervoy/opdivo regimen. He was hospitalized. The last week and half then moved to a rehab to help build strength. They said he had cdiff. He can’t eat. He spends all day pooping water. He’s getting weak and dehydrated the rehab isn’t getting to help if he’s on the toilet the whole time all night all day. Why won’t they do the infliximab. Why won’t anybody do anything. His scans came back he’s beating the cancer but now he’s going to die of diahrea????????????

My dad just had great scans last week. They didn’t show colitis inflammation severe. but he’s spent the last week in bed getting weak and not eating. He has diarrhea and they gave lomotil. He’s so weak now he can’t sit up alone. At oncology dr today they said he’s lost 20lbs in 2 weeks. Saw the oncologist today and they didn’t want to admit him. Gave him high dose prescription of steroids. And advised us to give him 4 oz of carnation instant breakfast. And sent us home. And try foods every 2 hours. He won’t eat them. Like he sleeps all day and now can’t get out of bed by himself. I’m scared he’s going to waste away from these side effects. What do I do? Any advice. Please.

You guys. My dad was diagnosed with Stage 4 metastatic melanoma in the brain and lungs with numerous lesions in the brain and numerous nodules in the lungs in April this year. He had 10 sessions of brain radiation. And 3 infusions of the opdivo & Yervoy. They have opted not to do the fourth treatment and will start on the single treatment of Opdivo. He had updated scans this past week. And from April 3 to now everything has shrunk or disappeared.

Brain Lesions
April to July
Changes
Largest left temporal/anterior lesion
3.5 cm to 2.4 cm
31% smaller
Left frontal lesion
2.0 cm to 0.6 cm
About 68% smaller
Right frontal lesion
9 mm to 4 mm
About 56% smaller
Posterior left frontal cystic lesion
1.5 cm same at 1.5 cm
Stable, no measurable enhancement
And No new brain metastases present.

Lungs April → July

April

Multiple metastatic nodules in both lungs
Numerous nodules up to 12 mm
Left upper lung: 10 mm
Right lower lung: 11 mm

July

The majority of pulmonary nodules have resolved.
Only 2 remain.
4 mm left upper lobe nodule remains
2 mm right lower lobe nodule remains

I’m in shock. The results so far are better than I could’ve ever wished for. I wish for continued improvement and hope the best for all of you or your loved ones fighting this terrible disease.

You guys. My dad was diagnosed with Stage 4 metastatic melanoma in the brain and lungs with numerous lesions in the brain and numerous nodules in the lungs. He had 10 sessions of brain radiation. And 3 infusions of the opdivo & Yervoy. They have opted not to do the fourth treatment and will start on the single treatment of Opdivo. He had updated scans this past week. And from April 3 to now everything has shrunk or disappeared.

Brain Lesions
April to July
Changes
Largest left temporal/anterior lesion
3.5 cm to 2.4 cm
31% smaller
Left frontal lesion
2.0 cm to 0.6 cm
About 68% smaller
Right frontal lesion
9 mm to 4 mm
About 56% smaller
Posterior left frontal cystic lesion
1.5 cm same at 1.5 cm
Stable, no measurable enhancement
And No new brain metastases present.

Lungs April → July

April

Multiple metastatic nodules in both lungs
Numerous nodules up to 12 mm
Left upper lung: 10 mm
Right lower lung: 11 mm

July

The majority of pulmonary nodules have resolved.
Only 2 remain.
4 mm left upper lobe nodule remains
2 mm right lower lobe nodule remains

I’m in shock. The results so far are better than I could’ve ever wished for. I wish for continued improvement and hope the best for all of you or your loved ones fighting this terrible disease.

Hi all. My dad was diagnosed with metastatic melanoma in his brain and lungs. He completed 10 sessions of radiation on his brain. He has had 2 of the 4 sessions of immunotherapy Opdivo(nivolumab) and Yervoy(ipilimumab). The Dr. said in the last visit that guardant testing shows his melanoma should be responsive to nivolumab and ipilimumab.
After 2 immunotherapy treatments he has no appetite and sleeps 90% of the day. His latest blood tests were ok by Dr. He has a brain MRI on June 8 to see if those lesions responded and if he needs more radiation. have any of you experienced this? What can I do to help?