r/melahomies

Is it freaky to have an open wound? Mine was a small freckle in the middle of my cheek. I had mohs surgery so I sort of know what it is like. Did anyone have a small SITU, and was it freaky or not that big a deal to have an open wound on face? Thanks for any insight.

I had a WLE this morning for an in situ mole on my mid back. They instructed me to keep my back as straight as possible for the next couple of weeks at least. No bending, lifting, twisting, etc. The only way I’m currently comfortable is sitting in a recliner. Obviously, the incision is bandaged but could I be hurting the incision somehow (preventing it from healing properly) by sitting back in the recliner?

Hi all,

Sadly today I saw the result of my mole and it’s not good.

I’m super shocked and confused and also not entirely sure what it actually means.

It’s a superficial spreading melanoma of a depth of 1.3mm without ulceration.
No micro satellites
No angioinvasion
And no mitoses

pt2a they have written.

I’m so scared 😭especially because I have very strange sensory symptoms lately. I checked ChatGPT and it said I will probably be ok but still a 10% chance of no bueno. 😔

I had a WLE on my calf and a lymph node removal in 2024. The lymph node was fine so no further treatment was required. I go in every three months to get checked, ultrasound and blood tests. I’ve never had a scan. For the last two weeks I’ve been suffering from bouts of shortness of breath and coughing. I’m on vacation with my family right now so I can’t go to the doctor, but I will do so as soon as I get back. While I thought this shortness of breath might be related to a kind of allergy, I just had the very troubling realization that it could be the melanoma coming back in the lungs. How did it feel for you? Has anybody experienced something similar?

Had a shave biopsy last week. I’m 27 Male. Doctor called and sent me the report. I have PT1A. No ulceration, no mitosis, no lymph invasion. 0.4 MM scheduled to see a doctor to do like a procedure to remove extra tissue. My health anxiety has me thinking I’m dying but everything I read is I’m gonna be okay. Any advice?

In March of this year, I found out the very wanted pregnancy I was carrying was nonviable because my baby had acrania (her skull didn't form correctly in utero). I had to endure an induction of labor and five failed attempts at an epidural to deliver her. I was 21 weeks along when she was born/died. Then I was on FMLA for five weeks, during which my husband's job announced major cuts.

After the stress and anxiety of living in Jacksonville post-termination and my job specifically, we decided to relocate to Greenville, SC. Our plan was to live with my MIL (something which she was totally on board with). After undertaking a massive move with two cats, a dog, and a three-year-old, we arrived to be told that we'd "misunderstood" and we were only able to stay with my MIL for a week.

Cue having to scramble to find (and afford) a rental. We did. And on August 1st, I also got the formal melanoma diagnosis. My health insurance coverage doesn't start until Sept. 1st but I've been booked in to see a surgical oncologist on that day.

Meanwhile, I have a partially-erupted wisdom tooth that's wreaking havoc on my jaw. And guess what? You can't book a WLE/SLNB and a wisdom tooth extraction less than six weeks apart because my oral surgeon is very worried about infection and anesthesia issues.

All of this while also enrolling my son in school, navigating a new job, unpacking a new house, and living my life. I feel like screaming and crying and curling up into a ball. The worst thing that happened to me should've been the termination and now its just on a list of the worst things happening. There's a part of my that's bracing for the worst possible news from the WLE/SLNB because this has been a worst possible news year.

I want this to be over. I want it to be November and my teeth are fixed and I have answers about the melanoma. The waiting feels like emotional and physical torture. And I just needed to write it all out because my brain is like a full-time fire alarm right now.

Thank you for reading and thank you to everyone who posts in this community.

Original post here

To;dr headaches and fevers for a week. Ended up having liver enzymes spike, and got on a steroid. Starting to clear up (except night sweats which sucks).

My second neoadjuvant infusion was cancelled. Any positive/negative experiences with having infusions cancelled and how it impacted a surgery plan and outcome?

ETA
- one and done. Very first infusion.
- 3C, in just two axilla lymph nodes

Follow up question: did your aversion to ipi/nivo mean you weren’t able to take any other immunotherapy?

I’m a 31 y/o F and I’ve been stage 3a for the past 8 months and now am unfortunately stage 4- 7.5mm liver spot. I’m struggling to relax or enjoy anything with friends because I’m scared and just want a crystal ball to tell me the future…

Anyone else struggle with this? Or have any advice? I know my spot is small but I’m young and terrified and I want to plan for a future but it’s scary

My interventional radiation doctor called today and canceled my procedure for Monday morning. He said my “spots” (vaginal melanoma - very rare) had changed too much on my most recent pet scan that he didn’t feel it would be successful. Needless to say I have been crying for the last few hours on and off. I did have a gut feeling that it wasn’t going to do me any good. Now I have to get some sleep,
Get over it and figure out what is next.

I’m 28F, based in the UK so this will be specific to the NHS system and wondered if anyone has gone through a similar thing?

I had a 4mm mole excised fully for biopsy last Sunday. It was located on the side of the sole of my foot, dark, grew from 2mm in 2025 so doubled in size, was uneven in colour with slightly irregular borders. I had concerns about acral lentiginous melanoma.

I was told during surgery I won’t get my results until early October when I’ve been booked in for a follow up appointment. I’m being seen under the NHS in the West Midlands so just wondered if a 2 month wait for something like this is normal? It feels like a long time and I have to just sit and wait.

If any UK people have been through something similar and can share their experiences I’d be so grateful ☺️

Hi everyone, I had my first melanoma removed on my leg almost a year ago now. Then my second on my arm, and now a third find on my back - which I go for the surgery on Tuesday.

My first one I was put to sleep and the other I was/will be just given local anaesthesia and it be done in clinic.

The oncologist for the first one talked about genetic testing if I get 3 but at my doctor appointment they didn’t mention it and when I asked they said surgery is the treatment.
I’m going to ask again on Tuesday but I’m just so upset about all of this. I feel like something more needs to be done. This is the third one found in less than a year and I don’t go in the sun unless I’m on vacation once a year or at the beach here or there during the summer.

Im located in northern Ontario so I am driving down to southern Ontario for all these appointments and I am just almost done. I’m only 26 and I have 3 young kids. I seriously can not live like this anymore I’m scared to even go oit side at all.

What can I do? What can I ask the dermatologist on Tuesday? Any other options than surgery or the immunotherapy they won’t let me have??

29F just been diagnosed with a large acral melanoma on the sole of my foot approx 2.5cm by 1cm. Plastic surgeon told me recovery will be “hell” and that I have to be awake for surgery and they will only do it under local?! Has anyone else had an acral melanoma of this size removed?

They are refusing to do a biopsy and just want to cut the whole thing out straightaway then understand next steps. They think it’s hopefully just in situ and hasn’t spread but we don’t know.

Any advice would be great

After successful but difficult ipi/nivo all but one of my lesions are gone.
Plan is now for 5 sessions of radiation.
(Upper left chest)
Has anyone been on this path? If so please share.
Thanks.

I had ldh drawn a week before my first immunotherapy treatment and it was 441 and then I had blood drawn 2 weeks after my first treatment and it was 611, is this normal im super concerned….. im only 23