Well, after stopping prednisone I think i'm coming out of remission

Well, after stopping prednisone I think i'm coming out of remission

I started a thread a few weeks back talking about my prednisone taper coming to an end. However, a couple weeks ago I started noticing abdominal discomfort, which I thought was some sort of gastrointestinal issue. However, I've noticed more right side, discomfort and generalize itching on my body. And this morning, I noticed what looks to be 3 plaques of cutaneous sarcodosis on my right arm, something which I experienced in my initial bout. It turns out that people like me with multi system sarcodosis that require predisone to suppress it face a better than 50% chance of recurrence, starting 2 months to 6 months after finishing prednisone, I'm currently sitting at about 2.5 months. Initially with the abdominal symptoms, I was really worried about colon cancer so glass have full, I don't think it's that. What's frustrating though is that I saw my sarcodosis specialist two weeks ago and my labs were perfect am I pulmonary function test were great. But if my google doctoring is correct, you can have perfectly normal labor function tests that lag behind a sarcoid reactivation.

Just curious if anybody has experienced a similar thing with their sarcoidosis as far as reactivation. Cheers!

u/RoidPile — 10 days ago

Will A 6-11 Bridge Ever Feel Normal?

I'm trying to not get ahead of myself because I just feel like maybe I should have gone for the implant. I had one front tooth pulled, and they said it would take several bone graphs before they could do an implant, so I opted for a bridge. The problem is, both teeth that have old crowns on either side have previous trauma and can't be used as abutments so they extended out to six and eleven. Part of me regrets having those three healthy teeth grinded down, and now I have the bridge, which just feels clunky, and my lower teeth keep hitting the bridge when I chew. I went back for an adjustment, and he took off some material but it is still hitting. The temporary crowns I wore, I think, felt more comfortable and more natural. Do you eventually get used to this thing? It's not sealed in permanently, so I almost wanna back out but i'm already financial in at this point.

u/RoidPile — 17 days ago

Finally off prednisone after 2 years🎉🎉🎉

Prednisone sucks for all the reasons we're aware of and I certainly had the side effects that people talk about specifically weight gain and I had to do a very slow taper, but i've been off now for a week and feel fine. However, it did successfully treat my my very active and symptomatic sarcoidosis and I've been in remission now for a year according to xray and the lack of symptoms. Here's to hoping that it never comes back but who knows🤷‍♂️🤷‍♂️🤷‍♂️

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u/RoidPile — 3 months ago

The took the shopping center I work from and now has it split between three different zones, so depending on where you park at you could be in 1 of 3 zones. So whatever zone you chose from, you stop getting orders from other nearby plazas. It has dropped requests in half. Anyone have any idea what the purpose of this was? So annoyed....

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u/RoidPile — 4 months ago