
Well, after stopping prednisone I think i'm coming out of remission
I started a thread a few weeks back talking about my prednisone taper coming to an end. However, a couple weeks ago I started noticing abdominal discomfort, which I thought was some sort of gastrointestinal issue. However, I've noticed more right side, discomfort and generalize itching on my body. And this morning, I noticed what looks to be 3 plaques of cutaneous sarcodosis on my right arm, something which I experienced in my initial bout. It turns out that people like me with multi system sarcodosis that require predisone to suppress it face a better than 50% chance of recurrence, starting 2 months to 6 months after finishing prednisone, I'm currently sitting at about 2.5 months. Initially with the abdominal symptoms, I was really worried about colon cancer so glass have full, I don't think it's that. What's frustrating though is that I saw my sarcodosis specialist two weeks ago and my labs were perfect am I pulmonary function test were great. But if my google doctoring is correct, you can have perfectly normal labor function tests that lag behind a sarcoid reactivation.
Just curious if anybody has experienced a similar thing with their sarcoidosis as far as reactivation. Cheers!