Normal Biopsy Results and feeling lost
Hi Everyone, first I wanna say thank you to this community. You all have helped me so much with the information shared here. I’ve been lurking on this thread for a long time, but now I would like to get some feedback on my results.
(37M) I’ve been dealing with tingling/buzzing sensations in my feet and hands since last August, including a myriad of other symptoms (tinnitus, dizziness, GI issues, itchiness, muscle twitching). My symptoms however do not get worse at night.
My neurologist, who I legitimately think is a good person, says that I should be hopeful that I have a negative result, and that this could be linked to anxiety. My problem with the whole anxiety thing, is that I’ve had this chronically since September, and although I do get anxious at times, I don’t know how it could be causing the myriad of symptoms that come and go. He did offer to redo the test in a year’s time, and that’s what’s really got me down.
I sometimes get burning pain in my feet, especially during times of high stress at work, but it does subside, and I’m not yet on any sort of pain medication, for which I am very grateful. Concerned of course for the future.
I did ask if he could run the Wash. U panel of antibodies, he said he would consider it however without a positive biopsy there is no way to get insurance approval for any treatment (such as IVIG). In his mind, there’s no point? I’ve done every other test and MRI under the sun, and only came back with a low positive ANA which then was negative 3 months later. The search for answers continues but is exhausting.
One positive note is that the test came back negative for amyloidosis (that diagnosis seems much more dire).
I am waiting for a second opinion with a Neuro at MGH Boston, but I won’t see them until July.
Any thoughts or insight would be super helpful here, and I am very appreciative of you all.