u/ScarredLung

Managing treatments/coping

Ok so first time posting. I'm 33m with ∆f508 and another gene I can't quite remember. FEVs are around 34% on a good day. I have had a hard time being compliant with meds and have gotten into bad habits such as alcohol and weed. I have bipolar and depression and anxiety. I've been to so many therapists and none have been able to really grasp the severity of cf in general let alone everything else I'm dealing with. I guess my question is has there been any good coping mechanisms that are healthy that you have tried to get away from the stressful life that is cf? I know it sounds like I'm running away from the problems it causes but I'm sure I'm not the only one that needs that "get away from it" feeling. I'm a nerd at heart so I love video games which help but at the same time I guess I'm struggling with my own mortality. Generally I've been fairly healthy throughout my life given the circumstances but I'm also just trying to reach out to people who are similar to my own issues.

reddit.com
u/ScarredLung — 7 days ago