It took 3 years to diagnose properly (30F)
Hello everyone! I’ll keep this as short as possible. I’ve been sick since I can remember. I’ve always had significant chronic stomach/bowel issues, with my most plaguing symptom being daily nausea. It took 20 years for a doctor to stop saying it was anxiety.
4 years ago, I got sober (alcoholic). 3 years ago, I was diagnosed with ADHD. I pushed and pushed for my dr to assess me for many things, because I am chronically unwell. Turns out, I have hypermobile Ehlers Danlos Syndrome, cyclic vomiting syndrome, dysautonomia (POTS), and aura migraines. I know that hEDS & POTS commonly cause nausea, but I also have chronic gastritis & GERD. I waited 3 months to see GI, but my gastritis was gone by then. So I waited another year to have another appt with GI & finally got a colonoscopy/endoscopy. Just a few weeks ago, I had my follow up 2 months after that procedure.
I was finally diagnosed with IBS+BAM, mild gastroparesis, and SIBO. I’ve been on colestipol for 2 weeks and saying it has changed my life is an understatement. I was deeply suffering with nausea, intense pain, intolerance to most foods, severe diarrhea, malabsorption, inability to digest fiber, and regurgitation. Now, all that’s gone. I’m so grateful. It’s been a LONG 3 years, but I’m here to say - never stop advocating for yourself!!