r/bileacidmalabsorption

New to this subbreddit but a year and a half with Pi-IBS and BAM.

Did a longer ra t in r/ibs.

I'm genuinely at the brink. Neither my mind but body can take much more.

My gastro aporentky never even prescribed me with bile acid sequants, now he has aldo ghosted me as is unreachable.

My Pi-IBS is moderately healing, my BAM however, nope, its gotten much much worse. Now every single bm is acid, my hyper sensitivity is dialed way up, and I cant barely managed to leave my bed, let alone make it into colledge. Not that, I have a medical letter of exemption or anything (cos again, no gastro all of a sudden).

Iev mad eye it this far, but I acnt take much more of surviving and not living.

Oh and a fun addition, due to the severity of mine, my pain scale is usually 8-9/10. Yay.

My doctor gave me colesevelam to try out.

As someone with emetophobia new meds scare me. Then there this 4 hour before and after window with other meds. Some say take two in the morning and two at night. Others say some before every meal.

I am going to start with 1 tablet and see how it goes and work my way up to more. I’m already low fat eating. And of course this morning it’s potty time and I have to leave the house in an hour. Waiting for bentyl to kick in.

Any insight into starting this medication?

Dear community any tips please how to eat more nutritious meals? Lost 10kg! Have no energy , no stamina to go walks or exercises.

I had my gallbladder out in my 20s. Developed BAM for a year but improved. Then it returned after antibiotics two years ago. Just realized that several months ago. I’m not on a binder right now. Having a colonscopy first in December.

It just feels like it’s getting worse. My pattern used to be wake up and morning loose stool bristol 5-6 many times, maybe 4-8 times but always done around early to mid-afternoon until the next day.

For the past 5 days what’s happening is I’ll go several times in the morning/early afternoon. Stops. But proceeds after dinner several times. I never was getting it after dinner until the past week. This morning, I only went three times and actually two of them were fairly formed, the third one then started to get loose, sticky type of Bristol 6. That was around 11.30 AM. Then I had dinner and at 7:30 PM and have gone several times now. It’s depressing now going at night after dinner.

Anyone had a change of pattern before treated?

Hi all,

I believe I have BAM, as so many of the symptoms match my experience, and I am so so tired of my stomach problems being written off as just a neurological thing (anxiety definitely has AN effect especially with travelling but my stomach affects me daily) and I get side effects from Imodium. I am fortunately able to access private healthcare in the UK and I would like to know if anyone has recommendations for doctors here that will be open to hearing me out about BAM, as I know it's very underdiagnosed. Please let me know about clinics close to London or Brighton. Thank you!

Side question, but does anyone else get intense nausea and vomiting fits after taking Imodium, and stomach cramps that don't stop until you are able to sleep them off? I get this on occasion after taking Imodium, usually if I take more than 1 pill, however it has happened to me with one.

I am craving for nuts butters , but terrified it will cause
up , anybody eating these, say maybe teaspoon or half?