u/Severely_Mistaken

Hey guys im 26 FTM Trans. I was diagnosed with SLE in Dec 2022. Ive been taking Plaquenil since then.

When I flare up I start to get little bumps that turn into massive blisters usually on my hands and arms and thighs. But this time they've spread almost entirely full body.

I have an undiagnosed skin picking disorder. I used to pick at my skin as a kid with Keratosis. Anything that sticks out of my otherwise smoothish skin bothers me. Moles, skin tags, blisters, acne, all of it.

Especially stuff like Acne and Blisters that are intended to drain pus or liquid from if they get too big or irritating. These things sometime appear overnight and they are painful and itchy.

Do you guys also find yourself picking at these bumps and blisters? I tend to do it absentmindedly sometimes, other times I find myself checking my body to find acne before it gets huge or inflamed and painful.

But I cant do anything in small quantities. Ill end up ripping open every bump little bump on my skin repeatedly until it heals flat, stops producing Puss or Blood etc.

Ill clean and bandage them of course. If they need neosporin, or bandaids, or to be dried out with a baking soda bath.

Does anyone have any tips or advice on keeping my attention off of the abnormal bumps on my body? Its becoming distracting and excessive in my life and its starting to affect my self esteem a bit on my looks because it makes me look like im diseased somedays.

Id appreciate any tips or methods to stop this behavior/action entirely or even just make it more manageable. Also any remedies for little bodily blisters would be greatly appreciated!!

Diagnosed with SLE at 22, im 26 now FTM Trans and taking Plaquenil.

Does anyone else have specific weird or odd triggers that affect you only when flaring up? Like mine since I developed Lupus has been tomato based products. Pasta Sauce, Salsa, Ketchup and BBQ Sauces, Pizza Sauce, etc.

If I eat it I get ulcers in my mouth and my tongue and mouth burn and tingles. If it gets on my skin I will immediately begin to develope tiny blisters on my skin(Mainly hands and Face)

But if im not flaring up i can handle it with no issue?? Its so weird to me. Anyone else deal with obscure or weird symptoms when flaring up?