Just highlighting this kind soul’s very specific and helpful advice/protocol for iron infusions incase anyone is considering them (like me).
Of note: I keep hearing “Venofer” so that is a name worth remembering I think… :)
Wishing you/us all healing and relief soon ❤️🩹
Hi everyone, I hope you’re all doing ok out there :)
In your opinion, when you’ve been offered iron infusions—have they helped more, or have you had bad experiences?
There are so many horror stories on here that are making me pretty scared to try them, but I also do not know what else I can do bc I cannot take anything that slows motility—like at all, bc slowed motility is the reason I can’t eat the iron-rich foods in the first place…
I have read about gentle versions, splitting the dose, supplementing phosphorus…. But I do have MCAS and dysautonomia etc so I am just so unsure.
Currently, I get like maybe:
~1400 calories on an average day, closer to maybe ~1800 on a really good day (maybe more if I eat even more oil than I already do)
-and sometimes I don’t even know if I get 600.
I don’t count/track and never really have, so I could not tell you if I ate 1200 before covid or 3000, but since I’ve started to keep track, I’m told (again by various AI) that I’m consistently too low, and apparently need a minimum of like 1200 just to function…
My BMI (which I know is a questionable metric but just to get a rough idea) is supposedly ~17.8 (~118 lb), which is not concerningly low (and in all honesty I do not think it’s that much different than I have been for a lot of/most my life, I just used to have a lot more muscle/different composition; and yes, I still get my period, even now, but I was able to eat normally back then/didn’t really think about it.
—So, even if it’s a similar size, it’s a way different body…)
So, my question is: from your own experience (especially if you are similar to me), would you say yes, you would recommended iron infusions, or no, do not recommend?
Also, (if you know), is my food intake/volume really that bad? Or is it maybe just a result of the body wanting to restrict more for purposes such as autophagy?
Also I have:
- precision fermented lactoferrin on its way to me which I’m really hopeful for.
- Copper is also on my radar for supplementing but I want to get accurate blood work first.
- upcoming doctor’s appts to address the dysmotility issues.
Anyone similar/have any recommendations about iron or anything else?
TLDR; I cannot consume enough food/iron due to delayed motility, so am considering temporary iron infusions, and would like to know if based on your experience it helped more or hurt more?
TYIA for your help and time!
Hi everyone, I hope you’re all doing ok out there :)
In your opinion, when you’ve been offered iron infusions—have they helped more, or have you had bad experiences?
There are so many horror stories on here that are making me pretty scared to try them, but I also do not know what else I can do bc I cannot take anything that slows motility—like at all, bc slowed motility is the reason I can’t eat the iron-rich foods in the first place…
I have read about gentle versions, splitting the dose, supplementing phosphorus…. But I do have MCAS and dysautonomia etc so I am just so unsure.
Currently, I get like maybe:
~1400 calories on an average day, closer to maybe ~1800 (maybe more if I eat a ton of oil) on a really good day
-and sometimes I don’t even know if I get 600.
I don’t count/track and never really have, so I could not tell you if I ate 1200 before covid or 3000, but since I’ve started to keep track, I’m told (again by various AI) that I’m consistently too low, and apparently need a minimum of like 1200 just to function…
My BMI (which I know is a questionable metric but just to get a rough idea) is supposedly ~17.8 (~118 lb), which is not concerningly low (and in all honesty this is not that much different than I have been for a lot of/most my life, I just used to have a lot more muscle/different composition; and yes, I still get my period, even now, but I was able to eat normally back then/didn’t really think about it. —So, even if it’s a similar size, it’s a way different body…)
So, my question is: from your own experience (especially if you are similar to me), would you say yes, you would recommended iron infusions, or no, do not recommend?
Also, (if you know), is my food intake/volume really that bad? Or is it maybe just a result of the body wanting to restrict more for purposes such as autophagy?
Also I have precision fermented lactoferrin on its way to me which I’m really hopeful for. Copper is also on my radar for supplementing but I want to get accurate blood work first.
And I have some upcoming doctor’s appts to address the dysmotility issues.
Anyone similar/have any recommendations about iron or anything else?
TLDR; I cannot consume enough food/iron due to delayed motility, so am considering temporary iron infusions, and would like to know if based on your experience it helped more or hurt more?
TYIA for your help and time 🫶