u/SilentWatercress744

Just one of those questions I have for the universe.

I had a hysterectomy 1/28/26 and developed problems sitting and walking. Standing was an issue before surgery, but I had no health issues other than suspected adenomyosis (130 lb and fit). Visible veins developed after surgery, in my legs and thighs. Now IVUS and vein embolization is being suggested as a correction.

I am scared about recovering use of my legs. Right now I have throbbing pain with walking or standing, even though I was fit a year ago. Hysterectomy seems to have made me much worse. Reading on this forum, I have gotten scared about embolization. Doctor says it is unlikely I have MTS or Nutcracker, based on venogram.

Is there hope?

I'm approaching five months postop, and I still have debilitating pain with every bowel movement that isn't basically semi liquid. I have been in pelvic PT my whole recovery.

I'm wondering if others who had issues this far out had them resolve later in recovery; looking for hope.

Anyone have a good experience in the San Francisco Bay Area who was knowledgable about pelvic vascular issues? I had a no so great experience with a vascular surgeon who dismissed my problems as hormones (I'm having problems standing, and can't do anything without compression tights, and have rapidly developing varicose veins). Has anyone had skilled work done (scans and or procedures) with anyone in the bay area? Fine to message me privately if you don't want to post names on reddit. Thanks!

Anyone have a good experience in the San Francisco Bay Area? I had a no so great experience with a vascular surgeon who dismissed my problems as hormones (I'm having problems standing, and can't do anything without compression tights, and have rapidly developing varicose veins). Has anyone had skilled work done (scans and or procedures) with anyone in the bay area? Fine to message me privately if you don't want to post names on reddit. Thanks!

I had a hysterectomy with laprocscopy for endo 4 months ago, and prior to the surgery a transvaginal doppler ultrasound. After the surgery I had a normal CT scan at the ER (not for a venous issue, for a potential surgical complication). Could I still have PCS, or are problems I am having now probably another vascular issue?

Prior to hysterectomy, I had pelvic congestion sx including heavy, swollen painful legs. No visible varicose veins, but I needed to wear compression tights all the time or I had leg pain (in addition to pelvic pain diagnosed as adenomyosis). Since the surgery, I still have these leg sx, and have been developing visible painful veins -- mostly not fully varicose just newly visible and painful -- all over my legs and also at the joint of my leg and groin. At times the throbbing pain is so bad I can't do anything for a full day, when they are throbbing veins are more visible.

I saw a vascular surgeon before hysterectomy who checked my primary leg veins only, below groin, and said I didn't have CVI, and he thought it was just hormonal issues.

Is it still possible I have PCS, or would that have been found by ultrasound/ct scan, and should I be investigating another vascular issue? The vascular surgeon seemed to think the transvaginal ultrasound, and regular CT scan (not venogram) would have revealed any PCS.

My leg pain and varicosing veins have been developing rapidly, and I'm trying to figure out what referral I should even be getting. Thank you for any ideas!

Just wanted to share a heads up I wish I had had. Apparently it's possible and not that uncommon to have a reaction to replens, which includes serious levels of swelling, the feeling of having a UTI, and other unpleasantness. My vagina basically swelled shut. I was told it's either the parabens or the glycerin? I also had crazy cramping and pain, and it feels like it interacted with my still healing post-op tissue.

I didn't know it was possible it was causing the symptoms. I know some people get great relief from it, so I don't want to scare anyone, but if you are in the early phases of healing, you might want to test a little of it first. I feel like if this had happened to me early in recovery I couldn't have withstood the agony.