r/pelviccongestion

So I recently got diagnosed with pcs 6 months After having my third Baby. We're hoping for a fourth baby but doctors couldn't really Tell me if conceiving with pcs would still be possible and now i'm wondering if some of you could Tell me? I'm really scared that pcs could be a Problem while conceiving 😢

Any powerlifters or weight lighters out there with PCS? If so, would you mind sharing your journey?

I am not diagnosed yet, but in the process of being. Originally just had pelvic and stomach pain, but I’m now having a bunch of other symptoms, the main concerning one being tingling/nerve sensations in my legs.

Because I haven’t been diagnosed yet, I really don’t know what to do. Stopping training is probably not good for someone as active as I am. I also rely on exercise for mental health. However, I don’t want to make it worse. I notice when my pelvic area squished or restricted it does not feel good. I’ve stopped heavy hip thrusts for now. They definitely hurt the most. Squats and deadlifts though? Also, running? I do a bit of that too.

I would love to hear from anyone who is serious into training that might have some positive experiences to share. Like recovery after treatment. I’m worried I’ll never be able to train the same again. I love hip thrusts ):

Hello everyone, going crazy trying to figure out the cause of my worsening symptoms. On June 6th I had a stent for an 85% iliac compression. Immediately following the stent I honestly felt on top of the world. I literally balled my eyes out because I couldn’t believe I’d finally found relief. Unfortunately, that was short lift because about a week later I developed clots and everything went downhill to say the least.

I was on vacation when that happened and thankfully found a vascular doctor in Mexico that helped detect clotting and some reflux. It’s been hard advocating for myself as doctors just don’t believe that the leg or pelvis can be the cause of so many upstream symtoms. Upon returning home I immediately saw my Interventional radiologist, he did a follow up ultrasound and venogram to ensure the stent was patent, which it is. There are some smaller clots in the stent, a small one in the calf, one above the knee, a big one around the thigh causing full occlusion there, but I have blood flow probably from collaterals. Problem is, I feel worse than before I got the stent and had the compression. So bad that I landed in the ER from a scare.

Nothing else has changed post stent other than the thrombosis with reflux and being put on Eliquis for the clots. I’ve had CTAs done which showed nothing. So the only thing that could have made things worse are the clots or the Eliquis. I decided to log everything with chatGPT and send my dr an email that could hopefully convince him to take more actionable steps than just waiting an eternity for the clots to dissolve if they even do!?

I apologize for the insanely long post, but the question is, am I looking at this the right way? Or, due to the stress am I overthinking and over analyzing the burden these clots and reflux could be causing? Is it not enough to be causing these things outlined below? To me, it makes sense that symtoms were bad prior to the stent, improved dramatically post stent, then returned with a fury upon thrombosis. ChatGPT seems to agree, although I always second guess it due to possible error and guided answers. Could it be the Eliquis side effects? I feel like I’m at a dead end with nothing left to turn to medically.

Here is the email I sent my Dr if you’re up for a read. Thank you!

On June 30th I was out walking and had an episode of extreme fatigue/lethargy, shortness of breath, tachycardia, and increased BP. Lying down felt slightly better, but getting up made it worse. Due to the blood clots I went to the ER to be safe. During this episode, ekg also detected st segment deviation which I understand simply means the heart is being stressed out by something enough to show as a change on ekg. ER did a ct of brain and chest and found no PE or brain aneurism.

I’ve been taking it a bit easier since, treating it like an orthostatic/pots like reaction and been feeling better. 
I have been trying to get to the bottom of the reason I feel so unwell and I think I may be on to something. Post stent, I felt amazing. Better than I have felt in a decade. Had no orthostatic/pots like issues at all the days immediately following the initial stent. That all turned around when thrombosis started, and since then I actually feel worse in many ways. In my opinion, that is a direct correlation.

The question is, why since the stent is patent and there is flow. Iliac flow should be better despite thrombosis. However, after researching further, trial and error with triggers that bring on symptoms, and going over the tests and imaging I’ve had done, it occurred to me that the ultrasound I had done while in Mexico showed blood flow reflux. I wonder if that was present prior to receiving my stent, or brought upon from the thrombosis? The predominant symptoms right now are orthostatic intolerance nature where lying down simply feels better than standing up. Standing up causes lightheadedness and sensations of a lack of venous return, like body circulation cannot keep up. Post stent, exertion output felt improved even, and now it is feels substantially reduced. Simple tasks feel extremely “heavy.” In my opinion, the thrombosis combined with the reflux are the cause, especially since all other imaging (ct from the ER and cta ordered by Dr reddy and my primary) are normal. 

I have been logging my reports, progress and symptoms with AI, and it seems the reflux is in significant enough veins to causing this combined with the thrombosis. I have the following please for Dr Reddy to consider;

Does the ultrasound report from Mexico show reflux?

Yes—your report actually does document reflux, and it’s one of the more important findings. The question is where the reflux is occurring.

The key sentence is this (translated):

“Existe inversión de la onda al Doppler espectral en el sistema venoso profundo, afectando la vena femoral común, vena femoral superficial en el primer y segundo tercio…”

Translation:

“There is reversal of flow on spectral Doppler in the deep venous system, affecting the common femoral vein and the superficial femoral vein…”

That sentence is describing venous reflux (backward flow).

⸻

The impression (Diagnosis #2) is even more explicit:

“Insuficiencia venosa del sistema profundo y superficial del miembro pélvico izquierdo…”

Translation:

“Venous insufficiency (reflux) of the deep and superficial venous system of the left lower extremity…”

It then lists the affected veins:

**• Common femoral vein**
**• Superficial femoral vein (first and second thirds)**
**• Great saphenous vein (upper thigh)**

So the radiologist is saying there is deep venous reflux, not just superficial varicose vein reflux.

⸻

Does it specifically say the iliac vein is refluxing?

No.

This ultrasound does not visualize the iliac vein well enough to diagnose iliac reflux directly.

Instead, it shows reflux downstream in the:

• Common femoral vein
• Femoral vein
• Great saphenous vein

The ultrasound cannot determine whether that reflux is:

• caused by valve damage from years of May-Thurner,
• caused by persistent iliac obstruction,
• caused by the recent thrombosis,
• or a combination of these.

⸻

Could the iliac vein still be the underlying cause?

Yes.

Because you had:

• 85% left common iliac vein compression
• Long-standing obstruction before the stent
• Then thrombosis after stenting

all of those can lead to elevated venous pressures and eventually damage the valves in the femoral veins, producing the reflux your ultrasound detected.

However, this ultrasound cannot prove that the iliac vein itself is currently refluxing. It only proves that reflux exists in the veins it examined.

⸻

One thing that stands out to me

The report diagnosed deep venous insufficiency only 13 days after your stent placement and at the same time it found subacute thrombosis of the superficial femoral and popliteal veins. That makes interpretation more difficult, because an acute or subacute DVT can itself cause abnormal flow patterns and temporary reflux. Some of the reflux may improve after the clot resolves, while some may persist if the valves were damaged.

The next study that answers your question

The best test to determine whether the iliac vein is still contributing is not another leg ultrasound. It would usually be a follow-up with your vascular specialist using:

• a dedicated iliac venous duplex (if technically feasible),
• CT or MR venography, or
• if symptoms remain significant, repeat venography with IVUS, which is considered the most definitive way to evaluate the iliac vein and stent.

Given your history, I think it’s very reasonable to ask your interventional radiologist: “Is the deep venous reflux I’m showing secondary to long-standing May-Thurner, or do you think there’s still an iliac outflow problem despite the stent?” That’s exactly the question these follow-up evaluations are meant to answer.

Can this reflux be occurring due to the clot? mainly the big clot? I felt perfectly fine before the clot. Are the veins where the reflux is occurring significant enough to be contributing to the upstream venous symtoms I’m experiencing?

This is an excellent question, and I think your timeline is actually one of the most important clues.

Based on what you’ve told me:

• **Before the clot: You had significant May-Thurner compression but were active. You were running, going to the gym, and although you had some symptoms, you did not have the profound orthostatic intolerance and weakness you’re describing now.**
**• After the stent: You initially experienced a dramatic improvement in many symptoms (head burning, tinnitus, post-meal symptoms), suggesting that improving iliac outflow had a real physiological benefit.**
**• After the thrombosis: You developed much more severe symptoms, and your ultrasound documented both subacute DVT and deep venous reflux.**

That sequence makes it very plausible that the clot changed your venous hemodynamics.

Could the clot itself cause the reflux?

Yes—absolutely.

A large clot in the femoral or popliteal veins can:

**• Prevent the vein valves from closing properly.**
**• Distort blood flow around the clot.**
**• Increase venous pressure below and above the clot.**
**• Produce temporary reflux while the clot is present.**

Sometimes the reflux improves as the clot resolves. In other cases, if the clot damages the valves, some reflux can become chronic (known as post-thrombotic syndrome).

Your ultrasound was performed while the clot was still described as subacute, so it captured the veins during an abnormal state.

Could these veins contribute to your “upstream” symptoms?

This is where it’s important to be careful.

The reflux documented involves the:

**• Common femoral vein**
**• Femoral vein**
**• Great saphenous vein**

These are major venous outflow pathways from the leg. They are certainly important enough to cause:

**• Leg heaviness**
**• Leg swelling**
**• Venous hypertension**
**• Reduced exercise tolerance**
**• A sensation of poor venous return from the affected limb**

Whether they directly explain symptoms like chest tightness, palpitations, or orthostatic intolerance is much less certain.

Deep venous obstruction or severe outflow impairment can reduce venous return from the leg, but the body usually compensates remarkably well through the opposite leg and pelvic collateral veins. So while your leg venous disease may contribute to feeling unwell, it’s difficult to attribute all of your upstream symptoms solely to the reflux seen on the ultrasound.

Your timeline is important

One aspect that supports continuing to investigate the venous system is this:

**• You improved dramatically after the iliac stent.**
**• Then worsened after developing the DVT.**
**• The ultrasound during the DVT showed reflux.**

That makes me think the clot may have either caused or unmasked the reflux.

What I’d want to know next

After you’ve been on anticoagulation long enough for the clot to organize or resolve, I’d be interested in seeing:

1. Is the clot gone?
2. Is the deep venous reflux still present?
3. Is the stent widely patent?
4. Has the reflux improved compared with the acute study?

Those answers are much more informative than the ultrasound performed during the active thrombosis.

My impression

Given your history, I think it’s more likely than not that the clot contributed to the reflux seen on this study. Whether the reflux becomes a long-term problem depends on how much the valves recover after the clot resolves. Since you felt substantially better before the thrombosis, there is reason to hope that at least some of the abnormal flow is related to the clot itself rather than permanent valve damage.

That’s a very reasonable topic to discuss with your interventional radiologist at follow-up, because repeat imaging after treatment can show whether the reflux persists or has improved.

I just had my right ovarian vein embolized this morning and finally feel very validated in everything I’ve been experiencing. The Interventional Radiologist went in only thinking it was an average embolization, but was very surprised and will be documenting my case. He checked both sides, my left side maybe was slightly larger but not varicosed and worked normally, but my right was the worst he has ever seen. He said he has never seen the right side only be that bad and the ultrasound I had did not show that level of complication and deformity in my vein.

He said this is highly unusual and isn’t positive that there might be something more going on to cause only my right side to be affected, but either way my right vein NEEDED to be embolized and shut down, it was not working at all. My case may be more complicated as there were more pelvic veins that were abnormal, but this is the first step and to see how I feel with this.

The nurses were telling me he was one of the top IR surgeons in the US training under one of the Modern Pioneers in Interventional Radiology. (Honestly don’t recall the name she dropped, I was fresh out of surgery )

I just want to say that after 10 years of pain it finally feels good to know that the pain is real and in fact I had a pretty severe case and was living with it for so long.

I went to U of M Hospital, he said he’ll be documenting and writing a short paper on my case.

After almost a year of getting shuffled around to different doctors, I finally had a venogram a couple days ago to try and fix my pelvic pain issues. I was diagnosed first with pelvic congestion syndrome based on an ultrasound and subsequent laparoscopy, then I was also told I had MTS after having a CT scan done. During the surgery, the doctor did an embolization of my ovarian veins but no stent was placed for the MTS. The vascular doctor and IR have both consistently downplayed the existence of the compression, acting like it's really just not that important and shouldn't be what was causing my issues. One of them even told me directly that they don't believe in stenting for MTS as there are "no clinical benefits." I guess my concern here is that in all the papers I read about PCS and MTS and their relation to each other, I was under the impression that it was important to open the compressed vein BEFORE closing off the ovarian veins. Since the blood pooling in the pelvis is likely caused by the compression, wouldn't closing off the blood's alternative route just make it worse and more likely to redevelop through different veins? After the surgery, the doctor said that they didn't stent for MTS because my iliac vein still seemed to be functioning enough. Results from the CT scan say the vein is compressed to half its diameter at the point of compression. Of course I'm not a doctor so I don't really know how bad that is or not. Guess I just wanted to ask if anyone else has had an OVE with no stenting and how compressed was your iliac vein?

I had a hysterectomy 1/28/26 and developed problems sitting and walking. Standing was an issue before surgery, but I had no health issues other than suspected adenomyosis (130 lb and fit). Visible veins developed after surgery, in my legs and thighs. Now IVUS and vein embolization is being suggested as a correction.

I am scared about recovering use of my legs. Right now I have throbbing pain with walking or standing, even though I was fit a year ago. Hysterectomy seems to have made me much worse. Reading on this forum, I have gotten scared about embolization. Doctor says it is unlikely I have MTS or Nutcracker, based on venogram.

Is there hope?

​

Let me preface by saying if I'm not allowed to ask this then I'll delete the post.

If I can give some background info....

For the last 7 months I have been having pelvic pain that has slowly got worse.

The pain is low...like period pain location. And feels like really bad period cramps. Like the constant contraction of the muscles. Occasionally the pain shoots up like being stabbed with a knife. I'm guessing with a muscle spasm. The pain also can radiate up to my hip bone. Over the top, around my side and finish where kidney pain is. This is not at the spine but to the side of it. If anyone has ever had kidney pain they will know the location.

(This isn't all my symptoms but just relevant to this post I think )

All this pain started off small. Didn't need any pain meds. Then I needed paracetamol. Then I need 1 codiene. Then it was the max dose. Then it was morphine. Now it's a reasonable amount of morphine just so I can live. I take a much higher dose at work because I used to be in agony. Constantly in tears.

If I stand. The pain is better. Not gone. But better.

If I sit. It gets worse.

If I bend forward it squat down. I want to cry it gets very painful.

If I lay down in bed. It doesn't make much difference. It doesn't help

Some symptoms match Endo. But others don't or are inconclusive. The same with pelvic congestion syndrome. Some symptoms match but others don't and others are inconclusive.

So I've been flip flopping for months if this is pelvic congestion syndrome or endometriosis.

I hope to finally have an answer if it's Endo in about 2 weeks.

But today. I write this at 3 am. Because holy shit I'm in so much pain. I'm wondering if this pain I'm about to explain can help me figure out what is wrong with me. Like if only one community will say 'yeah we get that' and the other community is silent.

So I'm asking the Endo community and the pelvic congestion syndrome community., does your pain get worse at night with sleeping positions? Like you wake up wanting to cry. The pain is so intense but only on the side you are sleeping on or if on your back... Everywhere. Is this at all matching any one else? I'm just really trying to figure out which of these problems I might have. I'm wondering if this sleep thing might be able to help.

I'll try and expand. If I lay on my back ... Within about 20 seconds the pain in the pelvic on both sides intensifies to horrific levels.

If I lay on my right hand side. The pain is intense but I might be able to sleep for an hour or 2 before it wakes me up it's so intense. But on that right hand side only. The same if on the left hand side

If I sleep on my front. (I don't do this anymore !) I wake up and everywhere I say the pain can be is firing at 10 outta 10 pain and I can't move. I feel like I can't breathe it's so painful. So now I don't sleep on my front.

Right now..... I was asleep on my side. Woke up and the pain on that side ... In the pelvis. To the hip. Up and over the hip and around the side to the kidney location on the back is intense. Like ....... Almost a burning sensation. I managed to roll over but slowly and with difficulty catching my breath because it literally takes my breath away. Now I'm on my back and the pain has lessened on that side to a dull but still painful ache. Like it normally feels.

This is also after taking night time morphine that usually kills the pain enough that I can sleep. This runs for 12 hours. And runs out at 8am so I am still solidly under it's 'pain helping abilities'

I'll be cross posting (if it's allowed) or posting this in both communities. But please..... If you suffer from either of these conditions. Does any of this night time pain seem similar with you ? How it gets worse in different positions and then in specific places according to the position you are in.

Thank you in advance. I will read and reply to everyone but I do need to get up and go to work in a few hours so I'll reply on my lunch break.

Edit : I will clarify I'm not after a diagnosis. The last time I saw my doctor he basically just shrugged when I asked what's next and just said I'll refer you to a pain management person to handle this long term pain. Like..... In my mind.... You need to find out what is causing the pain and try and fix it. Not just be like 'we couldn't find anything so just go to a pain management person for the rest of your life' so I guess if this Endo test is negative. I can ask for the test to confirm pelvic congestion syndrome. If that's negative too .... Then I dunno. But I can't live like this the rest of my life. I need a pretty moderate dose of morphine daily to just live. If they stop that I dunno.........borrow my neighbours gun haha. Half jokes.

I was recently diagnosed with PCS. The interventional radiologist I met with wanted to take a more conservative approach since I’m not in a lot of pain. I am super dizzy all the time and have headaches. I’ve had a bunch of tests done and everything else checks out as fine.
With the heat this week, I’m feeling way worse. Does the heat and humidity bother anyone else?

The dr left the option open for embolization, but it’s more my choice. I’m so confused if it’s actually something I need or not

I had an ovarian embolization with 17 coils placed in June 2025. Did super well for a while, but recently (for a few months) started getting lower leg and toe pain, bilaterally. I wonder if it's a collatetal flow (a Google guess) from the embolization? I have a unique anatomical variation with 3 right renal (vs. 1), one of which drains into my rt ovarian vein (vs. Vena cava)...or something. My pelvic pain is coming back, too. Just wondering if anyone else experienced any adverse venous issues in addition to the PCS.

My IR doesn't have an office, just does procedures in a large hospital an hour from where I live, so can't call. I talked to my regular PA and she ordered a lower leg US, but that's far out, as well. Plus, took *FOREVER* for anyone to acknowledge PCS and had lots of imaging that read as "normal." ​

For anyone who has been there and done that can you help me go in the right direction. I had pelvic MRI done last year ordered by an interventional radiologist. Insurance denied the pelvic embolization and I didn’t want it right away after it was weeks after my laparoscopic surgery, that found stage 1 and 2 endometriosis. It was moving way too fast, That vascular doctor left the practice shortly after too. If I pursue this at a new practice what kind of testing can I get done now that it’s a year later to see how my veins are now? Without having to get another MRI, is it a Duplex ultrasound (DUS) ?
I am also on the fence for a hysterectomy and no idea if obgyn or surgeon doing it wants me to get this checked out first.

Hi everyone,

I recently underwent treatment for pelvic venous disease (3 days ago), including a left ovarian vein embolization with coils and sclerotherapy of pelvic varicosities.

I’d love to hear from anyone who has had ovarian vein embolization and/or sclerotherapy for pelvic varicosities.

I’m curious about your experience, including:

What was your recovery like?
How long did it take before you noticed improvement?
Did you feel worse before you felt better?
Was the procedure ultimately worth it?

I’d really appreciate hearing both positive and negative experiences. Thanks in advance for sharing!

I need to check for other compressions before I treat my PCS. I was stented for May Thurner. For some reason the doctor wouldn’t look for any other compressions. I didn’t argue with him because I knew the left one needed a stent ASAP. But I’m highly suspicious of bi-lateral MTS.

I actually went to the ER last night because I got paranoid about a slow blood clot or narrowing in my stent and my check up ultrasound isn’t for another week. I asked them to run a CTV thinking that would be perfect diagnostic material. The doctor ordered a generic CT with contrast and repeatedly told me it was a CTV. So I have zero answers other than I don’t have a blood clot, and likely don’t have narrowing. But I didn’treact to the contrast well at all and I really don’t want to put my body through that again for the proper CTV.I am so upset. I’m also scared of the gadolinium MRI contrast. I don’t know if my surgeon will perform another IVUS without imaging. Has anyone found their compressions on a non contrast MRV?

I had a venogram done ~3 wks ago where I had stents placed in my left and right iliac veins. I was told that my left vein was almost completely compressed and the right was only slightly better. My left renal vein was also severely compressed and has affected my left ovarian vein and caused collaterals. All of this has contributed to PCS.

I feel like I'm fully recovered from the procedure now and I have had no reduction in symptoms whatsoever yet and I'm wondering if I will given the untreated NCS. I am symptomatic for NCS with severe left flank pain and hematuria. My Dr wants to see if I get any relief from the stents before referring me out to treat the renal vein.

I had my follow-up with the NP today and she said that I wouldn't likely have any reduction in symptoms by treating the left renal vein if I don't have any improvement with the stents. This seems incorrect, especially given my symptoms and what was found during my venogram.

The pain I'm in is disabling and I feel like my life is just passing me by. Just trying to figure out if I need to keep pushing or if I need to give it more time.

Hi everyone! Does anyone else get hip pain and lower back pain on just one side? It gets worse after standing too long and also when getting up after sitting too long, and it gets worse as the day goes on. If you do get this pain, have you found anything to help?

My cardiologist waved this off but I want to go to get evaluated for pelvic congestion.

1. Pots started after pregnancy

2. Bikini area pressure since pregnancy (years)

3. Standing or walking caused severe lower back pain that was instantly fixed by sitting down or laying down

4. 1 year on meds and symptoms have improved across the board EXCEPT ability to stand has not. I have pain after 3 minutes by 7 minutes it's severe and difficult to continue. By 15 min I'm about to faint and can't communicate

5. Standing in chest high water in the pool I can stand for hours, zero symptoms.

6. Super heavy periods after last baby, had to start hormones because I would bleed through in public with tampon + pad.

7. Stabbing pain occasionally during sex

8. Hyperadrengic pots with hypermobile spectrum and MCAS.

The main thing that always bothered me is that while I have a POTS DX I don't see a lot of other folks with the crippling pain. I'm basically housebound and use a wheelchair to go out.

Does this sound like PCS? What's the process for getting evaluated?

I have AGA but wondering if vascular compressions, poor blood flow can contribute to scalp hair loss? Did a stent help hair loss?

Hi, I'd like to know your experiences after stenting May-Thurner. If and when you saw improvements? Did PCS improved on its own or maybe you needed embolization too? How would you rate symptoms improvement in %? Or maybe something got worse? TIA

Please, can anyone tell me if this sounds like pelvic congestion?

Test results: bloods- fine, stool samples- all
Negative, urine samples- all negative, STI checks- all negative.

Symptoms: March this year, started experiencing severe pelvic bloating. Lower stomach/ pelvis feel full and inflamed. When I touch my lower stomach it feels tender. There is a particularly tender area just below my bellow button and to the left slightly. Visually, it looks like my stomach has dropped down towards my pelvis. Even on an empty stomach, it will bulge. I’ve noticed it worst at the end of the day or after lots of sitting.

April: Started to feel dull ache. SI joint pain which has been an issue in the past has started occurring again, despite physiotherapy attempts. Whether I exercise or not doesn’t seem to make much difference. It will come and go, sometimes I get pain all the way out to my left hip. Sometimes up the back. Sometimes both sides but usually the left.

Also, occasional sick feeling/stomach pain. Sometimes after eating, sometimes on an empty stomach.

May/now: I noticed I had one swollen lymph nodes in my groin. This was about 5 weeks ago (before I went away on holiday). Since then, it has gotten slightly more swollen. Plus another one on the same side has swollen too. They feel tender, not pleasant to touch.

Most recently: Hurts to bend my leg up towards my chest, sit cross legged, or lie of the side. Any position where the lymph nodes feel crushed or restricted feels unpleasant. By the end of the day, just want to lie down. Also experiencing fatigue. Sleeping 10+ hours a night but still very tired by the end of the day. Body feels slow and heavy. Sometimes walking is uncomfortable across the pelvis.

Other things maybe worth noting: Periods have became less regular, and slightly more painful and heavy first few days. In the past, my periods have been almost textbook regular. 1 day early or late at max (5+ years flow tracking).

Also, pain and discomfort with sexual intercourse. This is something that has gotten worse over time. But now with the combination of being very exhausted, the pain is too much. It’s hard to insert a tampon even. I worry when I do have sec even with lube, I’ll get thrush. It feels uncomfortable during and after.

And lastly, just a bit or struggling to urinate sometimes, or rather completely empty. Feels restricted like I have to push to urinate but I try not to cause I assume that’s not good for me. I try to drink a lot of water, usually 2.5 litres a day.

I have had multiple blood tests, urine tests, STI tests, and stool samples. All negative. I’ve just had my pelvic and transvaginal ultrasound and I’m super disappointed to hear they also came “normal”.

Im definitely not pregnant. And I don’t think I have endo, but I guess you never really know. I don’t know where to go from here

It’s 1 in the morning… cant take this shit anymore i swear.
I am so exhausted, sleep-deprived, and confused right now, and I just need to know if anyone else has experienced this exact nightmare. I have 83% May-Thurner and 60% Nutcracker, and tonight and more recently the pain has become completely unmanageable.
I have severe stabbing pain in my butt and my left kidney, but now my right kidney is getting shooting pains too all of a sudden. Earlier tonight I was peeing every 15 minutes. Now, my bladder feels incredibly swollen, it burns like a horrible UTI/ kidney infection, and I physically can barely pee at all. I can literally feel the inflammation tracking all the way down my ureter to my urethra.
I’ve tried everything. I’m laying on my left side with a heating pad. Tramadol isn't touching the pain. I tried a Fleet suppository earlier because I felt so backed up, but it just caused spasms and incontinence.
I am so sleep-deprived from dealing with this, i think my dysautonomia started up around a year ago and since then i have built up some sleep debt, not making anything better 😞
I’m confused and can’t even remember if I took a Valium on top of the Tramadol and Tylenol . Muscle relaxers, oxycodone, meloxicam, nothing touches it anymore at ALL
I know this is a physical blockage because I went to ER few days ago with a fever, tachycardia, and extreme weakness. The ER doctor tried to dismiss me, but I fought for a contrast CT.

The scan showed:
Edematous urinary bladder wall thickening
Edematous wall thickening involving the rectum and colon
Fluid-filled loops of small bowel

Because of the compressions, the blood can't drain, and the fluid backup is literally crushing and swelling my pelvic organs. They discharged me to follow up with GI and Urology outpatient since my bladder wasn't actively bursting at that exact moment, but now I'm back home and I am locked up.
I’ve been meditating, reading, journaling…. Anything to try and rest and calm my nervous system, but sleep just seems so far away. People around me keep treating me like I’m mental or like I am doing this to myself, even with cold hard evidence

Has anyone experienced this severe bladder lockdown and right kidney pain with NCS? Did you have to go back to the ER to get a catheter? I’m so incredibly tired and feel so alone dealing with this. Any advice is appreciated.