Seeking compassionate MD that has extensive experience diagnosing/treating female pelvic venous disease and lymphedema. No reproductive organs with atypical presentation.
I was diagnosed yesterday with PCS and am waiting on my referral for further imaging. As I’ve been reading today, I’ve begun seeing comments popping up about ADHD, hypermobility, inflammation, IBS, vulvodynia, back pain, hip pain, left leg pain, interstitial cystitis… I’m gobsmacked because these are all things I’ve had/have and have never had them described as connected! It seems like there’s perhaps an onion with layers to peel back I didn’t know existed. I’m wondering if the community here has information, other threads, or medical studies, etc that might get me started. Hoping to be more educated before going to my appt with the interventional radiologist next month.
Perhaps helpful: I am approaching middle age, and have had three pregnancies. Most of the symptoms have been present for decades but the IC showed up after my third pregnancy.
Thanks for anything you can share from your own learning!