Seeking compassionate MD that has extensive experience diagnosing/treating female pelvic venous disease and lymphedema. No reproductive organs with atypical presentation.
Just wondering if anyone received a stent but it did not help or made you worse?
If so, hoping a stent will help swelling. If you do, what does it look like for you?
Increases leg tightness/edema and possibly pelvic pain.
What did you do to use estrogen?
Anyone have a reaction to ICG? What happened?
Is it nml for MD to order ICG of all 4 limbs? I have genital, leg R pelvis LE.
Is it tight, squeezing, pressure, aching, throbbing?
How to tell it’s MTS and not endometriosis?
Does anyone have L groin to knee burning thigh pain with thigh edema? Feels like heavy sand bag in inner thighs (both). Feels tight behind knees. I’m trying to figure out if this is all MTS (venogram/mri confirm) or nerve damage with MTS from laparoscopy. Doesn’t get better with lying down.
I developed inner thigh heaviness/tightness and groin to knee burning pain in inner thighs w/ genital, thigh LE 3 months after procedure. Unilateral parametrium was also removed. No radiation. Has this happened to anyone else? What nerve was damaged and how?
I’m trying to figure out if these symptoms are vascular, nerve or LE or combo of all. Vascular tests show L thigh CVI, MT anatomy. Plastics diagnosed LE. Neuro just labeled me CRPS but my symptoms don’t really fit .
About 15-20 min after removing low grade compression leggings the inner thigh fullness/tightness/burning returns.
I’ve been trying to figure out LE from vascular source of edema for over a year. Would LE cause pain to return so quickly after removing compression or would rhis ointment to a vascaukr cause. No change if I’m lying down. Have genital LE but no pain there.
I need to take low dose hydrocortisone (25 mg/d). Did it make your LE worse? If so, what did you do about it?
Got these today and they smell like textile/rubber chemical. Horrible. It also too tight around thighs. Anyone notice this smell? It’s 82% cotton and rest synthetic. So disappointing.
Anyone have suggestions that don’t smell like chemicals? I’m allergic.
EDIT: Where did everyone order theirs from so I know where I can order thst doesnt have a smell? I got these from Ames Walker.
Anyone experience this due to their PCS or MTS? Im so scared! The mons is swollen with 1 labia more swollen than the other. It’s worse with walking, sitting up but never goes away. My L leg is tight thighs are heavy and burn. My R lower leg is cold, foot bluish. Also noticed mottling of both legs when I raise my arms to do anything. I do have May Thurner anatomy.
I have LE in genitals (mons pubus and labia), thighs, R pelvis. Complicating is vascular anatomy (May Thurner, CVI).
Is it normal for LE to cause this level of pain in thighs?
I can’t tolerate compression for very long (30-40 min max) which resolves tjis pain for the most part but as soon as I take them off, 5 min later it’s heavy, burning, implode feeling. Home MLD relieves this for 20 min and it’s back. No one would know I have LE in legs/thighs just looking. It’s obvious in genitals.
Pressure behind both knees. L leg feels tight to the ankle.
Anyone have cold feet with 1 foot colder than the other with blue discoloration ascending from foot to knee as time goes on? Tight legs, especially behind knees, thighs heavy and feel like sand bags. Focal pocket of edema bilateral lower inner legs below calf?
I was diagnosed with PCOS in my 20s and birth control controlled high andrigens until bilateral oophorectomies (surgical menopause). Can’t use anti androgens due to genital atrophy and pain. DHT inhibitors cause side effects. Anyone here in menopause on dex or hydrocortisone and have symptoms controlled? Most worried about rapid hair loss. On estrogen but not helping growth/loss.
IV glutathione and IV phosphatylcholine enabled me to lead a much more normal life. Check out American academy of functional medicine for providers near you that may offer this. Dr. Kenneth Bock in NY diagnosed me with glutathione deficiency in my 20s. These supplements saved my life.
Will be traveling for 3 nights 4d for medical trip. Need fragrance /chemical free lodging.
I experienced significant abdominal bloating and pain in this location the following day after a venogram /IVUS and 2 months later edema started here . I had already been in massage treatment for genital, thigh and RLQ pelvic LE prior to this happening. R labia is larger than L and mons pubis is swollen. My L leg does not have this. This area is tender at times and I think I have CVI here based on 1 ultrasound. The venogram was for MTS evaluation.
Is this LE or CVI? Why would venogram cause pain here?
I’ve been on the patch for almost 2 yrs. E is causing severe oily face and scalp. I think it’s contributing to hair loss. I do have elevated androgen but when these are lower the oiliness remains. Anti androgens dont help . It’s E patch! I’m not metabolizing this correctly or something. When I tried oral E it didn’t do this but I lost haur in AGA pattern. Patch initially regrew haur and didn’t do this until 5-6 months in it. Anyone have this issue? How did you solve it?
As soon as I remove compression leggings (about 15-20 pressure) thighs burn. My L forearm burns spreading to entire L arm. My body feels so inflamed. Swelling in thighs, pelvis and genital. Vulva heaviness. Anyone else have this burning in extremities that reduces wirh compression and immediately returns when you take them off? Body feels so inflamed.