NCAH vs PMOS
Context: I was diagnosed with PMOS after an ultrasound found polycystic morphology on my right ovary, and I had signs of hyperadrogenism and irregular periods. I also have (I think level 1?) hypospadias, confirmed by a urologist. So I just want to put it out there that this is not me asking if I’m intersex or for medical advice.
My main medical mystery at the moment is chronic hypoglycemia (confirmed by a CGM), and I’ve had two doctors now tell me it’s probably a precursor to prediabetes and T1DM. But the thing is, my mom has this problem too. She’s in her mid-40s; if it was a precursor, don’t you think she’d have diabetes by now? Also, both of us have always had normal fasting glucose and HbA1C.
This leads into: there’s only so many things that cause chronic hypoglycemia like this. Autoimmune-related insulin problems and adrenal insufficiency. I’m working on getting the autoimmune stuff covered, but I can’t convince my doctor to run stuff for adrenal insufficiency and NCAH. Also, all the research I’ve seen says that “females” with NCAH are asymptomatic outside of hyperadrogenism, but like, that can’t be right?
I’m not just investigating NCAH because of this. My PMOS doesn’t quite fit? Obviously I had the hyperadrogenism and polycystic ovary, but the ovaries were “swollen” and my menstrual irregularities aren’t the PMOS pattern. For me, I would bleed for months pretty much non-stop, whereas PMOS is known for long periods of amenorrhea. My cycle was also pretty predictable, just longer than it was “supposed to be.”
The other thing is I think I had premature adrenarche? I was hairy and smelly by 9yo. I remember being like 8 and my stepmom would criticize me for being “dirty” because I was sweating like a teenager and had really oily skin (acne developing around 10ish?). I’m not 100% sure but I think I also had slightly earlier puberty, like I remember having to get a padded bra in fifth grade because I had gotten big enough for it, and girls in my class started making fun of me for “trying to pretend I have big boobs.” I also remember that I developed clitoromegaly rather early (not sure when, I wasn’t born with it); my sisters would make fun of me for it a lot. (I can remember most of this specifically because everyone was calling me abnormal for it). My period came at the normal time (12yo) and once I started puberty, it was pretty consistent from there, not like accelerated or slowed or anything.
Anyway, if you have NCAH (as a “female”), do you have other symptoms that aren’t related to hyperadrogenism? Like do you experience adrenal insufficiency or milder symptoms associated with CCAH?
TLDR: trying to figure out if some of my unexplained symptoms could be NCAH, so I’m asking others about their experiences.
I have formal thought disorder, a symptom of schizophrenia that makes it hard/impossible to express thoughts in a logical and linear fashion, so please be kind and ask questions before criticizing.