r/venousinsuffiencyhelp

How come some people say it doesn't hurts while others say the pain almost unbearable? I been trough a lot of pain. I had knee aspiration without anesthesia, and bone marrow biopsy but the vein ablation hurt me greatly. I took it like a big girl no complaining no crying no sobbing no anything. But Im curious... the lowest part hurt me more than my upper leg and my doctor said it should be the opposite can someone clarify me? Do I need to do this again or is once done is done forever? My last is this Friday, I wont be doing this again.

Hi 👋🏻 I’ve been wearing medical grade compression for varicose veins and discomfort caused by CVI for over a decade. I just deal with wearing them, but in the summer when it’s hot I feel limited in what I can wear and do. My options for clothing feel lacking, and I’m often uncomfortable. I’m a woman in her 30s and I want to wear sundresses and shorts and I just feel just so frustrated. I feel like I’m living on the outside somehow, and it’s especially hard watching other people enjoy the summer breeze on their skin. Even summer footwear is hard, because even with open toe compression it looks odd to me. So I cover my feet and ankles up all summer and feel hot as hell. I see so much cute clothing I’d like to wear but can’t imagine wearing any of it with compression, bc I just think it would ruin the whole look. Occasions dressing is tough too, I make do but feel stifled. I find myself feeling jealous of women twice my age with normal looking legs, out in the world wearing shorts. I feel so old before my time. How do people cope?

I’m a man in late 20s and I struggle every time I go to to the beach, swimming etc. It looks weird to expose the medical thigh high compression socks to my friends when I’m wearing shorts. If I wear full length cotton trousers, I still have to take them off to wear swim shorts in front of everyone before jumping in the water and this exposes the huge ugly compress sticking.

Also, if I wear linen pants to the beach, I can’t wear flip flops like others. Because of the compression socks, I’ve to wear normal socks over them and 90% of the time I get comments like ‘why are you wearing socks on sand on a beach?’ with everyone looking at me.

How do you deal with these situations?

Anyone have a teenager diagnosed with this? Or was anyone diagnosed at a young age and could give some advice on things you wish you had known/done sooner or advice on lifestyle changes that made this more manageable at a young age?

Thanks!

I want to have ablation done but I'm always reading the side effects which includes dvt and post thrombotic syndrome which is way worse and can last for years with severe pain and disability. Not including nerve damage that can also lead to disability. And severe discomfort. There are so many. And it seems like there are always new ones that pop up. And reading other people's comments on it people say you should of gone to a better vascular surgeon. Which the person said they went to the best one in the area and still had issues. I would take this risk if the results were worth it. But so many posts about veins coming back months or years later

I have recently been diagnosed with cvi (27M) and am curious if anyone can share what their legs and feet are like after having this disease for a long time like 20 or 30 years. I can't find any info on people's experiences with cvi after having it for a long period. Thanks for any info.

F27 with EDS, POTS, MCAS, and more.
I have symptoms of SMAS, MALS, May Thurner, and Nutcracker, so I got a CTA using MALS protocol and specific instructions on how to look for each compression.
The radiologist did not include any measurements and concluded my scan as normal.
I linked the video of the scan to this post.
I feel like something was missed and I’m at my breaking point. I’m in pain and so exhausted, I’m hoping someone can tell me if any compressions were missed and the next steps to take. Thank you in advance🩷

I am scheduled to have an ablation of my GSV and am extremely nervous, as I have not only considerable chronic venous insufficiency that causes pressure, heaviness, pain, extreme blood pooling, etc. but I also have been told by multiple doctors that I might have EDS as well as I have late-stage Lyme Disease plus co-infections.

I was diagnosed with an undifferentiated connective tissue disease, have had a positive ANA titer and systemic inflammation. My Lyme Disease panel also came back saying I have Babesiosis, Powassan Virus and Tickborne Encephalitis Virus, which would make sense with years and years of extreme inflammation and a variety of other severe symptoms that have rendered my bedridden most of the time and struggling horribly the time that I’m doing things as much as I can.

My legs pose a huge problem and I cannot stand for long at all before it becomes a large problem. Even standing in front of the mirror to floss and brush my teeth causes crazy blood pooling and discomfort. There are hard knots in my GSV and the vein aches and hurts horribly at times and has kept me from sleeping and has driven me to tears. Each morning I wake up with insanely red, burning feet. Something does have to be done, but-

I’m so nervous.

I’ve been a medical mystery for so long but have recently been finally connecting dots on nervous system issues and more being connected to Tickborne illnesses and inflammation being possibly from that or from mold toxicity or both and the possibility of it being from EDS, possibly vEDS.

I’m worried the ablation might be bad for someone like me, but I don’t know. I don’t want to cause more damage, but I also need to try to treat things to be as functional as possible.

Has anyone had vEDS or EDS or Lyme/co-infections and gotten their GSV ablated?

Did things go badly after or did it improve things for you?

I have a few days left until the procedure and I’m trying not to panic.