u/itsme-sparkle

Well…… I was finally diagnosed with Adenomyosis and Pelvic Congestion Syndrome (PCS).

My doctor wants me to take care of the PCS first with a procedure called Uterine Artery Embolization; I have a stage 1 cystocele too, hence why this is going to be the first approach so it does not worsen with a hysterectomy. Assuming all the blood pooling in there is the cause of most of my symptoms.. and if within 4-6 weeks after that if I’m still in the same pain, I will be having a hysterectomy.

Has anyone dealt with a prolapse and these issues? What did you do? Did the UAE work?

Help! Idk what to do.. please read all:

Today I went in for a consult on my Adenomyosis and Pelvic Congestion Syndrome. Due to having a grade 1 cystocele prolapse, she wants me to get a Uterine Artery Embolization first - she believes my symptoms could be because of the blood pooling in the veins outside my uterus. And that if I got a hysterectomy, it could shift my prolapse and make it worse.

I was hoping for the hysterectomy altogether and be done with this all. But she scared me enough I’m thinking of doing the Uterine Artery Embolization first… lol

INPUT/ADVICE PLEASE 🙃🙃🙃

3 months ago I started getting this vaginal heaviness with bladder frequency. It would get worse when I walked - my job was 99% of walking too. So I had to go on leave… I’ll save the details but in the span of 3 months I have seen 10 doctors - 5 of them are specialists. Then a few weeks ago the lower back and leg/hip pain started too.. to me having a gut instinct this is more than Pelvic Floor Muscle Dysfunction. I’ve had muscle relaxers, 0xy, anti inflammation meds thrown at me and none have worked. I’ve done over a month of PFPT. Nothing I have been doing… is working.

So I pushed for a Pelvic MRI. I got the results back yesterday - Adenomyosis (back top of my uterus) AND Pelvic Congestion Syndrome.

My UroGyn told me to wait the 7 months to see a Pelvic Pain Specialist… 🤦🏼‍♀️ 😒🤬

So as of right now, I have an appt to discuss a more permanent option/fix with my ObGyn next week. She is a surgeon and familiar with this stuff I’m told, so I hope she gives me more options - which I hope a hysterectomy is one. Because being in my early 30’s with kids, I’m so tired of being in this pain, I’m so tired all the time but cannot sleep, and upset of missing so much with my family.

Being in my 30’s feeling like I’m 80 is just wrong and sucks.

Any advice in general or to mention to my ObGyn next week?