Hi everyone. I’m from India and was wondering if anyone here is from India or knows someone who has gone through this disease here.
like which hospital are you being treated at, and which city are you in?
I see a lot of posts from people in the US, UK, and Europe, so I was hoping to connect with others in India.
Hi everyone. I’m from India and was wondering if anyone here is from India or knows someone who has gone through this disease here.
like which hospital are you being treated at, and which city are you in?
I see a lot of posts from people in the US, UK, and Europe, so I was hoping to connect with others in India.
I’m 27F. I lost my mum to this horrible cancer multiple myeloma recently. She was diagnosed in 2019 at age 55 with an M-spike of 6 And severe back pain. After just 3 months of VRD chemotherapy and maintenance on Revlimid, she achieved remission by early 2020 and lived a very normal life for almost six years. She travelled, danced, went to the beach, and enjoyed life. Apart from occasional back pain, she was doing well. There was a time when we thought she’s literally cancer free.
In 2025, her M-spike rose to 0.5 and then to 0.8 in January 2026. Testing showed t (4;14), and after consulting four doctors, three recommended Dara-KPd while one suggested a cyclophosphamide- polimide and dexa regimen.
We chose Dara-KPd.
She tolerated the first month well, but in March she developed a high fever 102 and vomiting. we went to the ER , she got admitted
What initially seemed like an infection progressed to sepsis and pneumonia, she also got anuria, which means even after dialysis her kidneys were not functioning properly, and she got a cardiac arrest and we lost her. She would have turned 63 this August.
I keep wondering whether we made the right treatment choice of DARA KPD. I sometimes think what situation would have been if we chose cyclophosphamide instead. where did she got that infection? we were so careful with everything..
Has anyone else here lost a loved one to this disease? Sometimes it feels like such a lonely and traumatic experience. Im stuck in so much of what if’s situation.
i miss you mumma