u/SkillEmotional7140

Hi everyone. I’m 35, married with two kids, and was diagnosed with endometrial cancer back in July. I had a hysterectomy in September, and thankfully my cancer was caught early. My doctors are recommending observation, which I’m incredibly grateful for, but the fear of recurrence has been difficult to deal with.
One of the hardest parts of this journey has actually been feeling emotionally unsupported by my husband. Since the day I was diagnosed, he’s struggled to understand why I’m so upset or afraid, especially because my cancer was caught early and my prognosis is encouraging.
I’ve been told I’m weak, that I worry too much, and that I should be happy instead of crying because I received good news. I know I have so much to be thankful for, and believe me, I am! But receiving good news doesn’t automatically erase the fear and emotions that come with having cancer.
I’ve reached a point where I don’t even talk to my husband about my feelings anymore because I usually end up feeling worse afterward. And honestly, that’s been heartbreaking.
I love my husband, and I’m not looking for advice about leaving my marriage. I’m just hoping to connect with other men and women who have experienced something similar.
Has anyone else felt emotionally alone in their marriage during or after cancer? How did you cope? Did things eventually get better?
Sometimes it’s just nice to talk to people who truly understand. ❤️

I got my final pathology results today and just wanted to give an update and hopefully hear from some people who had something similar.

The good things I’m seeing are that there was no evidence of cancer in my abdominal cavity, my pelvic washing was negative, and all 3 sentinel lymph nodes they removed were negative for cancer. The other areas they checked were negative too.

My cancer is still grade 1 endometrioid adenocarcinoma and my report says pT1a. I’m still trying to understand what that means for my actual final stage.

The thing that still has me worried is the p53 mutation/abnormal p53. I know everyone’s case is different, but I’m really curious if anyone has had something similar.

What was your final stage?
Did you have the p53 mutation/abnormal p53 too?
What kind of treatment did you have after surgery? Radiation, chemo, or just being monitored?

I’m thankful for the good parts of my report, but I’m still trying to figure out what all of this means and what comes next. ❤️

I’ve been struggling a lot with the intersection of my diagnosis, my mutation, and being a Black woman.

I was recently diagnosed with FIGO grade 1 endometrioid endometrial adenocarcinoma, and my molecular testing showed a pathogenic TP53 mutation (p53-mutant). I know that doesn’t automatically tell me my stage or mean that my cancer has spread, but I’ve read enough to understand that p53-mutant endometrial cancers can be more concerning, and that Black women unfortunately experience worse outcomes with endometrial cancer overall.

What has been especially difficult for me is looking back and realizing that I had symptoms for a long time—particularly prolonged/abnormal bleeding—and wondering whether I was diagnosed later than I should have been.

I had fibroids and other gynecologic issues, so for a long time there were explanations for what I was experiencing. But now that I have a cancer diagnosis, I can't help but wonder: Was my body trying to tell me something much earlier? Did I wait too long?

And being a Black woman makes that question even heavier. We know there are real racial disparities in endometrial cancer, including differences in diagnosis, treatment, and outcomes. It is painful to think about whether my experience is part of that bigger problem.

I'm trying so hard not to Google myself into the worst possible outcome. I don't know my final stage yet. I don't know what my surgical pathology will show. I don't know what treatment I'll need beyond surgery.

I’m scared, angry, hopeful, and overwhelmed all at the same time.

For anyone who has had p53-mutant endometrial cancer, especially Black women who also had symptoms for a long time before diagnosis:

How did you handle the waiting? Did you feel like you were diagnosed too late? What did your final pathology show, and did the p53 mutation change your treatment plan?

I would really appreciate hearing from people who have actually walked this road. ❤️