r/endometrialcancer

J'ai mon rendez vous post opération le 15 octobre. Mais vendredi, mon cœur n'a fait qu'un tour quand j'ai lu "hôpital" sur mon mobile. C'est le chirurgien 😮. Il me dit qu'il vient de recevoir les analyses et c'est très positif.

Il m'explique : rien n'a été trouvé ailleurs que dans l’utérus, 30% d'envahissement. Pour lui pas de traitement supplémentaire.

Mon dossier va passer un réunion la semaine prochaine pour le rapport finale le 15.

Mais quel soulagement. Après je n'étais pas inquiète car j'avais eu un Pet Scan sans rien de plus que l’utérus. D'ailleurs, je le remercie d'avoir fait tous ces examens avant l'opération. Et de m'avoir appelé personnellement pour me communiquer les résultats d'analyses.

Comme quoi .. cela a mis 6 mois pour me diagnostiquer. Mais prise en charge a été parfaite et rapide. Il ne faut jamais perdre espoir. Le corps a des ressources incroyables.

Depuis l'annonce de mon cancer, j'ai perdu 6kg car j'ai bien réduit le sucre. Même si je n'étais pas en surpoids. Le ciel m'offre une seconde chance donc je vais tout faire pour conserver ma santé. 🙏

Je suis Française. 🇫🇷

Mon parcours jusqu'à présent :
IRM, Biopsie, Pet-scan et Hystérectomie totale + ganglions sentinelles.
Opérée avec un robot Da Vinci.
Si cela peut aider d'autres personnes.

❤️ Wonderful news! ❤️

My hysterectomy pathology showed no trace of cancer! It appears the D&C removed all of the cancer.

They also found adenomyosis, which isn’t cancer but likely explains many of my symptoms.

I had early-stage, low-grade endometrial cancer, with a very low risk of it returning. I’ll have checkups every 6 months for 5 years.

Feeling incredibly lucky and grateful. ❤️

Im 35, single with no kids and was diagnosed back in August via a d&C after I nearly bled to death (hemoglobin of 3.7). Had a full hysterectomy (kept both ovaries) on 9/9 and pathology came back very positive, stage 1a less than 35% of the way through the muscle wall. Just have to do surveillance monitoring for 5 years. Recovery has been relatively easy for me. All of this is fantastic news and I feel like a spoiled brat for what I’m about to say next.

I still feel awful. I am constantly on the verge of a panic attack wondering if it comes back and I miss it? Who is ever going to want me now that I have this huge risk factor? Why don’t I get to be a normal person and get to have a baby like all of my friends? Sure I’m cancer free but I’m up to my eyeballs in medical debt that all but guarantees that I’ll never own a home. My friends have been amazing and so supportive and are of course thrilled that I no longer have cancer and I just can’t find the words to explain to anyone that I am still so deeply sad. I really thought that the “cancer free” news would feel better but man it just doesn’t. Did anyone else feel this way? Any tips for overcoming this? Or is this a “time heals all wounds” situation?

I was diagnosed with Stage 3, Grade 3 EC in March. I had a full hysterectomy and one of the 12 lymph nodes tested positive. I completed my six rounds of chemo w/ Dostarlimab, and just had my first Dostarlomab alone treatment this week. Standard of care is Surgery+Chemo+EBRT(25-28 days)+VBRT (2-3). My PT scan was clear, my CA 125 has been normal, my Signatera score (only 1 taken) is 0. The next one is before my next Dostarlimab treatment in November.

I met with the Radiation Oncologist today. After a lot of research, I was leaning toward vaginal brachytherapy (VBRT), but not external beam (EBRT). I told the doctor that at the start. After a long discussion, and to my surprise, the doctor said her intention was to do daily external beam targeting the area around the vaginal cuff and the lymph canal, but to NOT to the vaginal. Needless to say, I was shocked. On one hand, I was happy. I’m late 60s with a history of vaginal atrophy; however, I can’t use estradiol cream anymore. However, I am concerned about the increased side effects that come with external beam. The treatment, if I understood it correctly is, 40 Gy fractioned to 25-28 sessions. She said it was a microdose. The doctor said that since I tolerated chemo well, I would likely tolerate this as well.

One area of research indicated that the EBRT with the Dostarlimab could potentially lead to lymphedema due to the extra systemic pressure on the lymph nodes.

I don’t know if anyone out there can relate to this, but I am seeking thoughts. I was mapped today (just in case), but I am to call the doctor’s office Monday to tell my final decision on how to proceed. FYI - the doctor is the head of the Radiation Oncology department at the cancer center at which I am being treated. So far, I have followed all procedures and had a positive experience. For some reason, radiation is freaking me out, and it feels like it’s the first time I had to make a decision about my treatment.

Any advice? Feedback?

Thanks in advance.