I’m scheduled for full hysterectomy next week. All my results came back on My Chart but I haven’t talked to my dr yet- the time in between is so hard. Not sure what to expect.
Anyone else dealing with this diagnosis?
Thank you

Received pathology post hysterectomy and at first glance it looked really good. Until the spot on the left lymph node. I don't have a lot of trust in my current gyn/onc office. The physicians assistant called on behalf of the surgeon and said they staged at Stage 1A Grade 1 and the micro cells .4mm in the lymph node "don't really count." ...those were the exact words she used and I wrote in my notebook. I am going for a 2nd opinion on Wednesday at a research hospital. I just want to be sure I am taking the best treatment approach moving forward. If anyone had a similar dx, if you could please weigh in on your treatment, I'd appreciate it.

My final pathology showed:

* Endometrioid adenocarcinoma

* Tumor size 1.7 cm

* Superficial myometrial invasion: 0.2 cm into a 1.4 cm myometrium

* No lymphovascular invasion

* Cervix, ovaries, tubes, margins, washings and peritoneal biopsies negative

* Right sentinel lymph node negative

* Left sentinel lymph node had a 0.4 mm micrometastasis

* Pathology listed pT1a pN1mi

* MMR proteins all intact / pMMR

Hello,

I have done pelvis MRI and were recommended to do endometrial biopsy. The gynecologist would like to do hysterectomy without doing biopsy. I am wondering if there is any centre in BC to do biopsy with family doctor referral and preferably with no long wait time.

(Keeping ovaries)

I’m a 36-year-old woman, non-smoker, currently recovering from laparoscopic surgery. I’m looking for informed opinions while I arrange a second opinion with a gynecologic oncologist.

I had surgery for a \~10 cm left ovarian cyst that was initially thought to be an endometrioma. During surgery, the cyst was ruptured/opened **inside a controlled retrieval bag**. There was no free spillage into the abdominal cavity.

The pathology has now shown:
**Diagnosis:** Endometrioid carcinoma arising in a background of endometriosis
**Grade:** G2, moderately differentiated
**Stage:** pT1a / FIGO IA
**Tumour:** 10 cm, confined to the left ovary
**LVSI:** Not identified
**Ovarian surface involvement:** Not identified
**Implants:** Not applicable
**Lymph nodes:** Not submitted
**Peritoneal/ascitic fluid:** Not submitted

The other specimens were reassuring:
Right ovarian cyst: endometriosis, **no atypia or malignancy**
DIE nodule: endometriosis, **no atypia or malignancy**
Fibroid: benign leiomyoma
Immunohistochemistry:
PAX8: diffuse positive
ER: diffuse positive
p53: mutational-type
WT1: negative

My doctors are recommending a **completion staging surgery**, including removal of my both my left and right ovary, both fallopian tubes, uterus, omentum and all pelvic/ para-aortic lymph nodes including PNLD.

Their explanation is that removing everything would significantly reduce my risk of recurrence.
I understand the rationale, but I’m 36 and my right ovary currently has no evidence of cancer. Removing it would cause immediate surgical menopause, potentially for decades. I’m also ER-positive, so I understand that HRT may be a complicated question afterward.

My main questions are:
For **FIGO IA, Grade 2 endometrioid ovarian carcinoma**, is removal of the healthy contralateral ovary and uterus routinely recommended in someone my age?
Is **completion surgical staging** necessary because lymph nodes and peritoneal washings weren’t obtained during the first surgery?

Could staging potentially be performed while **preserving the right ovary**, assuming it looks normal and there is no evidence of disease elsewhere?

Does G2 status significantly change the recommendations compared with G1?

Does the **p53 mutational-type staining and diffuse ER positivity** change the risk assessment or management?

Would you recommend a second pathology review and/or molecular testing such as **MMR/MSI, POLE and other molecular classification** before deciding on further surgery?

If complete staging is negative, would chemotherapy normally be considered for this particular presentation?

Is there evidence that removing the remaining healthy ovary and uterus actually improves overall survival or recurrence outcomes in someone with my specific stage and histology, as opposed to simply eliminating the possibility of a future ovarian/uterine primary or recurrence?

I’m not looking to replace my oncologist’s advice with Reddit advice. I’m trying to understand whether **“complete staging” and “remove all reproductive organs” are necessarily the same thing in my situation**, and what questions I should take to my second-opinion gyn-oncologist.
I can provide the full pathology report if helpful.

High grade endometrial carcinoma, consistent with endometrioid carcinoma FIGO grade 3 (30%), and clear cell carcinoma (70%)
Pelvic washing, lymph nodes, cervix, ovaries, tubes all negative for cancer cells.
All margins negative for carcinoma.

I’m 65, menopause started @ 60.
I had spotting, light bleeding for last 4.5 yrs.
Had one biopsy in 2021, came back negative for cancer, but said there were multiple fibroids, one was @degenerating” so that along w/atrophy could be causing the spotting.
If bleeding reoccurs, go see gyne dx again.
I never went back.
Confirmed endo cancer 6/18/26.
Had my robotic lapro total hysterectomy w/BPO & 2 lymph nodes 8/4/26.

Scheduled to see Onco doctor next on 8/19 to discuss path report & any treatment.

Have any of you ladies had a similar diagnosis & what was your treatment?

My grandmother died of breast cancer (1985) and I remember how she suffered horribly after getting chemo & radiation, it completely destroyed her.
I’m scared of those things so much that I’m seriously considering NOT doing anything else.
Just knowing that my surgeon was able to get it all out, I’m thinking if I can live another 5-10 yrs a good quality of life then that’s what I want for myself.
I don’t want poisons in my body.
For those that have had treatments, please convince me that it was totally beneficial for you & you don’t regret doing them.

Hello again everyone, on June 2nd I got an IUD and it was great because the bleeding had stopped and no cramps but July 25 I started bleeding but it will come and go so on August 9 I had to go to the ER because I was getting clots, I called the doctor and she told me she couldn’t do anything cause it was the weekend. My iud came out when I was on the bed and the er doctors told me my doctor will see me the next day for me to call and see what time I can go in, I call turns out she wasn’t planning on seeing me and I had to wait till Wednesday and I’m just bleeding and she didn’t even show up it was the nurse and I been urging for a hysterectomy but she wants me to lose 20 pounds in the next 3 months but even than I don’t think she will give me a hysterectomy, they put me on birth control. Yesterday August 13 I ended up in the er again because I was just having huge clots and I almost fainted but they only gave me Tylenol and that my doctor will see me tomorrow which is Friday for me to call so I call and tell them and they told me there is no appointment for me today but to wait that they will call me back but never did so I call again and the nurse told me there was nothing the doctor can do cause they gave me birth control and for me to wear a pad. Mind you my clots are not small they are huge and the doctor is no help and I’m not sure if anyone in the area does endometrial. When the obgyn sent me to this doctor she told me oh yes she going to taking it out but this doctor is just telling me that she wants to wait and that I’m to pretty like mam I’m just bleeding. I’m thinking about calling the doctor that gave me the iud cause it was very helpful 😭😭

After being admitted to the ICU with a 3.7 hemoglobin (to answer your question I don’t know how I was up and walking around either lol) I had a biopsy, a d&c and received my diagnosis a little over a week ago. I’m 35 and while I was already pretty sure kids were not in the cards for me I am deeply grieving that this choice is being taken away from me, it’s like great I’m going to be 35, single, and barren. I have my first appointment with my oncologist on Monday and I feel like I’ve mostly been in denial because I am in no way mentally or logistically prepared for having major surgery or any of the treatments that might come after. So after all this rambling i guess my question is how do I prepare myself for whats to come? What’s something you wish you knew before surgery? What helped you the most in recovery? How do I stop feeling so betrayed by my body and very quickly make peace with the fact that I’m never having children?

Thank you all for reading the word vomit of a very overwhelmed person who has not slept very well in over a week because of the anesthesia from my D&C and cancer diagnosis lol

ETA- flubbed the terminology in the title I meant Figo Grade, from what I understand staging comes after surgery.

I had a full hysterectomy(tubes,ovary,uterus,cleaned me out) on 8/5/26….still waiting on full pathology. My pelvic wash came back clear so that was a relief but the waiting is killing me. I know it’s only been a week but between being stuck in bed(pain has been manageable but inconvenient..lol),and having severe adhd,I’m slowly losing what’s left of my mind…lol.

I’m in Ct and I know I have great care,it’s just crazy,…life keeps moving but I feel so stuck in CancerVille and I just want to get the fuck out..lol.

Sorry for the vent,..had so many plans for August/September and I feel like I let so many people down.

Hi everyone & Happy Saturday.
I was diagnosed 2 weeks ago with grade 1, having robotic surgery on Monday, here in Spain., where I have lived for almost 40 yrs.
I’m 66 and not worried about losing my bits, but I am worried about recovery & what May come after.
I only have my 22 yr old daughter to help me, and I already went through breast cancer 8 years ago, had skin cancer earlier this year, caused by the radiation for the breast cancer.
I feel like this is a house of cards, each treatment seems to cause more cancers and more problems.
I’m terrified I will need more treatment depending on the stage, but I know in my head I can’t do any of it, due to the knock on effect.
Before radiation … no one told me it stays in your system for up to 9 years causing havoc all over.
I’ve gone through so much the last few years, and was just getting back on my feet - then this.
My ex husband took a fraudulent loan out on my home without my knowledge or signature .. I had to buy my own home at auction to keep myself and my daughter with a roof over our heads. It’s been a nightmare, I don’t know how much more I can take .
Sorry for the rant, but I’m terrified of what’s to come.

Had robotic laparoscopy total hysterectomy last week (8/4) and some of the incision sites ( I have 6) were/are covered w/that sticky surgical tape.
A few of them have fallen off (w/a little help from me:), but the remaining ones are still covered w/that tape & they’re ALL itching like crazy, driving me koo-koo!!
I can only rub them over my pajama top or whatever soft t-shirt I’m wearing but they continue to itch.
What is going on??
Have any of yall had this issue??
What did you do to relieve the itching??
How long will this go on?

Path Report Results:
Grade 3, Stage 1B.
High grade endometrial carcinoma, consistent with endometrioid carcinoma FIGO grade 3 (30%), and clear cell carcinoma (70%).

Pathologic Stage Classification (pTNM, AJCC 8th Edition): pT1b pN0(sn)
Pending POLE analysis and HER2 studies followed by addendum.

Hi all, I'm a little apprehensive about having a CT biopsy for a 6.5cm x 6.5 cm pelvic mass and I've read that it spreads cancer and I've never had one done before. Have you had a CT biopsy done ? Please share your thoughts and experiences. Thank you.

I have hormone-receptor-positive (ER/PR+) endometrial cancer and I’m having a full hysterectomy with removal of my ovaries in a couple of weeks. I just heard back from my gynecologic oncologist: no hormone replacement therapy, not even topical/vaginal estrogen, because of the recurrence risk.

I understand the medical reasoning. But I’m having a really hard time with what this means going forward; surgical menopause, all at once, with none of the usual options to manage it. I’m scared of losing my quality of life, my vitality, my sex life, in ways that feel permanent.

Has anyone else been in this position — hormone-sensitive cancer, no HRT allowed? How did you cope with the surgical menopause side of things? What actually helped, even a little, on the non-hormonal side?

Wondering if this gets easier and what’s worked for others.

I'm the lady that was asking for adivse on my trip to Rome in October. I'm also an avid pickleball player.

About a week ago I got up early to be at the pickleball courts at 7 am. I used the bathroom, flushed and brown dirty water filled the bowl. Of course I flushed again same thing. I was dressed to go play. I went on our community page and found that a water main had ruptured. Now I start calling to try to get someone out there. It's also garbage pickup day. I remembered that I needed to throw out a half a watermelon from my refrigerator that's in the garage. It spill all over the front of my refrigerator and short circuits the fridge. I had the plug right in front of the fridge. I know that was stupid! Needless to say i clean the mess can't get the fridge to work, now I'm getting food out of one and into my house fridge. I get done and I get a call from my oncologists scheduler. I had asked her when I was first scheduled for Sept 8, if anyone canceled could they think of me. She offered me August 28!!

I was ecstatic prior to that call I was miserable. I believe that it was devine intervention. If none of those things would have happened I would have gone to the courts and would have never heard my phone. As I just put it in my bag. I truly believe I will be ok. A part of me has felt that I should have gone sooner to my gynecologist. I'm sure we all play with those thoughts. But maybe if I would have gone at the beginning of the year they would not have found anything.

I’ve been struggling a lot with the intersection of my diagnosis, my mutation, and being a Black woman.

I was recently diagnosed with FIGO grade 1 endometrioid endometrial adenocarcinoma, and my molecular testing showed a pathogenic TP53 mutation (p53-mutant). I know that doesn’t automatically tell me my stage or mean that my cancer has spread, but I’ve read enough to understand that p53-mutant endometrial cancers can be more concerning, and that Black women unfortunately experience worse outcomes with endometrial cancer overall.

What has been especially difficult for me is looking back and realizing that I had symptoms for a long time—particularly prolonged/abnormal bleeding—and wondering whether I was diagnosed later than I should have been.

I had fibroids and other gynecologic issues, so for a long time there were explanations for what I was experiencing. But now that I have a cancer diagnosis, I can't help but wonder: Was my body trying to tell me something much earlier? Did I wait too long?

And being a Black woman makes that question even heavier. We know there are real racial disparities in endometrial cancer, including differences in diagnosis, treatment, and outcomes. It is painful to think about whether my experience is part of that bigger problem.

I'm trying so hard not to Google myself into the worst possible outcome. I don't know my final stage yet. I don't know what my surgical pathology will show. I don't know what treatment I'll need beyond surgery.

I’m scared, angry, hopeful, and overwhelmed all at the same time.

For anyone who has had p53-mutant endometrial cancer, especially Black women who also had symptoms for a long time before diagnosis:

How did you handle the waiting? Did you feel like you were diagnosed too late? What did your final pathology show, and did the p53 mutation change your treatment plan?

I would really appreciate hearing from people who have actually walked this road. ❤️

Hello all! Just providing an update on my circumstances—and for those who may be traveling the same road as me with high-grade serous carcinoma (HGSC).

HER2/POS+3 | p53 abnormal | pMMR | ER+ | Lynch syndrome negative

I was diagnosed in mid-May ’26 with a ghastly, almost 10 cm tumor/lesion residing in my uterus, along with worrisome findings suspicious for potential metastases to the omentum/peritoneal lining and a couple of enlarged pelvic lymph nodes.

My interim CT scan at the end of July, after three infusions of Taxol/Carbo/Herceptin, showed a major response across all of the problem areas. The previously suspicious areas in the omentum/peritoneal lining are no longer visible on CT—apparently, they got the message and cleared out, dissolved, and left the premises! 😏

My swollen lymph nodes showed a dramatic decrease in size—38% to 71% smaller—with two returning to normal size at under 0.5 cm and the other now just under 1 cm.

My uterus has also shrunk back to normal size, and my uterine bleeding stopped more than 45 days ago. The tumor has significantly decreased as well. During my pelvic examination, my oncologic surgeon found the tumor to be mobile, which he considers a good sign.

Another encouraging change: a portion of my upper cervix that had felt somewhat “barreled” during my initial examination on 4/28 now feels and responds normally—another positive sign according to my surgeon.

So, what’s next?

My radical hysterectomy is a GO for the end of August!

My surgeon recommended continuing with the 4th infusion since it was already scheduled, with the goal of giving surgery the best possible opportunity for clear margins. He may be able to perform the procedure robotically/laparoscopically. His plan is to first insert a camera and look for any evidence of spread that may not have shown up on the CT. From there, he’ll determine the best surgical approach.

He is leaning toward a larger incision because he wants to remove and biopsy my omentum, but his goal is still to accomplish the surgery with as little incisions as reasonably possible. The objective is to debulk/remove everything visible.

And here’s the part that really lifted my spirits: based on my encouraging response to treatment and the likelihood of a successful surgery, my oncologist believes I have a 95%+ chance of remission.

After surgery, I’ll have two additional infusions and then continue with Herceptin maintenance infusions indefinitely, assuming everything continues as planned.

Of course, the final pathology remains the ultimate storyteller. That will tell us how much, if any, active cancer remains and give us the definitive answers we’ve been waiting for.

I’m hoping the pathology report reads something along the lines of lots of scar tissue and very few active cancer cells—or, dare I say, none at all. I realize that may be wishful thinking, but I’m allowed a little wishful thinking at this point! 😊

I’m also eager to finally learn exactly what happened: Was there full invasion through the uterine wall? Did anything travel through the fallopian tubes? Did the cancer spread through the lymphatic system? How much of what was seen on the original imaging was actually cancer?

My MRI was not conclusive on some of these questions. My adnexa were clear, my ovaries were unremarkable, and there was no concerning involvement of my bladder. My most recent CT showed the same reassuring findings, with the other organs remaining clear.

For the first time in a while, I’m feeling genuinely encouraged. The combination of Taxol, Carboplatin and Herceptin appears to have delivered a major blow to this unwelcome intruder, and I’m hopeful that Herceptin will help keep HGSC in check moving forward.

I have plenty to live for, and I’m moving forward with gratitude, determination and a whole lot of fight left in me.

My outlook is better, my spirits are higher, and I’m determined to prove that Stage IV cancer can be beaten.

One battle at a time. One treatment at a time. One victory at a time. ❤️

Last year I had a 20cm cyst on my right fallopian tube, grade 2 stage IA endometrial cancer , PCOS, adenomyosis, hyperplasia, and an 8.3 cm fibroid had turned cancerous. I had two back-to-back surgeries because at first they thought I had ovarian cancer. But the cyst at the time was benign so they kept in my ovaries and I had a full hysterectomy.

10 months later, I’ve been feeling like crap having weird pelvic pressure and bloating and weight gain all of a sudden. I also started to have a little bubble form in my belly button right between two incision sites that I had.

Went and got a CT turns out I have a 21 cm cyst on the right ovary now. I also have a lump on my lungs and bowel and fluid in my abdomen. My doctors are concerned that my cancer is either back or that a new cancer is forming. Going in Wednesday to speak to my oncologist and to get more testing done. A literal year ago to today I found out I had cancer and now I found out again that I might have cancer. I’m 32 years old. This is not OK.

So I was diagnosed with stage 3 grade 3 endometrial cancer and had a full hysterectomy at the end of April. I'm now just a few days after my fourth and final chemotherapy round of paclitaxel and carbo platin.

The next bit of fun I have to look forward to is external beam radiation therapy and I have to be honest I'm more scared of this than I was of the chemo therapy. I'm looking at the possible side effects and I just don't want to do this.

I don't want to deal with burns on the outside of my skin. I really, really don't want to deal with burns across my vulva and my anus. I don't want my vagina to become short and tight and start bleeding. I don't want damage to bones in my hips.

While chemotherapy has horrible side effects, they pass, whereas it looks like the side effects of radiotherapy can be very long-term.

Can someone please ease my mind because I'm this close to cancelling the whole thing.

Please note I'm talking about external beam radiation therapy NOT brachytherapy.

Hi everyone,

​I’m really just trying to understand what the path to remission actually looks like, and I’d love to hear from people who have made it to the other side.

​If you're in remission, what made the biggest difference for you? Was it a specific treatment adjustment, daily habits, or something else that felt like the real turning point?(vegetarian since birth btw)

​On a side note, I just need to vent a little. People keep giving advice like "just stay calm," "don't get angry," or "don't hold onto regret." I get that stress isn't great, but we're human! No one is walking around furious or stressed out 24/7—normal human emotions just happen once in a blue moon. Hearing people talk like emotional perfection is the magic cure leaves me so confused about what actually needs to change in daily life.

​If you've been through this, what real, practical steps actually helped?