How did your neuropathy start?
Bare with me, this is long but going to try to make it as condensed as possible.
Female (37)
About two years ago I went into a primary doctor because I was experiencing some tingling in my feet. It also felt as if there was a hair tied around my toes or a string. It was an all day sensation but mostly after I ate from what I can remember. I thought that I had diabetes or something. I had recently saw this doctor for the first time ever for regular blood work and was told I was nearing pre diabetic. My bloodwork also returned with an elevated WBC.
When I saw this doctor and told her I was concerned about the pain being a sign that I’m now diabetic, she said there was no way that my neuropathic pain was diabetes related because she just saw me a few months prior and it doesn’t happen that rapidly. I went to another doctor because this one was rude and dismissive.
When I met with this new doctor. My symptoms had changed. I was feeling a pins and needles sensation all over my body, every few seconds in a new area, I described them to her as little electric shocks. She ordered an ultrasound and wanted to look at my spleen, not sure why. Nothing really came from that appointment. A few weeks later, I had went to urgent care for a very random and intense shoulder pain, they found no direct cause for my shoulder pain. They did blood work while I was there and called me to tell me WBC was elevated, this time, it was a little higher. I called the PMD and sent her that blood work, from there she suggested a see a hematologist. At this point, I was still having regular little electric zaps throughout my body and also had started to feel aches in areas of my body, like my wrist, my ankles and some times my finger. It would feel like when you hit your elbow, painful but made you want to laugh. It would only last for a minute or so and then go away.
My visit with the hematologist told me nothing. My WBC had returned to normal and my pains had started to slow down. I didn’t follow up with any other doctors after that. Today, I’m almost 50 pounds lighter, im active and healthy. I randomly get “the zaps” as I call them and frequently feel the pains in my ankles, toes and hands. Today I have a bad case of “the zaps” and don’t know if it’s still worth seeing another doctor because I feel like it’s not going to be something easily diagnosed and the only things I can read online all point to some kind of neuropathy