r/neuropathy

Sometimes when I go for a walk I feel that the burning sensation increases.

New symptom that just came up 1 week ago and has me worried. I’ve been diagnosed with RRMS for 14 years. Mostly mild with optic neuritis. I have the typical fatigue, cog fog, heat sensitivity.

Almost a month ago I had shingles. Again, mild - I think because I’ve had the vaccines. Mostly just really itchy. I took the 1 week of Valtrex as prescribed.

Fast forward to what started a week ago. I have places on my skin where I feel like I’m chafed or sunburned, but I’m definitely not. My back and forearms feel this way. These aren’t the places where I had shingles. Well, the back is close proximity. I just don’t know if it’s still shingles or if shingles has sent me into an MS relapse. Don’t know what to do and really don’t want to take another medication!!! Has anyone else experienced anything similar???

Any success w vitamins? Daily walking or stretching??? Low sugar diet???

32yo guy here. Diagnosed with neuropathy last year. I’m on meds, as most of us are. But, I really need off of them as I have nearly all side effects you can get.

I’m not diabetic and doctors don’t know why I got it… so I’m kind of at a loss and trying to self treat at this point.

Because it affects my feet so bad, it’s hard to work out or be active. I’m even at risk of losing my job because I’m struggling. I noticed as I lose weight, the pain improves.

Any diet or workout suggestions? I’m 5’10, 200lbs. I really want to see if shredding weight will fix this. Any input would be greatly appreciated, DMs open.

What is something I can do to relieve a flare up of my neuropathy

I have noticed I can not stand tight shoes, so I live in Crocs or flip flops or boots. Can anyone suggest some shoes that may be good for my new job as a nurse? I feel like I need more cushion than Crocs offer. Bonus if you can recommend any flip flops, most are so thin and hard😍

Hello, I have chronic nerve pain since 2023 from a dental procedure (the dentist damaged my trigeminal nerve, confirmed by several specialists), which resulted in post traumatic neuropathy. What supplements can I take to ease the pain or heal it? The pain is so bad it's hard to even eat, drink or talk. Please don't recommend kratom, I live in Australia so that's a no go.

About a week and a half ago I twisted my ankle, fell on my foot, and ended up injuring my mid-foot. I finally went to the ER yesterday after burning pain+limping, and since there was nothing on the x-ray, they told me it was neuropathy. They gave me a support boot and gabapentin.

For those who have had a similar experience, how long did it take for you to fully recover?

For context, after an advil+tylenol+gabapentin combo, I can walk perfectly.

Where did your injury occur, how long did it last, and how long did you take to treat it naturally by taking vitamins?

My dad(71) has tried many things. B1, lipoic acid, lyrica, qutenza. Right before we were going to try the electric shock implant ( which supposedly is very successful) the dr at a pain management center had him take something in the opiate family called Buprenirphine, which worked! Before this he was resorting to oxycodone which for obvious reasons is bad including lots of Tylenol in it however it barely worked for more than a few hours. Anyways hope this helps someone who is desperate. Check with your Doctor obviously. Although his Dr didn’t do much except prescribe oxycodone. We had to go to a doctor at a pain management center for this.

Almost immediately his pain is gone.

I have big problems with my legs. I'm 49 year old. They feel soft and weak, like I'm walking on cotton or sponge. I don't feel the ground properly. Even though I still have strength and can walk and do squats, my legs feel mushy. When I get really nervous or stressed, it gets even worse – it feels like I'm sinking into the ground. All tests came back normal – MRI of cervical and lumbar spine, brain MRI, EMG, nerve study, veins ultrasound, ears checked. Everything is clean but my legs feel like this every day. I want to add that my feet soles are soft, not hard and stable

So I’ve been trying to control my foot neuropathy for quite some time. I’ve done it with tens machines. I’m gonna try it with the PEMF machine soon but right now I’m taking two supplements from Dr. Berg, which is been betaine and alpha acid. I take it four times a day. I have no side effects from it and it truly does help with the nerve pain and tingling.

Hi, I was just wondering if anyone is on medication for neuropathy that isn’t anti seizure meds, amytriptaline or cymbalta?

Hi guys,

So I was just at the neurologist and he suspects my feet pain may be genetic neuropathy. We are taking the appropriate next steps as far as testing goes, but Im just seeking a little solice in community here because the idea of having an incurable, progressive disorder is a tad worrying to me as Im only 25.

I have equal pain in both feet that has been progressively getting worse but its onset was so gradual I never took note of it so I dont know for sure how long I have had it. Maybe about 10 years.

If I stand or walk for longer than a couple minutes, my feet get increasingly painful. Until the pain is so bad, even hours after im off of them the pain is enough to keep me up at night. I also get tingling sensations pretty much constantly now and I have started getting random sharp shooting pains near the soles every now and again.

Im not looking for a diagnosis, my doctor can handle that, but Im just seeking a little reassurance that this isnt gonna be worst case scenario cant walk in 10 years kind of thing.

Anyway, TIA!

I had a nice job, 6 figures, but got laid off early 2025 after I was diagnosed and started having physical/mental issues…

Primarily, I work in data and analytics, so I’ve had a few contract jobs since then, but this market is so flooded now that it’s so hard to lock down a job these days…so I’ve been thinking about going into the trades.

Are there any jobs someone like us could actually hold down? I can’t stand for long, or lift heavy material (34m), so I’m always looking for desk jobs…but if I switched careers, do yall have any suggestions?

I'm on gabapentin while waiting for a diagnosis. Two tests down, one more to go. Followup on June 1.

It helps but not enough when I'm at work. Working makes everything hurt more. I used to like my job but I hate being here now but I have to pay bills and keep my health insurance. Typing on my phone doesn't hurt like typing on the keyboard does. Not sure why.

So I've had peripheral neuropathy for many years and it has been gradually increasing. A couple of years ago I noticed my legs had started shaking whenever I was standing up. I had also noticed a problem with keeping my balance.

Then a couple of months ago I fell because I lost my balance. I was able to get up off the ground, although it was difficult. I went home and started noticing pain in my side with breathing. I thought I might have cracked a rib so I called my doctor's office and got an appointment that day. When I went to leave for my appointment, I stepped out my front door and immediately my leg gave way and I fell again. This time I couldn't get up and ended up having to call 911.

Since then I've fallen probably two or three more times and each time I've had to call my son to come help me get up. So I got a walker, but even with that I can barely manage to get up from a chair.

Is this probably from the neuropathy? It's got me quite worried.

I get this numb itch that will mostly creep in around the times I'm up for about 6-12 hours (or all day or soon). Im itchy everywhere, but when I itch it's like I can't feel it, or it's delayed.
At the same time sometimes my muscles feel almost heavy, stiff or if I accidentally bump a even a little into something it hurts more than normal. I will start to become very stressed, overstimulated, sometimes have derealization, unless I take klonopin to calm things down.
l've tried to stop this pain with other meds but still haven't found one yet seeing pain pharmacist soon.
Anyone have a similar feeling? Been having this since I was 18.

This is what my doctor thinks I have but we haven't been able to figure out a cause. I can't really stand or walk and get pre-syncope after sitting up for 20-30 minutes.

We ruled out pretty much everything as a root cause except rare stuff. Is it normal to be this debilitated? It's progressing too.