Doctor thinks it's unlikely I have one, but I swear I can physically feel it
For some background, I developed minor issues swallowing with a persistent dry cough/nose/throat for the last year or so. This later developed into major issues breathing all of a sudden back in October and after months of things going from bad to worse (severe throat tightness, muscle spasms, chest tightness, panic attacks for no reason despite no history of ever having one, etc) with no answers, we finally managed to narrow down reflux as a big contributor. Tests for asthma were negative other than some minor issues with gas exchange, and trying an inhaler made no difference, especially since I was having trouble inhaling and not exhaling.
But taking steps to manage that reflux made a lot of the worst symptoms go away. I was having severe issues inhaling due to what I now suspect was VCD being caused by acid hitting my vocal cords and causing them to spasm/partially close for hours on end. The pulmonologist I saw also thinks this was likely.
Switching to a GERD healing diet, sleeping upright and avoiding food 3 hours before bed made a huge difference within like 2 weeks, and things have slowly improved since then over the last 8 months. Literally within 4 or 5 days of doing this, I stopped having the vocal cord spasms, although other symptoms like the throat/chest tightness took months to start improving significantly.
For me, it was also silent reflux/LPR with no heartburn. It seemed to flow straight into my throat/sinuses instead, and x-rays showed old/mild scarring in my lungs, so we think I was probably micro-aspirating acid in my sleep for years (I would often snack on chips or yogurt right before bed).
In addition, I found out that a lot of the most extreme symptoms I experienced early on are pretty textbook for severe GERD because the acid irritates the vagus nerve and causes your body to start freaking out.
One thing is not really getting better however, and it's the fact that I can't really take a deep breath when I try to inhale, and my breathing still takes more physical effort than it should. I should add that I had no history of asthma or allergies growing up, and no problems breathing up until very recently. Outside of snacking, I also eat a very healthy/bland diet mostly consisting of brown rice, plain steamed chicken breast and vegetables.
The biggest thing is that, since all this started, it's felt like there's something in my abdomen that shouldn't be there. Like there's a balloon in there that gets squished when I bend over or move around too much. I never felt this sensation before October of 2025. The sensation gets worse when I'm full after a meal, and it becomes noticeably harder to breathe. Also, if I do something like sit down very suddenly, it would feel REALLY weird and unpleasant. I don't know if I'd call it painful, but it just didn't feel right.
That part of my abdomen was also very stiff and felt completely locked up for the first few months when this all started like the muscles there were stuck or something.
My doctor is skeptical that it's a hiatus hernia because I'm still under 40, and I'm skinny and don't fit the usual risk profile, but I also have a chronic GI condition after an ulcer bleed that caused near permanent constipation and led to me straining very severely on the toilet for the last 10-12 years (we're talking 30+ minutes of straining to have a single bowel movement sometimes to the point where I'm nearly in tears on bad days). I suspect that constant heavy straining is what did it.
It would also explain why I suddenly developed such severe LPR seemingly out of nowhere.
I'm waiting on an appointment with a GI to investigate further, but any thoughts in the meantime?