u/Smallcutewolf

Anyone sees improvement on this medicine? Can you please share experience?

Hi..so I have this big port wine stain from knee to back on my right thigh. I had 10 V beam laser removals done, spent thousands and it didnt help at all. I went to another dr who tries Excel V and Derma V lasers combined with vein sclerotization. Im 5 months after 1st therapy and it looks like my thigh changed tissue like lipedema now...also above knee like there is lymphedema...dr advised me to take meds and wear compression. I also had special massage done for lymph. Im afraid! What if it will stay like this?? Is anyone here with port wine stain?? He says my thigh was already 2.5cm bigger because inner vein is wider 0.5mm than its supposed to be. Im frustrated beyond imagination :( Im 40 and cant get this done! I dont want to live with it! Its dark violet and I have severe varicose veins on it its horrible :((( He says it could be reaction to laser due to EDS...what if it gets worse with continuos treatment?? V beam didnt do this...

I cant do this anymore, this is since november 2022 covid shi*

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Im in pain. Drastic pain of joints. It always gets worse before period. Diagnosed with post covid, hEDS, fibromyalgia, HIT, allergy to cows milk and soya, intolerance of lactose and gluten. Since april GERD and/or bile relux. I have anal wall prolapse many hemorrhoids Iv been treatin since 2024. I have slow motility of stomach and intestines. I wont lose weight unless I literally starve. 160cm/70kg I lost muscles because the more I move the more pain Im in. What kind of life is this? 4 years of pain, chronic fatigue, migraines, depression and anxiety, GERD. When I swallow I can feel something like narrow esophagus, I also often have pain inside, like women organs plus when I have to...on toilet. No sex for me anymore. I have been like this for 4 yrs. Im slowly losin hope. 40 and doomed. I didnt ask for this. I dont want this. They keep tellin me it gets better. No it doesnt. It gets worse and worse 😔 I also have no family, no safety net, 50% disability very low and life in poverty, everything here too expensive. My right thigh has huge port wine stain, one vein is 5mm bigger and whole thigh is 2.5cm bigger than left one. Neverending sclerotizations and laser drained money of me too. I cant do this anymore. 😪😪😪

Im in pain. Drastic pain of joints. It always gets worse before period. Diagnosed with post covid, hEDS, fibromyalgia, HIT, allergy to cows milk and soya, intolerance of lactose and gluten. Since april GERD and bile relux. I have anal wall prolapse many hemorrhoids Iv been treatin since 2024. I have slow motility of stomach and intestines. Lipedema - 160cm/70kg and wont lose weight unless I literally starve. What kind of life is this? 4 years of pain, chronic fatigue, depression and anxiety and now my stomach is burnin, throat is burnt, I cough a lot, it hurts. When I swallow I can feel its like narrow or what, its been like this for 4 yrs. Im slowly losin hope. 40 and doomed. I didnt ask for this. I dont want this. They keep tellin me it gets better. No it doesnt. It gets worse and worse 😔

Enooough. When will this stop? On top of IBS, GERD, cows protein and soya allergy, slow motility, HIT/MCAS, lactose and gluten intolerance I tested positive for SIBO today. I have post covid, fibromyalgia, migraines, hEDS. This torture never stops. I am nauseous, bloated, I have constipation, then diarrhea, GERD, this started after last covid in april (I lost smell and taste, luckily it came back). HOW am I supposed to funcion normally? I already have 50% disability but I AM NOT able to work anymore, like at all. I just want to give up.

Iv been in LC since 2022 and got diagnosed with trifecta. Every day is shit. My life is shit now. Fibro pain all over, GI problems, IBS... is this forever? Im 40. Whats the point. I live among 4 walls. I struggle so much. Even cleaning or cooking gives me chronic fatigue. Im losing faith. Someone told me to get Inuspheresis. I dont know...i dont know how to live like this