u/Snoo_45369

January I found I had a tumor on my kidney, MRI to verify. Four months later, another CT... yep it grew. So surgery scheduled but dr didnt like the previous CTs and sent me to his place. Third CT showed an additional tumor in my stomach- GIST cancer. Tuesday endoscopy and biopsy. Gastro Dr wants an ultrasound endoscopy this coming week to see how deep in the stomach it is. So dealing with trying to get ready for kidney tumor surgery July 16th, recovery and then stomach tumor removal surgery and recovery. Good news, caught them both early. Im having a hard time finding people who have both at the same time since GIST is a rare cancer. Im wondering if anyone else has had both of these cancers at once. Im curious to treatment plan, meds, etc. Its a long shot but thought i would ask.

So, just met with anesthesia and surgery is July 16th. They told me that the entire procedure (how long the surgeon booked the operating room) is 8 1/2 hours. Is this normal? Its supposed to be a partial nephrectomy but I also have GIST (rare stomach tumor) that will be operated on later. Just curious.

Hey, just ordered this suv and will be delivered Monday. It has the digital light package, is part of the animation restricted in the USA and if so how do you unlock it?

So surgery date is set for July 16th. Dr wanted a 3rd scan from the place he sends all of his patients too. After 2 previous CTs and 1 MRI, they found a tumor on my stomach that is 3.9cm. They believe it is GIST but getting endoscopic to get a biopsy Wednesday. So, part of the lucky 2.2% who get both of these separate cancers at the same time. Im hoping both Drs can. Go in during the same operation if not Im looking at surgery, weeks of recovery another laparoscopic then weeks of recovery. But hopefully the kidney cancer is RCC and I only have to have scans and with the GIST, we caught it early enough where it would be removed and pills for about 5 years after to stop growth of the harmful cells.

Anyone else diagnosed with 2 cancers, completely unrelated, at the same time? How was it for you?

So had my second CT scan and it showed a growth from 1.4 to 1.6 in 5 months. Met with oncologist today. He said it is more than likely rcc and gave me my options. I told him I want it out. He said I had to weigh the risks of surgery of partial nephrectomy with waiting to see if it grows more. I explained that I live with this everyday hanging over me. My mom died within a month of finding out she had lung cancer a few years ago and my dad died a year ago March after fighting 4 years of esophageal cancer. I know these cancers have nothing to do with kidney cancer. He went over possible complications and asked what I would like to do. My 2 adult children were with me and they both said to wait and watch. I said no, I want it out. Ive had people on this forum say their tumor was small but ended up being aggressive. I have a feeling that with my luck, ill be one of them. So we decided to proceed with surgery and I felt so good about my decision, like a weight lifted off me. But now, sitting in my living room looking at reddit, I have to say that I do have some doubts. Has anyone else had to wrestle with making this decision? Do you wish you would of waited or went ahead and proceed on surgery?

So, having my surgery mapping scan at the end of May. Last mri in January the tumor was "1.5 x 1.0 cm solid mass lateral midpole left kidney with postcontrast enhancement. This does enhance following IV contrast infusion. On the prior CT scan, Hounsfield units of 78, up from 28." So, looking at this I can say that it looks like cancer. It is probably stage 1 rcc.

I keep telling everyone that I caught it early, its no big deal. Cut it out and ill be fine. Up to this point in trying to help my family and friends feel better, I feel like Ive convinced myself that it really isnt cancer. As I get closer to surgery, my subconscious is pushing me to face reality that I do have cancer.

Has anyone lived with the denial to finally have it hit them when they are at the point of taking action?

Found the tumor in January via CT. Followed up with MRI and oncologist. Planned for a 3 month monitoring to deal with other health problems with CT in May. Knew I needed to schedule CT, well they called me yesterday to schedule for May 29th. I guess this is for mapping and surgery soon after scan. Over the past 2 months, Ive been able to emotionally distance myself from it but now its more real. Thank you all for your contributions to this space, its helped me to make more informed decisions. Hang in there everyone.