u/Spare-Mud-8192

hello

Please help me how can i create a false negative result on a helicobacter pylori breath test.

Explanation: I want to get xolair for long covid, mcas, but the doc only gives it to me, if the h.pylori test is negative. unfortunately it came back positive for me, but i know that it's not the cause because my pre-covid and post-covid MCAS are night and day different. i don't want a 2 week course of antibiotics because my gut microbiome is already bad.

so please give me any advice how can i create a false negative

People who coming here to write the "talk to your doctor" and "you shouldnt do this" comments please dont bother, thank you

Hello,

People who had success with xolair, especially the ones who use it for MCAS,hives,longcovid,pots, how long did it take you to see results ?

Thank you !

my mcas went nuclear from covid last year. I'm now with a specialist who would prescribe xoliart for me. Before I could get the insurance pay for it I had to do some tests. One of the tests was for helicobacter pylori and it came back positive.

Has anyone had long covid symptoms caused by this bacterium? (Hives, pots, inflammation, anhedonia.)

Honestly, I don't want to go on antibiotics because they've always done me really bad in the past. My doctor is on vacation for three weeks so I'm gathering information until then

Xolair for post covid mcas

Anybody is taking xoliar for post covid mcas problems?

If yes did it help with the followings:

Urticaria from heat

Adrenalline dumps and panic from nothing

Depression, lack of motivation/libido

Neuropathy

Pain from inflammation

POTS

Thank you for your answers!

Anybody is taking xoliar for post covid mcas problems?

If yes did it help with the followings:

Urticaria from heat

Adrenalline dumps and panic from nothing

Depression, lack of motivation/libido

Neuropathy

Pain from inflammation

POTS

Thank you for your answers!

I used to have a normal blood pressure all my life. Then covid came and long covid and my blood pressure is high ever since. 135-150/70-75 so its high sys and low dia. I took 10000 nattokinase yesterday and it calmed me down. I wasnt nervous like im Always and it turned it around. It raised my always low dia to 80, and lowerd my sys to120. So after 1.5 years I had normal blood pressure.

2 questions:

1. What is going on? Why is it helping ? I heard about microclots and damage to smaller veins, but I didn't read studies.

2. Today I woke up with a headache. And my sys was 118, my dia was 87,(so natto completily turned around the numbers)which is high based on the blood pressure machines evaluation. Is it possible I over did nattokinase?

Thank you ! And please share your own experience with nattokinase

Had a friendly meetup with a bulgarian 22 years old guy, he carried me the whole map and I accidently killed him. If you are reading it Man im sorry

​

Hello,

Did anybody who has normal iGe and normal tryptase had success or at least improvement with xolair?

(I am running out of options, and xoliar is officially for lowering iGe, and my iGe is normal, but mcas is so weird I was thinking maybe)

Thank you !

Hi,

I started to feel really good in the last couple of days and i am not sure why. One thing I do is started taking ldn (0.7 mg) about a month ago. The other thing is I took huge amount of vitamin D and K(12000 iu D3) a couple of times. I didn't have any food reaction hives őr neuroligacal problems for days, I even skipped my cromolyn today and nothing happened. I am very confused because for some reason I believe it is the vitamin D, but it is also possible that it took some Time for the ldn to kick in. I booked a blood test for friday so I can check my D vitamin levels. Did any of you experienced similar with vitamin D ?

Thank you

I am suffering from long covid for 1.5 years. MCAS, and neurological problems are the worst. POTS is also bad. Low mood low libido bad sleep, numbness. The first thing I did after covid, that I went to neurology and told them I want to know is it MS or not. They did an MRI and EEg, and they said its "clean". After more then a year deep down im still scared of MS. I felt like They didn't really take me seriously. But then I come to this groups and many people telling me they felt the same and they didn't get MS diagnosis either. Anybody else in similar situation ?