Mono itching w no rash and intense nerve/ muscle pain
Hey everyone, I really need some reassurance from people who have been through this. I am a few weeks into a confirmed EBV/mono diagnosis, and I am experiencing a terrifying wave of new symptoms.
My main question is: Are severe, widespread body aches and an intense, rash-less, highly reactive itch normal for this stage? Here is my exact sequence of events:
• The Start: It began with a fever and a swollen lymph node. My doctor misdiagnosed it at first and gave me Zinnat (cefuroxime, an antibiotic).
• The Itch: Within days, more nodes popped up and I developed an intense, body-wide itch that started on my scalp. There is absolutely no rash, but my skin is completely hyper-reactive—the second I touch or scratch it, it flushes bright red. I would intensely itch and it started to fade but it pops back up from
Time to time
• The Steroids & Throat: I stopped the antibiotics on the 4th day, took two 100mg cortisone/prednisolone shots over the next two days, and then hit a brutal throat phase with severe white pus tonsillitis, neck pain, and sleep issues.
• The New Phase (Last 4 Days): My throat symptoms have finally completely resolved, but now I’ve been hit with overwhelming, brand-new symptoms. I have severe, radiating muscle and nerve pain all over my body—specifically in my neck, arms, sides, legs, and shooting through my shoulder blades. On top of that, every time I try to drift off to sleep, I get this terrifying sensation like I am fainting, and my body violently jolts me awake in seconds.
My blood work shows very high systemic inflammation (CRP is 17.4 and ESR is 29) and elevated liver enzymes (ALT 160.6, AST 59, Alk Phos 200.5), but my hemoglobin and basic counts are normal. Also my TSH was high chancing from 8 to 5 in the same week
Has anyone else had this exact sequence where a massive wave of moving nerve/muscle pain and reactive, rash-less skin itching hit after the core throat symptoms resolved? Is this widespread aching normal, and how long did it take to finally fade?