r/Mononucleosis

Mononucléose ou vih

Bonjour,

Je vais vous raconter mon histoire et où j’en suis aujourd’hui avec des dates et des chronologies pour que vous puissiez m’aider.

Je suis un garçon de 22 ans qui a beaucoup parlé avec des femmes, de mes 18 à mes 22 ans actuellement, mais je n’ai jamais dépassé l’étape des préliminaires (car j’essaye de faire de mon mieux étant donné que je suis croyant et que le seul rapport sexuel que tu peux avoir est normalement avec ta future femme quand tu seras marié).

Vers mi juin, j’avais un peu une période pas de dépression mais j’étais un peu dans le mal (par rapport à ma vie professionnelle et surtout de l’anxiété car je ne sais pas ce que je veux faire plus tard). Et je parlais à une fille que je n’avais pas encore vu dans la vraie vie mais qui était ouverte à que l’on se voit et donc m’a invité chez elle. J’étais puceau à ce moment là mais elle ne le savait pas et vu l’état un peu compliqué dans lequel j’étais à cause de mes soucis professionnelles, on a beaucoup discuté et la soirée a un peu dérapé.
On a commencé les prelis etc, et il y’a ensuite eu un rapport vaginal sans protection. C’était mon premier évidemment que je ne lui ai pas dit et j’ai un petit peu regretté au fond de moi car je voulais être depucelé avec ma première femme marié .

Le 1er juillet , soit 5 jours après ce rapport, j’ai senti au travail une boule des deux côtés de l’aine comme une gêne, ça m’a paru bizarre un petit peu mais je n’y ai pas trop porté attention au début. Sauf que le soir quand j’étais au sport, j’avais de + en + mal et s’est ajouté à ca comme une sorte de sensation où je ne me sentais pas bien.

Je suis rentré chez moi j’me suis cloué au lit j’avais de la fièvre , des frissons , et ce qui était en fait des ganglions au niveau de l’aine.

Le lendemain je suis parti chez le médecin qui m’a dit que ça devait être une petite infection virale, mais rien de grave et que ça devrait passer. Il m’a quand même prescrit des prises de sang de toutes les mst et ist qui ce sont avérés négatifs.

Le problème est que pour le vih, il y avait marqué que le dépistage de test était fiable à 6 semaines et sinon ce n’était pas fiable à 100%.

Je suis donc rentré dans un stress intense pendant plus d’1 mois car en regardant les symptômes sur internet je me suis dit que c’était sûr que c’était le vih.

Pendant les 1-2 semaines après le début des symptômes, j’avais un sentiment de blocage dans la gorge mais pas très douloureux , et en me rasant j’ai eu l’impression d’avoir des boules au niveau de la mâchoire et cou, parfois un petit mal de tête , mais surtout la fatigue.

J’étais très anxieux à l’idée d’avoir le vih, que j’ai décidé de recontacter cette fille, et elle me dit qu’elle se sent fatigué et faible comme si elle n’avait plus d’énergie .

Et le j’étais dans un état je ne vous fait pas dire, j’étais sur à 1000% qu’elle m’avait transmise le vih.

J’étais déjà en train de regarder la vie dans laquelle j’allais devoir faire face en ayant le vih.

La fille en question est donc parti faire un test de mst à ma demande car je lui ai expliqué un peu les craintes que j’avais. Le 22 juillet, elle est négative au test 4 e génération. Gros soulagement. Car cela fait 28 jours après notre rapport , et elle m’a dit qu’elle n’a plus eu de rapport depuis le mois de mai avant d’en avoir avec moi.

Donc je me suis tourné vers d’autres virus et il y’a celui de la mononucléose qui est beaucoup revenu, sauf qu’aujourd’hui je suis dans une situation tellement anxieuse car mon cerveau arrête pas de faire 1000 scénarios en me disant imagine que j’ai peur d’aller me faire tester pour la mononucléose car si il est négatif je vais stresser et penser que c’est le vih.

La fatigue persiste plus d’1 mois après les premiers symptômes, et j’ai aussi un essoufflement important à l’effort depuis les premiers jours. Au point où quand j’avais joué au foot mes yeux voulaient se fermer tout seul.

Tout ça pour dire que je n’ai pas le courage d’aller faire quelquonques tests , je suis parti voir un médecin lui parlant de ses craintes mais il m’a dit que c’est biologiquemet impossible qu’elle ai pu me transmettre le vih le 26 juin et être négative au test 4 e génération le 22 juillet. Il m’a dit que mon tableau ressemble fortement à une mononucléose, car elle laisse les séquelles de fatigue plus d’1 mois après . Mais malgré ça , j’ai très peur et j’ai l’impression que je l’ai.

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u/Key-Notice5866 — 1 day ago

So worried about the next couple of months

So I’m on day 6 of this horrible virus, I went to the doctor yesterday to get it checked out, originally thought it was just a throat infection, but pretty sure it’s mono (all my symptoms synch up) and I’ve never felt worse than this. My neck and throat are so swollen, my tonsils are like two golf balls in the back of my throat and I’ve had fever up and down, and a nonstop headache. I have zero appetite, I can only (barely) eat yoghurt, ice cream, and drink milk, water and tea. It’s gotten to the point where I can very barely swallow my spit, and I’m really worried it will eventually get to that point.

The thing I’m worried about and try not to stress about too much, are my studies. I’m on my last year of my master degree so it’s a very important year, and I just feel a little hopeless reading the stories of other people who have mono. I’m studying teaching, and at my uni it’s a minimum 80% attendance to be able to take the exam, and we have only 1 day a week at uni. This is of course great because it gives me time to hopefully recover, but also means I can’t have many sickdays before I reach the 20% attendance limit. I just don’t want to delay my studies because it’s the last year and everything has gone smoothly so far. Of course if I don’t recover and have to skip, then it is what it is. Has any uni students gotten this RIGHT after semester start, how did you manage it combined with studies, and how long did the worst period last?

Also just wondering if anyone has any tips to relieve the stress, and also to reduce the pain in my throat? I take paracetamol and ibuprofen mainly for the pain and it has helped with the fever, and my doc recommended some temporarily pain relief medicines for my throat to make it easier to eat, which I feel hasn’t really worked. I try to sleep when I can (when the pain isn’t so bad) but I don’t really get more than maybe 2 hours of sleep whenever I do try to sleep, but I do take naps at daytime which I’ve read is good to do. I just love being out and about and being active, working, being busy, so it almost feels like I’m in jail when I have to stay at home like this and I just hope I won’t go insane. Again, any tips are much appreciated <3

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u/mamapasta_ — 1 day ago

Untreated mono can get really bad.

I saw a post from r/askanything and the post was, "What is the most sick you've ever been?" I tipped my experience there but I thought I'd share it here too since it was a crazy time.

I had mono in high school. my parents always thought I was faking or exaggerating symptoms so they refused to get me help or let me take sick days. It started off as like a cold. I went untreated for almost two months and it progressively got worse. I was also in marching unit at my high school and we were about to go to a HUGE state competition, so I felt massive pressure to push myself.

I kept telling myself that it was just a bad cold even though I knew deep down that this felt more serious than that. Not like I could do anything about it though. My parents did not give a single fuck. So i just tried to push through.

safe to say I missed it. I would've been able to make it if I got help earlier. After marching band practice one day, the DAY BEFORE MY COMP, I fell on the floor in excruciating pain and exhaustion the moment i got home. Everything in my body ached. I was incredibly confused and disoriented. I couldn't get up on my own. I had a feeling of needing to pee and it just came out, it was blood. It was really strange and scary, being too weak to move a muscle or even call out for help. I was pitifully calling out for my dad who was upstairs in bed.

My dad didn't find me for like an hour. he took me to the ER when he did. I was so dehydrated that I couldn't do a urine test even after 3 IV bags. I got so skinny too, my weight was 30 pounds lighter than it was before. I started manically giggling and had so much energy after the IV fluids, and so hungry. I asked the nurse if she gave me drugs and she said no. This crazy energy I was feeling was from being hydrated once again lol.

My dad kept saying sorry and how he felt so bad. I have not forgiven my parents and never will. They did me so wrong. I missed an event that was so important to me and I unnecessarily suffered for much longer than I should've. it took me awhile to recover, and my energy/immune system is just fucked now. what started out as feeling like a cold was something that destroyed my body and almost die from dehydration.

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u/Sendpiecks — 2 days ago

Mono symptoms timeline

Hi all,

I was diagnosed with mono on the 7th July. Symptoms from the 29th June - so I’m around 7 weeks in as I went to ER where they diagnosed me

For the first few weeks I had the following

  1. Fever (lasted 13 days)
  2. headaches - lasted until the fever ended - and then sporadic ( haven’t had any in the last 3 or so weeks
  3. night sweats - lasted 3 weeks
  4. High resting hea

rt

  1. rate +100bpm. Resting has come down but seems like I have a pots situation still
  2. body aches - subsided when fever stopped
  3. fatigue - still have but I’m maybe 80-90% depending on what I’m doing but I’m def not full strength. But I don’t sleep early anymore. It’s more my battery can’t get full
  4. post nasal drip with some mucus/coughing. No sore throat at all (lasted 1-2 weeks)
  5. Back ache and some chest pain. Maybe cos my spleen was englaged. Still might be but I haven’t seen a doctor again
  6. neck seemed sore but no visuale nodes on my actual neck. One node under my jaw seems bigger. Still is the same but no larger than day 1. Doctor hat hospital said it was reactive and not of concerning
  7. high liver enzymes - ast 210, alt 489 from the 7th July. On the 15th, these were 50 and 155. My crp was 47 (3rd) and reduced to 2 on the 15th

My question is - recently (last two weeks) I’ve developed a mild sore throat maybe 1 -2/ 10 but it’s there and it’s annoying. Im also coughing and and mild phlegm. It doesn’t feel like a cold. When I looked in the mirror the back seems red ( I used my phone light). I’ve never checked it before like that but now I’m obsessed and check every few hours. I also never had a sore throat during the first month. Has anyone has something similar between weeks 5+ and for this long. I’m worried coz I have health and GAD (not medicated), my mind is constantly on my throat and my swallowing .

I also seem to have some sort of post viral POTS coz my heat rate jumps when I stand and seems more reactive. When I sit it’s usually 75 or so but jumps as I walk to over 100-120 from just doing nothing. I used to run 20km a week so that’s another depressing aspect of my life atm

Thanks for responding :)

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u/nikolas97531 — 2 days ago

just so defeated

i’ve been sick since the 4th of july but for a long time i didn’t know what i was sick with. it started w very odd symptoms- just feeling out of it, general body pain. passing out once, extreme coldness or hotness but no fever, pain only when swallowing but no other time, ear pain, etc. It was so unusual. On july 19 i woke up and my voice sounded muffled and almost as if i was choking to get words out. I also felt nauseous. I checked and saw my tonsils were really white.. i assumed i had strep. When i tried to lay back down my tonsils were pulsating and i could genuinely feel my airways closing- i’d wake up gasping for air many times throughout the next week. I couldnt chew or swallow or eat. Eventually i went to the ER and they prescribed me dexamethasone for a week. I went to my PCP as well where i tested positive for both mono and lyme disease .. i also got a cat scan which showed my liver was damaged and my spleen very large. bloodwork obviously rlly wacky but just for things that effect my liver. my dr thinks that the lyme disease was a false positive and decided against starting me on treatment for that. is that common?
by beginning of august i felt so so much better but immediately after my rx for dexamethasone ended all the throat symptoms came back, i suddenly have 10+ cankersores?, extreme swollen glands (i went back to the dr and the first thing she said was asking me why my neck and face was so swollen?) and so did this new absolute exhaustion feeling and leg pain. also vision feels very blurred? it feels like im right back to the beginning of this. i am very defeated and worried abt everything happening to my body.. should i be really worried abt my liver ? is it rlly common to also test positive for lyme? i dont feel as tho i overexerted too hard but my symptoms are so severe again i must have..
I feel honestly just so defeated and sad about everything.. :(

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u/Emergency_Bid5299 — 3 days ago

mono diagnosis

hi guys! i hope im allowed here. i’m 16 and i was just tested and came back positive for mono today. can anyone just tell me what to expect?? i have a boyfriend and i don’t want this “long lasting illness” as i hear it to put a bump in my relationship. please i can’t take this my throat feels like it’s closing. and wdym im going to have the epstein-barr virus for the rest of my life????

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u/Sad_Car9318 — 4 days ago

Been sick for 3 weeks, negative mono test or positive? Help!

I have been sick with a sore throat only on the right side, that also hurts down into my neck area. Very low grade fever on and off, and a swollen lymph node on the right side. Pretty heavy fatigue and just overall not feeling that great. My throat only hurts when swallowing, it's a burning sensation and it's localized just below my tonsil and down into the upper neck on that side.

I saw my primary care provider who tested me for strep throat, covid, flu A and b and all were negative. Threw me on a course of augmentin (that did nothing). I followed up with an ENT a week later who scoped down my nose into my throat and said everything looked okay. Ordered an ultrasound on my lymph node, that also came back unremarkable. I had blood work done to test my thyroid and to test for mono. I had already been sick for a little over two weeks when I got the blood work done. I was absolutely sure I was going to have MONO (EBV).

I got my blood test results last night, and I did not understand what they meant, I googled them and Google told me that my ebv test was negative for a current infection. Only shows past antibodies.

Can anyone help decipher what the actual blood test shows? My doctor will eventually explain it to me but they are known to take their sweet time! I am so tired of feeling like crap. Thanks a ton.

u/Koonlover — 4 days ago

Nonstop headache turned out to be mono; looking for relief

Please excuse the long post; I’ve never posted on here before but I am so desperate for relief. For a little background: Back in the middle of July of this year, I (23F) began having headaches that no medications would touch. It started while on a hike with my boyfriend where I noticed I was getting a pounding headache any time we walked uphill. We hike a lot without me having issues so this was strange for me. I assumed I was dehydrated and drank a ton of water. Over the next week, the headache would not let up, but would simply change locations. Sometimes it was in my ears, sometimes in the back of my head, sometimes in my face. It got to the point that I could not even sleep on my back anymore because the pressure it put on my head (occipital nerves?) would make my face start to hurt.

After many trips to the PCP, the neurologist, the ER, and a brain CT scan and MRI, they all kept telling me it was just a bad migraine. I did not think this was the case as I get migraines and usually the Sumatriptan that I take as needed works for them. Additionally, my migraines were always mainly in the face and not pressure headaches. The migraine cocktails at the ER didn’t do anything either. Eventually, an ER doctor finally heard me out and tested me for a bunch of viruses.

As you could’ve guessed I tested positive for mono. I was told to take it easy and stay hydrated. Unfortunately, I’ve noticed that my #1 trigger is laying down. The longer I put pressure on my head, the worse I feel when I wake up. It’s a stiffness in my neck and a throbbing headache. Sitting to standing causes an additional rush of throbbing in my head. Five weeks after my initial headache, I don’t feel any different. Some days are better than others, but on the days it’s bad, I can’t do anything it seems and I’m nauseous from the pain. I don’t sleep longer than 4-5 hours each night because any longer and I’ll wake up in excruciating pain that lasts all day. I also can only sleep on my side as sleeping on my back immediately hurts my head.

I also would like to note that I have not had any of the other “typical” symptoms of mono: no sore throat, fever, etc. I have body aches occasionally, pain (not swelling) in my lymph nodes, and vomited once, but that’s it.

I guess I’m just looking to see if anyone else has this issue and if so what you did to relieve the pain. It’s frustrating that NSAIDs don’t touch it and frustrating that lying down makes it worse. I’m assuming this is all from mono.

TLDR: Bad pressure headaches from mono worse when laying down; looking for relief.

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u/Numerous_Boat8887 — 5 days ago

telogen effluvium

did anyone else experience severe hair shedding aka telogen effluvium after having mono? i’ve never had issues like this and it’s handfuls every time i brush my hair or wash my hair. my derm said it’s likely from the mono coupled with the stress of losing my mom in february but was hoping to connect with people who had TE post mono

u/jesscdeacon — 5 days ago

Athletes with Mono

i’m a college athlete that got diagnosed with mono in early august. i had the stereotypical “bad” symptoms a little over a week and then have been dealing with fatigue ever since. when could i expect to be back to a full college training program (training twice a day for around 180 minutes combined)? is it typically a long road back?

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u/rowwill — 5 days ago

Smoking weed after having mono

So i am recovering from mono now and i was wondering if it is safe to smoke weed? I had mono for the past week. I still have an enlarged spleen and liver.

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u/RuffRidersEvo — 6 days ago

16 Year old daughter has mono… What to do?

So my 16 year old woke up with a puffy face yesterday and white spots all over the back of her throat. Checking ChatGPT, I kind of figured it was either mono or tonsillitis. We live in Canada so going to the ER always has an extra layer of complexity but we ended up going, and after six hours, a doctor saw her and said it was mono (we did the strep test at the pharmacy). She was told to hydrate, take it easy, drink fluids etc and alternate between Advil and Tylenol, but is there anything else we can do? Maybe something natural to help with some of the symptoms or to kick start her immune system in some way? Reading some of these posts are pretty concerning, months of recovery etc, so I’m hoping that there maybe be some out of the box alternatives. Thanks in advance.

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u/drychardonnay88 — 6 days ago
▲ 5 r/Mononucleosis+1 crossposts

Symptons

Good afternoon everyone, are this Symptoms of EBV:

Throat Tightness
Fatigue
Trouble swallowing
Nausea
Wanting to Vomit but can’t
Bloating
Malaise
Can’t tolerate heat
Can’t have full meals
Sharp pain like a needle in back of throat
Back of head pain/Inflammation
Wake up everyday at 3am
Super sensitive gag reflex
Dry heaving
Thick phlegm when eating
Super slow digestion
Constipation
Systemic inflammation
White/grey flashes in the corner of eyes
Floaters
Burning skin sensation
Weight lost due to not eating enough food

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u/Delicious-You-8691 — 9 days ago

This is unbearable

So I have been sick for a month now first I got step throat and after I finished my antibiotics it came back then I had a second round of antibiotics but then it kept getting worse after the 5th day on them. I went to new doctor and they gave me different antibiotics and a script for blood work. Everyday just keeps getting worse, I haven’t been able to eat or sleep for more than 15 minutes at a time. I had such severe throat swelling I had a mental breakdown, then begged my mom to go to the hospital. We heard that when we got there my blood work tested positive for mono and my spleen is slightly enlarged. They gave me some steroids but it’s not as good as I need them to be. I just want to feel better. I also have been getting sinus pain and postnasal drip. I also have a huge party im hosting this Saturday and im stressed that I might have to cancel it. What do you think my chances are, when will I feel normal again.

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u/Jakeb4statefarm — 8 days ago

Mono??

Hi all! I (21F) just tested positive for EBV again..? I first tested positive in Dec 2024, and again now Aug 2026. My doctors are saying it’s an acute affection due to my antibody results. I’m just so confused because my symptoms don’t feel like mono. About a month ago I was throwing up due to CHS and have been dizzy and headaches ever since. No fatigue, inflamed lymph nodes, or sore throat. I went away for 10 days and felt significantly better, but once I got home and had a lazy day I’m right back to where I was. I’m not saying I don’t have mono, but should I be worried this is something else in addition? I’ve just never heard of these symptoms before and it also doesn’t make sense that I was better when I was active. I feel like my head is going to explode, but it’s definitely worse when I’m standing up. My heart races when I stand up at first too. I have to go back to college soon and I just don’t want anything serious that could be underlying to go undetected.

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u/FickleButterfly4559 — 9 days ago

mono and sex help!

I got my wisdom teeth out on 21 july and after one week on 28 july my throat started to hurt and my tonsils were white, it was like swallowing hell. then I got diagnosed with ebv. I didn’t have any fever, or my lymph nodes were fine. it was just my tonsils making me cry from pain. anyway after few vitamin treatments my throat was clear in one week, that makes it 4 august. I don’t have anything since last week. I don’t have any fatigue either.

the question is that when can I have sex with my bf? is it possible to give it to him through vaginal fluids? there is very few information about it. did someone had the same experience as me?

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u/Fun-Permission-749 — 8 days ago

just got diagnosed… anyone in the same boat?

i’m really hoping it’s a mild case here… i’m on day 8 of sore throat/swollen tonsils, but haven’t had a headache and the only fatigue i feel is because i can’t sleep at night… also no fever. has anyone experienced this and gotten worse? better? looking for anything here

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u/shredbread1 — 9 days ago

Mono, but not mono and now my life sucks

TLDR: I tested positive for mono last april, then it came back in august which it isn't supposed to do, then I got tested again in March because I was symptomatic again, and thankfully tested negative, but the doctor did another more specialized test -- and looked for the EBV virus -- it wasn't there. I repeatedly have bouts of illness now and I don't know what fucking virus I had or why it triggered positive on the mono spot test.

putting tldr above for anyone lazy and here are the deets:

I got mono last April and it was brutal. Lasted a month. had severe fatigue, fever, headaches, and at the very end of it, had the bad sore throat and white pus on my tonsils. I was so miserable at the end no amount of tylenol helped me sleep and i was just mouth breathing in sufferance. But it lasted a full ass month and I had to go to the ER and that's when they did the first mono spot test and I tested positive. So as one does, I assume I have mono because I supposedly have mono and it feels like mono and seems like mono.

Except then I tested positive for mono again in August after a bout of a will-not-be-named horrible throat disease that was my own fault. And I was confused because I didn't think mono could come back. Why would mono come back? And I proceeded to have some mono symptoms and enough mono symptoms that I apparently infected some guy I was dating at the time ALSO WITH MONO so the mono virus was back and active and fucking people up (yes I talked to that guy, we're chill, he holds no hard feelings, I didn't know).

After that, I repeatedly had moments where I'd wake up with my tonsils all swollen again and all fucked up and feeling sick and I didn't know why. I eventually went to another doctor one of these times that I was really messed up and this doctor said I'll do a mono spot test but I'll also do a more in depth test that actually looks for the EBV virus and checks how much of it is active versus inactive. She did that test and said a) I did not test positive for mono on the spot test (woo but I'm still in pain) and b) there is no EBV virus.

None???? Like none. And I clarified and she said there's no way you could have EVER had the EBV virus in your system. And this kind of makes sense because mono isn't supposed to come back and the doctor who told me I tested positive again in August said at the time (different doctor) that I couldn't re-contract the same mono and that it was super unlikely that I could have gotten mono twice because you're not supposed to be able to get it again. And I thought that too and because of the throat virus thought that that could have triggered some virus that was dormant (eg. EBV) to reactivate. But now I don't even have EBV in my system and I'm concerned.

I ended up going to an ENT who gave me some treatment regimen to just deal with my tonsils when they act up and deal with the other issues when they happened. I asked about the mono/not mono thing. He said yeah no matter what the virus they still kinda call it mono and they likely won't find out what virus I had. But I'm concerned because like I said, I'm having continued problems and even this regimen isn't solving them. I've been having repeated flare ups for the past year and a half and my tonsils hurt now too and I don't know if it's possible this other weird virus fucked my immune system or something?

Anyway, has this happened to anyone before??? What other viruses could cause mono?? Help???? Did anyone have permanent immune damage from mono???? I don't know what to do because I keep going to doctors and not getting help or any clarity.

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u/Miserable_Land_9004 — 11 days ago