u/Standard-Call666

I’ve been on xywav for four months now and still really struggling with morning nausea. I have lowered the dose many times to the point where its hard to sleep now (on 2.75/2.0)but the nausea persists every morning. Its helping otherwise so I don’t want to give up but I am at my wits end with it- have tried eating some crackers after my first dose/ when I wake up and all the anti nausea meds. I just have no idea what is causing it to hang around for this long and not sure I can go down any lower on dose.

It usually lasts a few hours in the morning and then goes away but it can be longer when it’s really bad. Has anyone managed to troubleshoot this?

I have tried xyrem twice with no success (mainly nausea and hr issue) and xywav 2x. on my second trial of xywav things are going much better and I am experiencing relief from EDS. Are there people who just can’t do one of the oxybates? Or might I have more luck if I try to titrate onto xyrem a third time? Is it easier to switch once you have already been on one oxybate successfully?

I have been getting LHR for a year now on my legs and I have noticed these strange brown spots all over my legs, almost like very light moles. I assume it is from the laser but not sure why it is leaving behind these marks, they don’t seem to fade at all between sessions or go away.

Sometimes the laser makes an actual mole go black (I have panicked and gone to the derm before) bur that always goes away in a few weeks whereas the brown spots have not.

Any idea what this is?

Has anyone managed to resolve the issue with oxybates and heart palpitations?

I don’t feel any anxiety when I wake up but shortly after I start getting heart palpitations which continue all day until I take beta blockers. They don’t seem to fade even like 6 hours later. I don’t drink coffee anymore but that doesn’t seem to make a difference and I don’t take any stimulants.

For me they always start right when I get to the minimum therapeutic dose. Has anyone managed to resolve this issue somehow?