I think I’m going to boycott sitting down.

Every seat/couch no matter what even with proper posture will make my neck pain and symptoms worse. Today I decided to only lay flat or stand and I feel a little better. Has anyone else done this?

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u/Strongerversions — 3 days ago

I’m actively pulling my hair out and my mind is spinning. Life has been altered after driving through intersection that was doing asphalt milling.

I’ve kept this to myself for years and I’m tired of living like this. I don’t even know what is wrong with me and I heaving suspect cci. My life changed driving and dropping into an intersection that was redoing the asphalt. Then exiting the intersection my whole car violently bumped up.

Headaches, brain fog, light sensitivity, neck pain, and cold feeling in my forehead all within 48 hours and stayed for 1 month. I’ve had over 20 times where the same thing happened from falling on my back, driving over potholes and speed bumps, moving my neck too fast.

The initial injury was next level for every symptom, so bad that I needed to wear sunglasses at night. Every other relapse was terrible too but not as extreme and I’m still in one for the past 4 months. Neck pain every single day with pain going down the right side of my back. When I hit a speed bump on the road I know I’m screwed for all the other symptoms to set in when I feel my forehead feel like it has blood drawing away from it. The cold feeling comes more when I exhale/speak/or think too hard.

This is making me not even want to drive anymore and I’m so cautious for every movement I take. I hate myself for putting this off and I want to fix my life. I’ve researched doctors in my area and there is so many bs doctors and no real guidance of how to not be tossed around by doctors and chrioquacks.

Where do I go from here to get all the tests done necessary and what doctors to go to? I don’t want to get radiation in any form and don’t even know if any tests will show anything at this point.

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u/Strongerversions — 20 days ago
▲ 17 r/eds

Avoided cars for 2 months and yesterdays 5 minute car ride has relapsed my symptoms.

I don’t want to explain fully but I had an incident where few years ago I hurt my neck in a car ride. Hit a giant bump in the road and somehow got hurt terrible symptoms of light sensitivity (so bright at the time even with sunglasses at night), brain fog, intense neck and head pain, and cold sensation on my forehead whenever I exert force or even breathe.

I have relapsed about 30 times since by driving over potholes, speed bumps, and falling on back. I am now with eye pain, cool feeling on forehead, and neck pain just from a simple drive. I have no idea what is wrong with me and I am going to the doctor after all these years.

I feel so frustrated and feel like nobody will believe me. Don’t even think I’ll ever get better from this and it’s ruined so much of my life for the past few years.

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u/Strongerversions — 24 days ago

Avoided cars for 2 months and yesterdays 5 minute car ride has relapsed my symptoms.

I don’t want to explain fully but I had an incident where few years ago I hurt my neck in a car ride. Hit a giant bump in the road and somehow got hurt terrible symptoms of light sensitivity (so bright at the time even with sunglasses at night), brain fog, intense neck and head pain, and cold sensation on my forehead whenever I exert force or even breathe.

I have relapsed about 30 times since by driving over potholes, speed bumps, and falling on back. I am now with eye pain, cool feeling on forehead, and neck pain just from a simple drive. I have no idea what is wrong with me and I am going to the doctor after all these years.

I feel so frustrated and feel like nobody will believe me. Don’t even think I’ll ever get better from this and it’s ruined so much of my life for the past few years.

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u/Strongerversions — 24 days ago
▲ 0 r/eds

I am about to MRIs for upright and lying down for a list of symptoms. This is an MRI from years ago unrelated to this. I used to have tingling sensation that spread slowly over the course of a few months from my head down to my toes when I was a teen and then it ended. Almost a decade later I injured myself if a car ride and have been screwed with other painful symptoms for 3 years. About to go to the doctor for the first time for this but was looking at my old mri for anything.

u/Strongerversions — 2 months ago