u/SufficientCow4

Big storm burst hit my area yesterday. Got notifications that my power and internet were out until 8pm. No big deal… I set the dogs up and went to work. Got home at 1am and still no power. I have an Anker Solix battery bank so I grabbed that and realized it was on 2%. I never charged it after the last power outage. (1st fail)

I was still able to charge my phone and a battery for my dewalt fan. My 2nd fail is not having both of those batteries charged up. I was able to get one battery charged up enough that the dogs and I were semi comfortable last night even though it had been 95 degrees yesterday.

This morning I went to grab the cords to run the solar panel to the battery and my 3rd fail is that I can’t find one of the connector pieces. Luckily I found the car charger adapter, so I loaded a kid and dogs up in the car and we went for a drive to get cold drinks and ice for the cooler.

My one small tiny win in this situation is that earlier this year I bought a plug in ceiling fan for my living room. They are meant to be installed on outdoor porches. I didn’t want to try and wire a ceiling fan in so I went with the plug in route.

The dogs and I are currently sitting in a blacked out room with the ceiling fan plugged into the battery bank to cool off for a few before I brave the hotter parts of the house to go in search of the connector I need to hook the solar panel up.

Power isn’t expected to be restored until possibly 8pm tonight. We are safe overall but this has shown me multiple ways I need to improve my set up and how things are organized

Background. Diagnosed 8yrs ago in lower left leg from knee down. Been in remission for almost 5 1/2yrs. Still have minor flares.

Back in February I got a large tattoo down on my left upper thigh/hip area. I read that people got tattoos with no issues and thought I’d be good. Tattoo process went fine and I sat well during the 5hrs. Minimal scabbing, no bleeding etc. healing went well. Only weird thing was the line work was raised for almost 2 months before settling down. None of my previous tattoos have ever done that. Since then everything has been great.

3 days ago I had a flare in a nightmare and woke up in an active flare. Also had pain in my right foot and leg which had been happening more often over the past 2yrs.

Today I woke up and my hip hurt. Like at the top of my femur bone but it was just in the skin. Not the muscle or the bone itself. When I tried to rub it I was surprised by how uncomfortable touching my own skin was. Brought me back to the first 2yrs of dealing with crps when touching my own leg was impossible and when I could eventually do it, it made me nauseous. On and off all day I am getting the feeling that that patch of skin is trying to crawl off my body. I’ve only every experienced that on the bottom of my foot 🫤

Trying to be positive over here and I’m telling myself it’s just a random fluke but I also realize how lucky I have been to be in remission for as long as I have. If this is the start of it coming back and potentially spreading I’d like to take action now to prepare my home in whatever way possible and start researching Drs in my area that would be able to treat it.

Would love to hear any opinions or experiences.