u/Swimming-Ad-9212

I have 8 weeks of dose dense AC (every 2 weeks) followed by T for 12 weeks (every 7 days)

I had my first chemo on Thursday (3 days ago). And as everyone was checking on me after etc, I realized that the worst part of the infusion wasn’t even the infusion itself, it was the cold capping. It stressed me out so much. The machine was temperamental AF, I was freezing, couldn’t get comfortable without kinking the hose, couldn’t hear over the machine, and my AirPods hurt to wear which meant no audiobook I was counting on.

I’m told that cold capping is unlikely to work with my chemo regimen anyway. I’m not sure I’m ready to emotionally commit to going bald yet, but it’s probably gonna happen either way.

Has anyone started cold capping and gave up? Did you regret it?

I did search already but am curious if there’s any new answers from anyone:

1. What advice would you give to someone prepping for chemo? Asking about infusions themselves and at home for managing side effects?
2. What should I bring in my chemo bag?

For context, here’s my situation:
- I’m 33 years old, 2 daughters (14 and 3)
- Stage 3A IDC, multiple tumors spanning 7cm total
- 5 months of AC+T chemo (AC every 14 days for 8 weeks, T every 7 days for 12 weeks)
- I am cold capping 🤞
- port placement in 4 days
- first chemo treatment in 6 days
- they told me to expect to be there the entire day on infusion days

Either my husband or my mom will be driving me each session and plan to stay the whole time, thankfully

Thank you all, in advance. This sub is incredible and (surprisingly) my new favorite place on Reddit 🫶