u/TJM0325

▲ 2 r/BFS

17 months and then bulbar symptoms or anxiety ?

Just want to start off by saying I’m aware of my severe health anxiety, but just wanted to know if anyone has gone through anything similar or knows of anyone who has.

My quick story :
17 months of twitching body wide
4 limb emgs all clean most recent June

I posted a few days ago, but things seem to be worse. My tongue feels incredibly weak. I wake up and the left side of my face feels heavy and numb. Twitching has increased in the neck and face not by a crazy margin but enough to notice. My voice sounds run down. I am not having any issues swallowing yet and I can still move my tongue around relatively normal and speech seems ok, but as I stated above my health anxiety has me in full panic mode probably the worst it’s ever been.

I guess I’m just looking to see if anyone went through something similar where they twitched for an extended period of time and then thought they were getting bulbar symptoms and what it ended up being or what they did to alleviate the symptoms. Thanks in advance and stay safe

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u/TJM0325 — 15 hours ago
▲ 2 r/BFS

Fear of bulbar

Freaking myself out yet again. 17 months into twitching body wide most recent emg 3 weeks ago
All clear. As of 2 days ago started to notice what felt like excess saliva in the left side of my mouth and just overall difficulty like things feel harder to do or weird feeling in the left side of my mouth. Hoping it’s just my health anxiety. I tried to read some posts on here before jumping to conclusions but I’m nervous as shit about bulbar als because I’ve never had my tongue tested on any of the emgs I’ve done. I reached out to my neuro to see if I should be concerned at all but anyone have any input or know anything about bulbar? Thanks

reddit.com
u/TJM0325 — 4 days ago