Where can I find this? Decor to find to honor my daughter.
I’ve been doing a quick search through Reddit. I stumbled across a post (not good at linking bc I’m getting used to how Reddit works, but I will if I can) I know a lot of ppl scroll thru and don’t read someone’s story. I’m not going to the whole life story, and will try my best to narrow it down, and gladly answer any questions.
What I’m looking for is butterflies to honor our daughter. She had epilepsy, A-Tonic head drop seizures all throughout her life to be exact. When she was just about 5yrs old, we finally found medications to stop her head drops, and fully live her best life with no more head drops.
We almost made it to a year seizure free, and all of a sudden she was getting new seizures. After 3 months in the hospital going through A LOT. She passed away when she was 6yrs old, due to having an underlying Mitochondria disease, which lead her to liver failure.
I can write a whole story about her, what she went through, bc Mitochondria disease isn’t something anyone talks about bc it’s practically unknown, and as parents, we never knew this disease existed. We didn’t even realize how complex epilepsy was, until we lived it. Bc when we think of Epilepsy, you think of someone laying on the floor convulsing. And as first time parents, you learn about different types of seizures.
What I’m looking/asking for, I really want to find decorations to honor my daughter. I’m new to Reddit so I don’t know how to post the pic and credit the one who originally posted. But I would love to have hanging/dangling butterflies that you can see when it’s night time. I’m tired of looking at target, Amazon, Walmart and not finding something that really draws me into it. Idk, I’m just asking for butterflies, anything losing a daughter related I guess. She just gained her 5yr angel wings at the beginning of April. I’m horrible at finding things. Oof pls be kind to me, I will answer any questions bc it was such a lonely time bc I didn’t know anyone who was going through what she went through.
PS. The man who helped us make her headstone, he lost his brother when he was young. And his parents told him and relayed their experience to us was, “you never will get over it, but it’s something you learn to live with.” It gave me comfort, but grief really has no timeline. I hope you all give yourselves grace, I’m honestly still learning myself.
Natalie 10.13.14-04.09.21💜🦋