Child GBS
Hello, I stumbled across this subreddit while doing my personal research. I was diagnosed with GBS when I was just two years old and I am lucky enough not to remember it. However it has always been a big part of my life, since my parents always told me many stories about my recovery, most of them still make me cry when I think about them.
My favourite story is about my dad trying to feed me a banana. At the time, I was bedbound - basically tetraplegic and fully blind - and I really didn't like bananas, so while I was throwing a tantrum and spitting the food all around, a thumb on my right leg started twitching. When dad noticed it, he sprinted out of the room, shouting across the whole clinic that I can move, to get everyone to have a look.
Now I'm 23 years old, fully recovered (only with minor deformities to my left upper arm and thorax) and studying pharmacy in college. Since I can now fully understand the mechanism of this disease, I'm thinking of concentrating my studies on it's treatment and prevention, so that no parent has to go through the same experience as mine did.
Im not sure if my story gives you anything, just wanted to say that all of you are incredibly strong and brave and I pray for you to recover and live a happy healthy life. I hope that one day I'll be able to help people like you and that the chance of full recovery from GBS will go from most patients to all patients.