u/Teuflisch1999

▲ 178 r/cfs

My wife is being labeled mentally ill and being possibly sent to the psych ward after a hospital visit

UPDATE

I wrote the post at 2am when i was stressing out over this and very angry. They did take her to psych ward, nothing i could do about it as this is the law in finland. Although I never saw the diagnosis saying she is a danger to herself or others, which is the basis for being held against your wish. I am now on a visit next to her for 7hrs and the doctor will only see her in my presence, if he/she has time today. Supposedly she is only here for an evaluation after what they call an M1 referral, and then they can either send her home (most likely as she is behaving very well and eating everything they give her) or decide where to send her for more care. but the health system is really overencumbered in Finland and they more often then not, let you go, even when you ask for help.

I got some good recommendations for clinics and private specialists from you people and I will contact them when she is back home. Honestly last hospital visit regarding this health issue. They have proved several times that they dont care and have found nothing. Nothing.

----‐------------------------------

I posted here a few days ago looking for advice for my wife. Long story short she got a small cold (likely covid, not tested) about a month ago, but it has deteriorated quite badly after she tried to push through and she went from being only able to do a few things such as sit on sofa and go to bathroom to being completely bedridden with fatigue for the past week.

She has been taking antihistamines for a few days and they seemed to help.

This morning she was feeling particularily bad, and with only a small glass of water drunk and a few spoons of yoghurt eaten but gagging to anything else, I had to call the ambulance so she can get better care at the hospital. This is not normal afterall.

Now, she is on her 3rd hospital visit since this started, and they keep stressing that they "cant" find anything wrong with her and keep calling psychiatrists to examine her for depression and what not (PEM gives her very bad anxiety) and now (1am here) I got a phone call from her crying and telling me that she is either getting sent home or being put in a psych ward 50km away because nothing else is wrong with her.

I had a talk with the doctor earlier in the evening and I asked, almost begged her that, if they really cant find anything, she should be tested for EBV and covid antibodies. She answered me with "psychological evaluation in the morning". They are basically refusing to run a few simple tests on her.

I dont know what to do. I want her to come home at this point, because they keep forcing her to push herself and she might not be able to simply leave once she goes to the psych ward if ahe doesnt like it and cant rest properly.

At home she can rest as much as she needs to, but i dont have that oxazepam they gave her to calm down from her feelings of doom. And if she continues having problems eating that is also very concerning to me.

The nurses are also being mean to her because they think she is faking it. I asked them to bring an extra pillow for her tummy and to change the sheet that she peed and now 6hrs later she is still laying in her dirty sheet.

The psychiatrists that have seen her have all said there is nothing wrong with her yet this is the doctors decision.

This is in happening in Finland

reddit.com
u/Teuflisch1999 — 6 days ago

My wife is being labeled as insane and being sent to the psych ward. No ebv or covid antibody testing even upon request

UPDATE 2

I wrote the post at 2am when i was stressing out over this and very angry. They did take her to psych ward, nothing i could do about it as this is the law in finland. Although I never saw the diagnosis saying she is a danger to herself or others, which is the basis for being held against your wish. I am now on a visit next to her for 7hrs and the doctor will only see her in my presence, if he/she has time today. Supposedly she is only here for an evaluation after what they call an M1 referral, and then they can either send her home (most likely as she is behaving very well and eating everything they give her) or decide where to send her for more care. but the health system is really overencumbered in Finland and they more often then not, let you go, even when you ask for help.

I got some good recommendations for clinics and private specialists from you people and I will contact them when she is back home. Honestly last hospital visit regarding this health issue. They have proved several times that they dont care and have found nothing. Nothing.

---------------------

I posted here a few days ago looking for advice for my wife. Long story short she got a small cold (likely covid, not tested) about a month ago, but it has deteriorated quite badly after she tried to push through and she went from being only able to do a few things such as sit on sofa and go to bathroom to being completely bedridden with fatigue for the past week.

She has been taking antihistamines for a few days and they seemed to help.

This morning she was feeling particularily bad, and with only a small glass of water drunk and a few spoons of yoghurt eaten but gagging to anything else, I had to call the ambulance so she can get better care at the hospital. This is not normal afterall.

Now, she is on her 3rd hospital visit since this started, and they keep stressing that they "cant" find anything wrong with her and keep calling psychiatrists to examine her for depression and what not (PEM gives her very bad anxiety) and now (1am here) I got a phone call from her crying and telling me that she is either getting sent home or being put in a psych ward 50km away because nothing else is wrong with her.

I had a talk with the doctor earlier in the evening and I asked, almost begged her that, if they really cant find anything, she should be tested for EBV and covid antibodies. She answered me with "psychological evaluation in the morning". They are basically refusing to run a few simple tests on her.

I dont know what to do. I want her to come home at this point, because they keep forcing her to push herself and she might not be able to simply leave once she goes to the psych ward if ahe doesnt like it and cant rest properly.

At home she can rest as much as she needs to, but i dont have that oxazepam they gave her to calm down from her feelings of doom. And if she continues having problems eating that is also very concerning to me.

The nurses are also being mean to her because they think she is faking it. I asked them to bring an extra pillow for her tummy and to change the sheet that she peed and now 6hrs later she is still laying in her dirty sheet.

The psychiatrists that have seen her have all said there is nothing wrong with her yet this is the doctors decision.

reddit.com
u/Teuflisch1999 — 6 days ago
▲ 7 r/cfs

How do you deal with panic?

I heard a common symptom of PEM is intemse feelings of doom and panic. My wife is going through a crash right now and the moment she opens her eyes in the morning she starts hyperventilating and panicking. She describes the whole thing as living in hell and wanting to die. I try to get her to do breathing exercises but she won't.

What do you do to manage your anxiety levels during a crash? The problem is, because she is pregnant, she can't really take anything for it.

Yesterday she started taking loratadine to manage the fatigue symptoms, and it calmed her down immensely because I mentioned some antihistamines have a sedating effect. Later she read that loratadine doesnt though, and now shes freaking out again :/

reddit.com
u/Teuflisch1999 — 8 days ago

My wife wants to know how long do crashes generally last

I've tried to read everything i could online, but she has anxiety problems plus gets panic attacks, both of which dont help recovery, so I thought I would ask here for some personal examples. When she is able to use her phone she uses reddit alot for comfort.

Long story short she got sick from me a month ago, no fever, no bad symptoms, and she was about to get better but then crashed into this condition. She is now basically out of comission, I have to carry her to the bathroom, sometimes spoon feed her and she cant talk much. I know it sounds like cfs, but it has only been like this for a month and it happened overnight.

We did take her to the hospital where she stayed for a few days, but they forced her to walk and stand up, refused to take an antibody test and all other tests showed there is nothing clinically wrong with her.

She was actually getting a little bit better, could sit upright on the sofa and use her phone most of the day, even read a book a little bit.

When she started feeling slightly better she pushed herself trying to do some laundry and now she is crashing really bad. I suppose it wouldnt be so bad if it werent for her stressing out and feeling suicidal over this condition, which dont help her resting.

This is probably long covid and not cfs, but severe fatigue seems to be her steongest symptom.

Any words of comfort for her? She feels like shell never come out of this crash or ever walk again.

She is 4 months pregnant and we have 2yo in the house.

reddit.com
u/Teuflisch1999 — 8 days ago

Need advice for my wife

I brought home what seemed to be a very minor cold (neither me or any coworkers had a fever or any severe symptoms) and my 4month pregnant wife seemed fine for a few days, was getting better but then crashed.

Now she has been out of comission for about a month. I had to quit work to be home with her and our 2yo. She went to the hospital where she stayed for a few days and was monitored, had blood work done, thyroid checked, everything, but they said that there is nothing wrong they can find with her. Then they wrote in her file, more or less, that she is mentally ill.

At the hospital they forced her to walk, and she tried to even do laundry at home, all of which caused her to crash really bad for the past few days. Atm she can barely talk, I have to carry her to the toilet, and I dont know how to help her.

We have read about pacing and she is trying to do that right now, just hoping she will get a little bit better and then continue resting instead of trying to get up.

Some more background info, she has also had IBS, panic attacks and anxiety for the past year or year and a half, all of which point to a deregulated nervous system.

She does her best to rest, no phone, no reading, not much talking, but she can't stop freaking out and crying all day, which I suspect does the opposite of resting.

Is there anything else I can do? She eats and drinks fine, but I am not a therapist and I cant help much with her stress.

She said it might be covid, and that cfs doesnt get diagnosed until after 6 months of being bed bound, thats whg i thought of posting here.

Ps - I just read about lithium supplements in this subreddit, would this be something worth trying seeing as she is pregnant?

reddit.com
u/Teuflisch1999 — 10 days ago