u/TheRitz44

I finish my round of IVIG treatments today..

So today is my last day. From day one I noticed increased energy (I actually couldn't take a nap), after that day some flexibility in a few fingers I couldn't actually move very well, noticeable strength in my dominant arm (odd because my non-dominant arm has been carrying me since the symptoms started to get much worse), less twitching..but still not able to lift my arms so that's a concern. I continue to ask for your thoughts and prayers as I'm still trying to stay positive 🤞🏾🙏🏾. Thank you

https://www.reddit.com/r/ALSorNOT/s/e540h8lvfJ

reddit.com
u/TheRitz44 — 16 hours ago

Seriously

I have tried everything..it kicks me out. My racing team is pushing for first and I'm in second place in the tournament

u/TheRitz44 — 17 hours ago

Tired..

I have been dealing with a more than likely upcoming ALS diagnosis for nearly a year, symptoms for over a year and a half now. Upcoming treatment and then I will have to have a followup with my neuro to see if there are any improvements. A few months ago, while doing any examination before receiving PT, the lady looked at my files and said, "OMG I saw your files and couldn't believe it said "Possible lower motor neuron disease! How are you so calm? I would literally be in tears!"..lady I'm at the point where I'm leaning more towards it every single day but I'm keeping the hope that's in fact an autoimmune disease because that's all thats left for me at this point. I keep pushing thru the pain, discomfort, and the continued weakness for my family but I'm just so fucking tired..the scientific people tell me basically I'm fucked while the religious people tell me to pray because you never know. It's been an exhausting rollercoaster..

reddit.com
u/TheRitz44 — 13 days ago