
Myriam Westcott Meeting Recording
If you missed Myriam Westcott's presentation at the Hyperacusis and Other Sound Disorders Group Meeting, you can watch it on Hyperacusis Research's YouTube channel...

If you missed Myriam Westcott's presentation at the Hyperacusis and Other Sound Disorders Group Meeting, you can watch it on Hyperacusis Research's YouTube channel...
Our scientific advisor, Dr. Kelly Jahn, recently broke down the crucial differences between loudness hyperacusis and pain hyperacusis for ENT & Audiology News. While theories suggest that loudness stems from brain-based volume amplification, it is hypothesized that the painful version involves muscle/nerve dysfunction, leading to debilitating symptoms and setbacks.
Dr. Jahn emphasizes why clinicians must approach these variants with extreme care, moving past standard treatments toward personalized management.
Read our full breakdown and access the original article here... 👇
https://hyperacusiscentral.org/dr-kelly-jahn-writes-for-ent-audiology-news/
We have a new hyperacusis hack!
Sound sensitivity can make phone calls impossible, the deafening beeps, trills, and voices of the people you're calling triggering instant pain and tinnitus spikes.
The fix? IP Relay services. You type everything into an app or website, a live operator speaks for you and types what the person on the other end of the phone is saying, and there’s zero sound on your end. It works for both outgoing and incoming calls.
This piece has a real call transcript to show you what the service is like + details on how to use it. 👇
https://hyperacusiscentral.org/hyperacusis-hacks-phone-calls/
"The Scream" by Edvard Munch has always resonated with me on my hyperacusis journey. I mean, look at it—the figure is holding his ears, terrified. The physical upheaval he's experiencing—like pain hyperacusis—is so palpable. The world around him is like a loud whirlpool, getting swallowed up, which represents the collapse of order so many hyperacusis sufferers confront. The two figures in the background seem entirely unaffected. This terror belongs to the subject alone; the isolation is unbearable. I think this artwork is a perfect illustration of hyperacusis on many levels.
Click on the link to learn more about the history of "The Scream" and how it aligns with hyperacusis.
Hyperacusis Central has a new Discord server called "Quiet Riot!" I and others who have hyperacusis and its cousins (tinnitus, photophobia [light sensitivity], etc.) know what it's like to feel alone. Our goal is to help each other past that so we can find our Promised Lands, if possible, while having a rootin'-tootin' time doing it. 🤠
Here is what you can find in our community...
Support and socializing: Connect with others who truly understand.
Condition learning: Explore the different kinds of hyperacusis, tinnitus, photophobia, and visual snow.
The latest science: Channels for medical research and news.
Off-label treatment options: Information, medical studies, and open discussions.
Links to popular Hyperacusis Central pieces and videos about: Patient stories and success stories, disability benefits, what our scientific advisor, Dr. Kelly Jahn, is accomplishing in the research field, etc.
Fun and leisure: Talk about hobbies and interests, and play some games, like Pokémon, Dragonball, Counting, and Fishing!
Our server is highly accessible with text-only participation for those who need quiet. 🤫 So go ahead and have a good time—it'll be a riot!
Click below to join...
You know the drill if you live with hyperacusis. Bad news is the norm. We’re often told we’re exaggerating by friends or family and that we need to “tough it out.” Even the medical community can’t seem to agree on what hyperacusis is (it gets confused with misophonia), or how common it is, and routinely brush us off.
​
The good news is that a new study, co-authored by Hyperacusis Central’s scientific advisor Dr. Kelly Jahn, is trying to fix these problems. The researchers are introducing a brand new framework called “Sound Hypersensitivity Phenotypes.” By establishing “Sound Hypersensitivity Disorder” as a distinct medical syndrome, they’re drawing a hard line between mild sound annoyance and the kind of life-altering pain we deal with every day.
​
You can read the full study on our website by clicking below.
​
How does hyperacusis change your entire life? In his new video, Shane opens up about how severe sensitivity to high-pitched sounds turned his world upside down. Click below to watch it. (Closed captioning is available.)
My hyperacusis and tinnitus are so severe that I can't use standard microwaves and ovens. The beeps, sizzling, and whirring cause pain and louder ringing, even with hearing protection.
​
Read the full post to learn how a remote-controlled "smart" microwave restored my cooking abilities and transformed my bland, tiring diet.
​
https://hyperacusiscentral.org/hyperacusis-hacks-microwaves/
Below is an important note about the next Hyperacusis and Other Sound Disorders Meeting. This is from Trudy, the event's facilitator...
Please join us for a special event! Our Tucson Tinnitus and Sound Disorders Group and our Hyperacusis and Other Sound Disorders Discussion Group will be combined for the June meetings. It will be on Saturday, June 20th, 11 am (Mountain, Noon, Central, 1 pm, Eastern, 2 pm).
Link (this link is different from the usual third Thursday link): https://us06web.zoom.us/j/83986966921
(no passcode needed)
One tap mobile
+17207072699,,83986966921# US (Denver)
+12532050468,,83986966921# US.
Dr. Ann Perreau will be our guest, a clinical researcher and audiologist who is conducting a survey of Audiology Perspectives on Training and Preparedness in Hyperacusis Care.
The survey is to be completed by audiologists and can be accessed here: https://forms.gle/dRzou7GcSQxfGoXx9
Please feel free to forward this link to your audiologist. You can be a part of this and help find potential treatments for tinnitus and hyperacusis!
Dr. Perreau is a professor specializing in audiology at Augustana College in Rock Island, IL. She teaches courses on hearing science, research methods, and audiology. At the Roseman Center for Speech, Language, and Hearing, she
offers audiological services focused on tinnitus and hyperacusis. Her research contributions include tinnitus and hyperacusis assessment, questionnaire development, and the publication of multiple peer-reviewed articles and book chapters.
Click on the link to learn about a study where hyperacusis was suppressed in mice.
https://hyperacusiscentral.org/hyperacusis-was-suppressed-in-mice-in-recent-study/
Hollywood loves turning painful health conditions into profitable, romanticized superpowers. If you read The New York Times review by Joyce Cohen, then you're well aware of "Tuner"—the movie where a character uses hyperacusis to crack safes.
In my latest article, I explain why disability shouldn't be a plot device, drawing on "Tuner" and a famous TV show. I have suffered with this ear condition since 2003, so I share my firsthand knowledge on why Hollywood gets it wrong, why the movie's premise doesn't work and why a raw, authentic story rather than a fantasy is what we need to shine a light on how debilitating hyperacusis is.
👇 You can read the piece here.
https://hyperacusiscentral.org/the-problem-with-tuner-disability-is-not-a-plot-device/
A recent study used artificial intelligence to analyze how mice respond to painful, loud noises. By reviewing video recordings, the AI discovered that mice experiencing sound-induced pain typically adopted hunched postures, moved less, and displayed pain expressions like grimacing, squinting their eyes, moving their ears, and changing their mouth shape. The biggest discovery emerged when researchers tested mice with non-functional inner ear sound sensors and found they did not exhibit pain behaviors. This proves that sound-induced pain is a neurological response to hearing the actual noise, rather than physical pressure on the eardrums from the sound waves. Interestingly—and this is my takeaway—that particular finding might mean that if a person with hyperacusis could be made deaf via surgery, it would eliminate their sound-induced pain. That is something hyperacusis sufferers often debate. You can read the full study via the provided link: https://www.biorxiv.org/content/10.1101/2025.09.30.679579v2.full
The next Hyperacusis Group Meeting will be an open Q & A with Dr. James Henry on Thursday, May 21st at 5:30pm Pacific Time (Mountain 6:30, Central 7:30, Eastern 8:30).
Link to join Zoom meeting: https://us06web.zoom.us/j/83795863868?pwd=USgMFtYs81bsbRvDI1AtAHYwk5ixca.1