r/hyperacusis

Sorry this is going to get into some disability politics type stuff, fair warning.

I am so, so fucking tired of people without H giving me unsolicited advice or feel it's their duty to try to fix me or cure me.

Why yes, I HAVE tried earplugs before! What a million dollar idea! It's not as if I haven't thought of that for a single moment in the 6 years I've lived with this!

And no, I don't need your advice about earplugs, because your ears and brain are not the same as mine. So why even insist on that?

If you really want to help me, start by listening to my needs instead of assuming what *I* need.

Also, stop insisting that I ought to go to the city to the big-name hospitals in my state because they can "surely fix me". As if I haven't been barking up that tree for the first 4 yrs of living with this to no avail.

I know, I know, they probably mean well and I shouldn't be so offended, and I suppose it's better than them being outright insensitive asshats. Though I have to wonder if it's just for their own egos so they can feel like they are contributing something towards the poor wittle disabled person and they can pat themselves on the back at the end of the day for doing their good deed.

I hate how trying to be honest about this always seems to open a conversation of "have you tried this/have you tried that" when they do not know shit. They have not been in the trenches like we have. So I wish they'd stop acting as if they know better than we do.

Kindly piss off.

I was recently (last week) "diagnosed" with this. Today I am going for and MRI so they can run test with and with out contrast and an angiography. Needless to say I am scared to death. I am fearing a noise I have never heard before. They are giving me valium before the MRI. Any words of wisdom and or courage would be great. This has been an hard road and I am so dependent on my Bose Head phones and my loops.

Is it possible to experience hyperacusis to just certain tones / frequencies?

My partner has a very sharp "s" sound that is high pitched and lately I've been hearing it VERY loud compared to usual. And instead of other noise making it better it's like other noise makes it worse (almost like other noise makes my ears "turn up the gain" to be able to hear my partner over the other noise.

Is this hyperacusis or something else?
Was thinking misophonia but that wouldn't explain why it's so much louder than it used to be.

Hi everyone,
I’ve had tinnitus for almost 3 months, and I’m wondering whether it is still possible for it to disappear completely at this stage, even though I haven’t been getting 8 hours of sleep consistently (never) and have been experiencing stressful episodes almost every day.
My living situation makes things difficult. I live in a small house, I’m currently unemployed, and I share a bedroom with my brother (bunked bed). My family makes a lot of noise in the mornings, so I often end up sleeping during the day instead. As a result, my sleep is frequently interrupted, and I wake up several times rather than getting a full, uninterrupted night’s rest.
I’m also dealing with stress and sometimes anxiety, which sometimes makes me worry about my tinnitus and its future.
My main questions are:
Is it still possible for tinnitus to disappear completely after 3 months, even if you haven’t been sleeping well?
Can ongoing stress and interrupted sleep affect the chances of tinnitus eventually going away, or do they mainly make the sound more noticeable?
Have any of you experienced complete resolution after several months, even while going through a stressful period and having difficulty sleeping?
I’d really appreciate hearing about your experiences, especially from people who were in similar circumstances.
Thank you!

So I had an acoustic trauma 4 months ago. About a month later it started with pain on the ears then I had headaches on the back of my head and visual migraines, that became neuralgia on the back of my head which then the neuralgia pain shifted to the side of my face and then to the front of my face where it is currently, is this normal for pain hyperacusis?
What should I be doing?
I have been to a bunch of doctors and non have been able to help, they said I should live normally, which I couldn't at first due to loudness hyperacousis, after the loud H got better I started to live more normally and got the nox on my face, maybe I pushed it too far? I was testing how much I can handle digital audio and my tolerance kept going up so I turned it up a bit day by day, but the last couple of days I seem to have gotten worse. Today I'm just staying in silence not listening to any digital audio, feels like I'm getting my front tooth pulled out.

My tinnitus also used to be extremely reactive and now it's not, seems like i have traded reactive tinnitus for nox.

If I got to like 70 DCB and then had a big flare up and then it just got progressively worse until cars outside with my windows closed sound loud do you think I will be able to come back and and go back to my previous progress where I was at 70 DCB? There is constant construction so I can'tmake any meaningful progress at all I'm just hiding in a quiet room that is basically silent to hide away from the construction every single day but hopefully they are finished soon because whenever I step out of that room and get blasted with saws and hammering and I can hear it in the room a lot which doesn't help I have headphones but sometimes the hammering and stuff goes through the headphones and my ears get all whack

Ever since I got hyperqcusis, got more hypervigilant and anxious, my sleep has been off.

Right when I sleep, and only when I sleep, I’d get mind pops(Random words that were said throughout the day, birds, beeps) and split screens(awake brain and asleep brain happening at the same time)

Ai says it’s because hyperacusis makes us hypervigilant so the brain is stuck on fight or flight which takes a lot cognitive load so we’re extra exhausted at night. Also because it’s so quiet, our auditory system takes random phantom sounds because it doesn’t have much sound/input to take in.

Anyway, anyone else experience this? If so, does it subside over time as the anxiety is regulated and hyperacusis gradually recovers?

Or do I need to see a sleep dr. I hear it’s normal. But it’s only been 2 weeks. I don’t want it to get worse if anything.

I have tinnitus around 2 months after antibitics. I want to live but its hard, its reactive all loud noises did my T louder. I don’t know if there medicine can do T just milder or get away reactivity. but I don’t know, my parents are old my wife young. I have to work and live but how? I work in drilling service and its super loud here, after worktime always its loud T, and worsened, I can go to home after 6 days. dont know what to do, go home or not its also not interesting but there also hard. HOW TO LIVE?

Hi, what do you do when you're in a really severe state—barely able to speak due to horrible pain, even in silence—and you live in an area prone to intense storms? There are storms right where I live; they’re incredibly loud—even with headphones on, it’s horrible and painful. The cracks are deafening, like vibrations inside my heart, and then the pain and my tinnitus spike. I don't know how I'm going to survive this. What would you do in my shoes?

Hi,

Had a 3T MRI earlier this week. Seemed like ear protection was inadequate. Immediately had auditory symptoms following it, including hyperacusis with pain. Tinnitus in quiet environments. The pain is cumulative. Eventually, ear starts burning by end of day. Dr gave me steroids but I’m reading that steroids might not be all that effective for these symptoms. Any advice?