For context, I have just started studying and I am only using real situations - in which I know the answer. I am not sure if creating stories can be considered a disrespect to the gypsy oracle so I don’t know….
Hi guys!
So, I was diagnosed with UC in the middle of 2024. At that time my symptoms were limited to blood and mucus and I was treating it with suppository mezalazine - even with this medication the symptoms never truly faded. However, it didn’t really affect my life that much so I just kept going with it.
The real problems only started in middle 2025, when the diarrhea was constant and full of belly pain, with a lot of dermatological issues like pustules and ongoing rheumatic crisis - sometimes the body pain would be so severe I could barely move.
At this point I had to change the medication and in the end of last year I started vedolizumab/entyvio. I am getting my fifth infusion next Friday. But being honest here, I feel hopeless. All this time symptoms have only faded away with dipyrone or prednisone. I also try taking oral mezalazine (4g) when I can and it helps a bit, but recently all I do is try to control what I eat (I have seen this is controversial here by the way, but I got myself a nutritionist specialised in autoimmune stomach syndromes) - even though it has been impossible to do that since my environment doesn’t allow me to eat exactly what my feeding plan says.
I just want Entyvio to work, seriously. I feel worthless sometimes for pretending not to be in pain with my friends, for shitting myself at home, for feeling disgusting all the time. I am currently in pain and I just wish this could be over. I don’t know what remission looks like but it’s my ultimate dream. Please, give me some light at the end of the tunnel. When did this medication start working for you? Since it’s my fifth infusion and I haven’t seen big changes, is it time to change it?
Thank you for reading <3