u/Turbulent-Fig-3802

I had covid in November 2020. Lost taste and smell for 6 weeks then developed severe migraines/headaches with visual disturbances (blurred vision, double vision, room spinning), dizziness, balance issues, lightheadedness, fainting, auditory and olfactory hallucinations.

Covid clinic sent me for physical therapy and a neurologist prescribed Gabapentin.

Had 3 psychotic breaks ever since and was diagnosed with bipolar 1 disorder with psychotic features. The headache always seems to signal that a manic episode is coming. It disrupts my sleep and that triggers mania and then not sleeping makes the headache worse and then I lose even more sleep and become more manic and then sometimes I will go into full psychosis.

Still have lingering daily headaches. Not as severe as when I was acutely ill. New neurologist called them post-infectious headaches with migrainous features.

I am taking Qulipta 60mg daily and Nurtec ODT as needed. The Qulipta hasn’t worked at all. Been on it a month with no luck. Nurtec takes the edge off but I can only take so much.

I take Depakote 1500mg and Gabapentin 900mg for bipolar disorder and these medications are also supposed to help with migraine prevention.

My neurologist suggested possibly doing Botox but Idk I’m a little hesitant about that.

I never had migraines before covid and they don’t run in my family so I don’t have anyone that really understands what I go through.

People don’t seem to understand that migraines are not just headaches it’s like a full body neurological event. I sometimes can’t think. My whole body feels stiff and heavy and I have tingling all over my body from head to toe. I was also diagnosed with small fiber neuropathy.